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Real-World Experiences in Autistic Adult Diagnostic Services and Post-Diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study

التفاصيل البيبلوغرافية
العنوان: Real-World Experiences in Autistic Adult Diagnostic Services and Post-Diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study
اللغة: English
المؤلفون: Scattoni, Maria Luisa (ORCID 0000-0002-6659-0280), Micai, Martina, Ciaramella, Antonio, Salvitti, Tommaso, Fulceri, Francesca, Fatta, Laura Maria, Poustka, Luise, Diehm, Robert, Iskrov, Georgi, Stefanov, Rumen, Guillon, Quentin, Rogé, Bernadette, Staines, Anthony, Sweeney, Mary Rose, Boilson, Andrew Martin, Leósdóttir, Thora, Saemundsen, Evald, Moilanen, Irma, Ebeling, Hanna, Yliherva, Anneli, Gissler, Mika, Parviainen, Tarja, Tani, Pekka, Kawa, Rafal, Vicente, Astrid, Rasga, Célia, Budisteanu, Magdalena, Dale, Ian, Povey, Carol, Flores, Noelia, Jenaro, Cristina, Monroy, Maria Luisa, Primo, Patricia García, Charman, Tony, Cramer, Susanne, Warberg, Christine Kloster, Canal-Bedia, Ricardo, Posada, Manuel, Schendel, Diana
المصدر: Journal of Autism and Developmental Disorders. Nov 2021 51(11):4129-4146.
الإتاحة: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Peer Reviewed: Y
Page Count: 18
تاريخ النشر: 2021
نوع الوثيقة: Journal Articles
Reports - Research
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Adults, Clinical Diagnosis, Services, Guidelines
مصطلحات جغرافية: European Union
DOI: 10.1007/s10803-021-04873-5
تدمد: 0162-3257
مستخلص: Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.
Abstractor: As Provided
Entry Date: 2021
رقم الأكسشن: EJ1312857
قاعدة البيانات: ERIC
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