Using experience-based codesign to coproduce aphasia rehabilitation services: study protocol
| العنوان: | Using experience-based codesign to coproduce aphasia rehabilitation services: study protocol |
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| المؤلفون: | Bruce Aisthorpe, Victoria J Palmer, Lisa Anemaat, Kent Druery, Geoffrey Binge, Julia Druery, Kathryn Mainstone, Penelope Mainstone, Sarah J. Wallace, David A. Copland |
| المصدر: | BMJ Open BMJ Open, Vol 11, Iss 11 (2021) |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Best practice, Allied Health Personnel, Rehabilitation Medicine, quality in health care, Aphasia, Knowledge translation, Nominal group technique, medicine, Humans, Translational Science, Biomedical, Service (business), Medical education, business.industry, General Medicine, Focus group, Stroke, Chronic Disease, stroke medicine, Medicine, medicine.symptom, Thematic analysis, business, qualitative research, Qualitative research |
| الوصف: | IntroductionAphasia is an impairment of language that occurs in 30%–40% of stroke survivors. This often chronic condition results in poor outcomes for the individual with aphasia and their family. Long-term aphasia management is limited, with few people receiving sufficient services by 6–12 months postonset. We present a protocol for the development of coproduced aphasia service elements. We will use experience-based codesign (EBCD), an approach that enables service users and providers to collaboratively develop services and care pathways. Drawing on the experiences of people with aphasia, their families and clinicians we will establish priorities for the development of new services and later work together to codesign them.Methods and analysisThis research will be coproduced with people with aphasia (n=30–60), their families (n=30–60) and speech pathologists (n=30–60) in Queensland, Australia, using EBCD. A consumer advisory committee will provide oversight and advice throughout the research. In phase 1, we will use semistructured interviews and the nominal group technique to explore experiences and unmet needs in aphasia rehabilitation. Data will be analysed using thematic analysis and the resulting themes will be prioritised in multistakeholder focus groups. Outcomes of phase 1 will inform future research (phase 2) to codesign services. Financial costs and participant experiences of EBCD will be measured.Ethics and disseminationHuman Research Ethics Committee approval for phase 1 has been obtained (HREC/2020/QRBW/61368). Results will be reported in peer-reviewed journal articles, presented at relevant conferences and, following EBCD suggested best practice, fed back to participants and community members at a celebratory event at completion of the project. The inclusion of service users in all stages of research will facilitate an integrated approach to knowledge translation. A summary of research findings will be made available to participating sites. |
| تدمد: | 2044-6055 |
| URL الوصول: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fd57f449b65b49b82d39709af1910828 https://pubmed.ncbi.nlm.nih.gov/34794985 |
| حقوق: | OPEN |
| رقم الأكسشن: | edsair.doi.dedup.....fd57f449b65b49b82d39709af1910828 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 20446055 |
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