دورية أكاديمية
'LEARN'ing What Is Important to Children and Young People with Intellectual Disabilities When They Are in Hospital
| العنوان: | 'LEARN'ing What Is Important to Children and Young People with Intellectual Disabilities When They Are in Hospital |
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| اللغة: | English |
| المؤلفون: | Oulton, K. (ORCID |
| المصدر: | Journal of Applied Research in Intellectual Disabilities. Sep 2018 31(5):792-803. |
| الإتاحة: | Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA |
| Peer Reviewed: | Y |
| Page Count: | 12 |
| تاريخ النشر: | 2018 |
| نوع الوثيقة: | Journal Articles Reports - Research |
| Descriptors: | Intellectual Disability, Hospitals, Health Services, Children, Ethnography, Neurosciences, Patients, Foreign Countries, Pediatrics, Individual Needs, Family (Sociological Unit), Delivery Systems |
| مصطلحات جغرافية: | United Kingdom |
| DOI: | 10.1111/jar.12433 |
| تدمد: | 1360-2322 |
| مستخلص: | Background: The need to review health service provision for children and young people (CYP) with disabilities and their families in the United Kingdom has been expressed in multiple reports--the most consistent message being that services need to be tailored to meet their individual needs. Our aim was to understand the hospital-related needs and experiences of CYP with intellectual disabilities. Method: An ethnographic study of a neurosciences ward and outpatient department was conducted within a paediatric tertiary hospital setting. Results: Five themes, developed using the acronym LEARN, explained what is important to CYP with intellectual disabilities in hospital: (i) little things make the biggest difference, (ii) eliminate unnecessary waiting, (iii) avoid boredom, (iv) routine and home comforts are key and (v) never assume. Conclusions: It is imperative that the present authors continue to challenge the idea that it is acceptable to exclude CYP with intellectual disabilities from research because of their inability to participate. |
| Abstractor: | As Provided |
| Entry Date: | 2018 |
| رقم الأكسشن: | EJ1187016 |
| قاعدة البيانات: | ERIC |
Full Text Finder | تدمد: | 1360-2322 |
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| DOI: | 10.1111/jar.12433 |