Mal de Meleda: A great imitator

التفاصيل البيبلوغرافية
العنوان: Mal de Meleda: A great imitator
المؤلفون: Stella Fatović-Ferenčić, Ana Bakija-Konsuo, Maja Zitinski
المصدر: Clinics in Dermatology. 37:175-181
بيانات النشر: Elsevier BV, 2019.
سنة النشر: 2019
مصطلحات موضوعية: Croatia, Mal de Meleda, Mljet disease, lepra, stigma, Population, Vulnerability, Subject (philosophy), Dermatology, Interpersonal communication, History, 18th Century, Vulnerable Populations, Social Networking, Developmental psychology, 030207 dermatology & venereal diseases, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), Keratoderma, Palmoplantar, Leprosy, medicine, Humans, Social isolation, education, Ethics, 030203 arthritis & rheumatology, Stereotyping, education.field_of_study, Social perception, Socialization, History, 19th Century, Awareness, History, 20th Century, History, Medieval, Psychological Distance, Social Isolation, Social Perception, Quality of Life, medicine.symptom, Psychology
الوصف: Mal de Meleda is an hereditary palmoplantar keratoderma named after Mljet Island in Croatia. The lives of those affected by this disease represent a complex situation that encompasses members of a vulnerable group. They require enlightenment and should be approached with awareness, taking into account their overall psychophysical status and the environment of each patient. Those afflicted with the Mal de Meleda have to deal with not only a difficult life due to their affliction, but they must also cope with the hardships of socialization while trying to realize a normal life within their island community. This is compounded by the frequent interviews and examinations of researchers interested in the various aspects of their illness. The subject of this paper is not about the nature of this disease, rather about the traces it has left on the (sub)consciousness of the population. It is also concerned with exploring ways of how to access patients and understanding the depth of their vulnerability. We shall present some thoughts tied to the interpersonal experiences of researchers and patients afflicted with Mal de Meleda.
تدمد: 0738-081X
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::337549c2b773b221c3025a6a5db67741
https://doi.org/10.1016/j.clindermatol.2019.01.003
حقوق: CLOSED
رقم الأكسشن: edsair.doi.dedup.....337549c2b773b221c3025a6a5db67741
قاعدة البيانات: OpenAIRE