Validity and reliability of four parent/patient reported outcome measures for juvenile idiopathic arthritis remote monitoring
| العنوان: | Validity and reliability of four parent/patient reported outcome measures for juvenile idiopathic arthritis remote monitoring |
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| المؤلفون: | van Dijkhuizen EHP, Ridella F, Naddei R, Trincianti C, Avrusin I, Mazzoni M, Sutera D, Ayaz NA, Penades IC, Constantin T, Herlin T, Oliveira SK, Rygg M, Sanner H, Susic G, Sztajnbok F, Varbanova B, Ruperto N, Ravelli A, Consolaro A, Paediatric Rheumatology International Trials Organisation (PRINTO). |
| المصدر: | Arthritis care & research r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe instname |
| بيانات النشر: | John Wiley & Sons Inc., 2022. |
| سنة النشر: | 2022 |
| الوصف: | OBJECTIVE: Aim of this work is to provide evidence of validity and reliability for four parent/child reported outcomes (PCROs) measures included in the OMERACT JIA core domain set: the evaluation of the child's pain and level of disease activity, the assessment of the morning stiffness (MS) duration, and an active joint count for proxy/self-assessment. METHODS: Patients were included in the multinational study Epidemiology Treatment and Outcome of Childhood Arthritis. Criterion validity was assessed by examining the correlation of the four tested measures with physician measures and the clinical Juvenile Arthritis Disease Activity Score (cJADAS)10 in the whole sample and after grouping patients by ILAR category, geographic area, and education level. Reliability was assessed comparing two visits 7-14 days apart with intraclass correlation coefficients (ICC). RESULTS: A total of 8,848 parents and 6,204 patients had all the evaluations available. Correlations of tested measures were moderate (0.4-0-7) with physician reported measures. The level of correlation with the cJADAS10 remained stable after grouping patients by ILAR category, geographic areas, and level of education of the parent filling the questionnaire. In 442 parents and 344 children, ICC ranged between 0.79 and 0.87 for parents and 0.81 and 0.88 for children. CONCLUSION: The four tested PCROs showed good criterion validity and excellent reliability. These tools can be considered for remote patient assessment, when in person evaluation might not be possible. |
| تدمد: | 2151-464X |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=RECOLECTA___::665905d397c9993c6d5754a0996d2d3b https://fundanet.iislafe.san.gva.es/publicaciones/ProdCientif/PublicacionFrw.aspx?id=15507 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.RECOLECTA.....665905d397c9993c6d5754a0996d2d3b |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 2151464X |
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