Family carers’ experiences of coping with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries
| العنوان: | Family carers’ experiences of coping with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries |
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| المؤلفون: | Susan Blake, Sarah Brearley, Sheila Payne, Xu Wang, David Seamark, Christine Milligan, Carol Thomas, Mary Turner |
| المصدر: | Palliative Medicine. 32:950-959 |
| بيانات النشر: | SAGE Publications, 2018. |
| سنة النشر: | 2018 |
| مصطلحات موضوعية: | Adult, Male, Coping (psychology), medicine.medical_specialty, Palliative care, Terminally ill, Narrative inquiry, Interviews as Topic, 03 medical and health sciences, 0302 clinical medicine, 030502 gerontology, Adaptation, Psychological, Humans, Medicine, 030212 general & internal medicine, Qualitative Research, Aged, Aged, 80 and over, Narration, business.industry, General Medicine, Middle Aged, Home setting, Death, Cross-Sectional Studies, Anesthesiology and Pain Medicine, Caregivers, England, Family medicine, Female, Observational study, 0305 other medical science, business, End-of-life care |
| الوصف: | Background: Internationally, evidence on the support needs of family carers who look after a terminally ill adult in home settings is incomplete. Aim: To illustrate the relevance of ‘relevant background worries’ in family carers’ accounts of caring at home for a dying adult. Design: A qualitative cross-sectional observational study was conducted in England, United Kingdom, in 2011–2013 on the experiences of adult family carers ( n = 59) of older dying adults (aged 50+ years) with malignant and/or non-malignant conditions. Interviews occurred post-bereavement. This article reports on a subset of participants’ interview transcripts ( n = 30) where narrative analysis was undertaken. Setting/participants: Carers were interviewed in their home setting, having been purposively recruited via general practitioner practices in two study sites in England. The subset of participants ( n = 30) was purposively selected from the parent sample with reference to carers’ age, relationship to the patient, family circumstances and study sites. Results: Evidence is provided on the importance of what we conceptualise as carers’ ‘relevant background worries’; these varied in nature, significance and impact. Four case studies are presented where these worries constituted psychosocial factors that impacted on caregivers’ actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals. Conclusion: It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers’ relevant background worries. |
| وصف الملف: | application/pdf |
| تدمد: | 1477-030X 0269-2163 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::29abd7b7c14cddd03dd4a546763d556f https://doi.org/10.1177/0269216318757134 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....29abd7b7c14cddd03dd4a546763d556f |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 1477030X 02692163 |
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