Comparison of Patients' and Doctors' Reports on Health-related Quality of Life in Celiac Disease
| العنوان: | Comparison of Patients' and Doctors' Reports on Health-related Quality of Life in Celiac Disease |
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| المؤلفون: | Nora Farih, Margreet Wessels, Edmond H. H. M. Rings, Joachim J. Schweizer, Maaike W. Schaart, Sabine L. Vriezinga, Hein Putter, M. Luisa Mearin, Andrea E. van der Meulen-de Jong |
| المساهمون: | Pediatrics |
| المصدر: | Journal of Pediatric Gastroenterology and Nutrition, 64(5), 737-741 Journal of Pediatric Gastroenterology and Nutrition, 64(5), 737-741. Lippincott Williams & Wilkins |
| سنة النشر: | 2017 |
| مصطلحات موضوعية: | Adult, Male, young adults, Pediatrics, medicine.medical_specialty, Multivariate analysis, Adolescent, CDDUX, Cross-sectional study, CD-specific HRQOL, Disease, Young Adult, 03 medical and health sciences, 0302 clinical medicine, Quality of life, children, Physicians, Health Status Indicators, Humans, Medicine, 030212 general & internal medicine, Young adult, Child, Self report, Health related quality of life, Physician-Patient Relations, business.industry, Gastroenterology, humanities, Celiac Disease, Cross-Sectional Studies, Child, Preschool, Multivariate Analysis, Pediatrics, Perinatology and Child Health, Quality of Life, Female, 030211 gastroenterology & hepatology, Self Report, business |
| الوصف: | To investigate whether implementation of a celiac disease (CD)-specific health-related quality of life (HRQOL) questionnaire would add value to CD follow-up visits; we compared patients' self-reported CD-specific HRQOL with the physician's report provided during a regular CD follow-up visit in children and young adults.A cross-sectional study in the control group of a study on self-management in CD (CoelKids). Eligible patients had CD for ≥1 year and were 25 years or younger. They completed a CD-specific HRQOL questionnaire (CDDUX) after their regular follow-up visit. Their physicians were unaware of the present study's objectives or self-reported HRQOL.agreement between physician-reported and self-reported HRQOL.patient variables predicting a discrepancy between reports, or a lower HRQOL.Physician-reported HRQOL was available in 70 of 78 enrolled patients. The self-reported and physician-reported HRQOL were concordant in 30 of 70 (K = 0.093), 6 of them had a poor self-reported HRQOL. Reports were discrepant in 40 of 70; all 40 self-reported a poor HRQOL. Discrepancies occurred more frequently in patients with a disease duration9 years (32/40 with discrepant reports were diagnosed9 years ago vs 17/30 with no discrepancy, P0.001) and in females (35/40 with discrepant reports were girls versus 16 of 30 with no discrepancy, P = 0.001). Both factors were predictors of a poorer HRQOL.During regular CD follow-up visits, physicians did not report a poor HRQOL in 40 of 46 children and young adults with a poor self-reported HRQOL. This is consistent with previous studies examining other chronic diseases and supports the implementation of self-reported CD-specific HRQOL measurements in CD follow-up visits. |
| وصف الملف: | application/pdf |
| اللغة: | English |
| تدمد: | 0277-2116 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fc6396f65ccf510fdc8f28b09315880b https://hdl.handle.net/1887/117310 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....fc6396f65ccf510fdc8f28b09315880b |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 02772116 |
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