Caring for a dying spouse at the end of life: ‘It's one of the things you volunteer for when you get married’: a qualitative study of the oldest carers' experiences
| العنوان: | Caring for a dying spouse at the end of life: ‘It's one of the things you volunteer for when you get married’: a qualitative study of the oldest carers' experiences |
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| المؤلفون: | David Seamark, Sheila Payne, Claire King, Mary Turner, Carol Thomas, Xu Wang, Sarah Brearley, Christine Milligan, Susan Blake |
| المصدر: | Age and Ageing. 45:421-426 |
| بيانات النشر: | Oxford University Press (OUP), 2016. |
| سنة النشر: | 2016 |
| مصطلحات موضوعية: | Male, Gerontology, Aging, Frail Elderly, media_common.quotation_subject, Emotions, Population, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), Nursing, 030502 gerontology, Humans, Medicine, 030212 general & internal medicine, Spouses, education, Qualitative Research, health care economics and organizations, media_common, Aged, 80 and over, Terminal Care, education.field_of_study, business.industry, Age Factors, social sciences, General Medicine, United Kingdom, humanities, Cross-Sectional Studies, Caregivers, Spouse, Needs assessment, Quality of Life, Female, Psychological resilience, Geriatrics and Gerontology, Thematic analysis, 0305 other medical science, business, End-of-life care, Needs Assessment, Stress, Psychological, Qualitative research |
| الوصف: | Background: Older people aged 80 and over are increasingly providing end of life care to spouses at home, and often do so for long periods of time, whilst also trying to manage their own illnesses and disabilities. Little of the research on older spousal carers has focussed on the oldest carers, hence the needs of this particular population are not fully known. Objective: To explore the experiences of the ‘oldest carers’ in caring for a dying spouse at home. Methods: Secondary analysis was undertaken on a subset of data from a larger qualitative interview study; this dataset comprised 17 interviews from participants aged 80 or over. Framework analysis methods were used, with items derived from the thematic analysis of the main study. Results: The oldest carers in this subset demonstrated high levels of resilience, and the ability to adapt to their caring role. Caring until death was accepted as an integral part of the commitment made to their partner as part of the ‘wedding contract’. Carers felt they benefitted from the support provided by family, friends and care services; however their own care needs were not always recognised by health and social care services. Conclusions: These findings underscore the complexity of the oldest carers’ experiences and challenges in times of illness and end of life. Healthcare professionals should be alerted to the myriad ways caregiving is enacted in serious illness and seek opportunities for developing supportive interventions specifically for older carers. |
| وصف الملف: | application/pdf |
| تدمد: | 1468-2834 0002-0729 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0fbed88614f6321958d05162f6253131 https://doi.org/10.1093/ageing/afw047 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....0fbed88614f6321958d05162f6253131 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 14682834 00020729 |
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