دورية أكاديمية
أعرض في EDS

Exploring Communication Ability in Individuals with Angelman Syndrome: Findings from Qualitative Interviews with Caregivers

التفاصيل البيبلوغرافية
العنوان: Exploring Communication Ability in Individuals with Angelman Syndrome: Findings from Qualitative Interviews with Caregivers
اللغة: English
المؤلفون: Zigler, Christina K., Lucas, Nicole, McFatrich, Molly, Gordon, Kelly L., Jones, Harrison N., Berent, Allyson, Panagoulias, Jennifer, Evans, Paula, Reeve, Bryce B.
المصدر: American Journal on Intellectual and Developmental Disabilities. May 2023 128(3):185-203.
الإتاحة: American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Peer Reviewed: Y
Page Count: 19
تاريخ النشر: 2023
نوع الوثيقة: Journal Articles
Reports - Research
Descriptors: Genetic Disorders, Communication Skills, Caregivers, Children, Expressive Language, Receptive Language, Pragmatics, Augmentative and Alternative Communication, Qualitative Research, Interviews
DOI: 10.1352/1944-7558-128.3.185
تدمد: 1944-7515
1944-7558
مستخلص: Communication deficits have a substantial impact on quality of life for individuals with Angelman syndrome (AS) and their families, but limited qualitative work exists to support the necessary content of measures aiming to assess communication for these individuals. Following best practices for concept elicitation studies, we conducted individual qualitative interviews with caregivers and clinicians to elicit meaningful aspects of communication for individuals with AS. Caregivers were able to discuss their child's specific communication behaviors within a large number of expressive, receptive, and pragmatic functions via numerous symbolic and non-symbolic modalities. These results aligned well with published literature on communication in AS and will be used to inform the design of a novel caregiver-reported measure. Future studies on communication in individuals with AS should focus on gathering quantitative data from large samples of diverse caregivers, which would allow for estimations of the frequency of specific behaviors across the population.
Abstractor: As Provided
Entry Date: 2023
رقم الأكسشن: EJ1386849
قاعدة البيانات: ERIC
الوصف
تدمد:1944-7515
1944-7558
DOI:10.1352/1944-7558-128.3.185