التفاصيل البيبلوغرافية
| العنوان: |
Patients' experiences with pre-test genetic counseling provided by breast cancer healthcare professionals: Results from a large prospective multicenter study. |
| المؤلفون: |
Bokkers, K., Bleiker, E.M.A., Velthuizen, M.E., Koelemij, R., Burgmans, J.P.J., Klinkenbijl, J.H., Schouten van der Velden, A.P., Vermulst, N., Huizinga, B.F., Witkamp, A.J., Frakking, T., Brohet, R.M., Aalfs, C.M., Koole, W., Schoenmaeckers, E.J.P., Ausems, M.G.E.M. |
| المصدر: |
Breast; Jun2023, Vol. 69, p349-357, 9p |
| مصطلحات موضوعية: |
GENETIC testing, PATIENTS' attitudes, MEDICAL personnel, GENETIC counseling, BREAST cancer, PSYCHOLOGICAL distress |
| مستخلص: |
Pre-test genetic counseling of patients with breast cancer is increasingly being offered by non-genetic healthcare professionals. We aimed to evaluate the experiences of patients with breast cancer receiving pre-test genetic counseling from a non-genetic healthcare professional (i.e., surgeon or nurse). Patients who were diagnosed with breast cancer and received pre-test counseling from their surgeon or nurse (mainstream group), and patients who received pre-test counseling from a clinical geneticist (usual care group) were invited to participate in our multicenter study. Between September 2019 and December 2021, patients received a questionnaire after pre-test counseling (T0) and four weeks after receiving their test results (T1) to evaluate psychosocial outcomes, knowledge, discussed topics and satisfaction. We included 191 patients in our mainstream and 183 patients in our usual care group and received, respectively 159 and 145 follow-up questionnaires. Levels of distress and decisional regret were comparable in both groups. Decisional conflict was higher in our mainstream group (p = 0.01), but only 7% had clinically relevant decisional conflict (vs 2% in usual care group). The possible implications of a genetic test on (secondary) breast or ovarian cancer risks were less frequently discussed in our mainstream group (p = 0.03 and p = 0.000, respectively). In both groups knowledge about genetics was comparable, satisfaction was high and the majority of patients in both groups preferred to give both verbal and written consent for genetic testing. Mainstreamed genetic care provides sufficient information for the majority of breast cancer patients to decide about genetic testing with minimal distress. • Pre-test genetic counseling by surgeons does not cause higher levels of distress. • Breast cancer patients have positive experiences with mainstream genetic testing. • Patients prefer to give both verbal and written consent for genetic testing. • It is important to identify patients who require pre-test counseling by a geneticist. [ABSTRACT FROM AUTHOR] |
|
Copyright of Breast is the property of Churchill Livingstone, Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) |
| قاعدة البيانات: |
Supplemental Index |
Full Text via ClinicalKey 
Full Text Finder