دورية أكاديمية

A comparative review of generic quality-of-life instruments.

التفاصيل البيبلوغرافية
العنوان: A comparative review of generic quality-of-life instruments.
المؤلفون: Coons SJ; Center for Health Outcomes and PharmacoEconomic Research, College of Pharmacy, University of Arizona, Tucson, USA. coons@pharmacy.arizona.edu, Rao S, Keininger DL, Hays RD
المصدر: PharmacoEconomics [Pharmacoeconomics] 2000 Jan; Vol. 17 (1), pp. 13-35.
نوع المنشور: Comparative Study; Journal Article; Research Support, Non-U.S. Gov't; Review
اللغة: English
بيانات الدورية: Publisher: Adis, Springer International Country of Publication: New Zealand NLM ID: 9212404 Publication Model: Print Cited Medium: Print ISSN: 1170-7690 (Print) Linking ISSN: 11707690 NLM ISO Abbreviation: Pharmacoeconomics
أسماء مطبوعة: Publication: Auckland : Adis, Springer International
Original Publication: Auckland ; Philadelphia : Adis International, c1992-
مواضيع طبية MeSH: Activities of Daily Living* , Health Status* , Quality of Life*, Health Surveys ; Humans ; Reproducibility of Results ; Sickness Impact Profile
مستخلص: The assessment of health-related quality of life (HR-QOL) is an essential element of healthcare evaluation. Hundreds of generic and specific HR-QOL instruments have been developed. Generic HR-QOL instruments are designed to be applicable across a wide range of populations and interventions. Specific HR-QOL measures are designed to be relevant to particular interventions or in certain subpopulations (e.g. individuals with rheumatoid arthritis). This review examines 7 generic HR-QOL instruments: (i) the Medical Outcomes Study 36-Item Short Form (SF-36) health survey; (ii) the Nottingham Health Profile (NHP); (iii) the Sickness Impact Profile (SIP); (iv) the Dartmouth Primary care Cooperative Information Project (COOP) Charts; (v) the Quality of Well-Being (QWB) Scale; (vi) the Health Utilities Index (HUI); and (vii) the EuroQol Instrument (EQ-5D). These instruments were selected because they are commonly used and/or cited in the English language literature. The 6 characteristics of an instrument addressed by this review are: (i) conceptual and measurement model; (ii) reliability; (iii) validity; (iv) respondent and administrative burden; (v) alternative forms; and (vi) cultural and language adaptations. Of the instruments reviewed, the SF-36 health survey is the most commonly used HR-QOL measure. It was developed as a short-form measure of functioning and well-being in the Medical Outcomes Study. The Dartmouth COOP Charts were designed to be used in everyday clinical practice to provide immediate feedback to clinicians about the health status of their patients. The NHP was developed to reflect lay rather than professional perceptions of health. The SIP was constructed as a measure of sickness in relation to impact on behaviour. The QWB, HUI and EQ-5D are preference-based measures designed to summarise HR-QOL in a single number ranging from 0 to 1. We found that there are no uniformly 'worst' or 'best' performing instruments. The decision to use one over another, to use a combination of 2 or more, to use a profile and/or a preference-based measure or to use a generic measure along with a targeted measure will be driven by the purpose of the measurement. In addition, the choice will depend on a variety of factors including the characteristics of the population (e.g. age, health status, language/culture) and the environment in which the measurement is undertaken (e.g. clinical trial, routine physician visit). We provide our summary of the level of evidence in the literature regarding each instrument's characteristics based on the review criteria. The potential user of these instruments should base their instrument selection decision on the characteristics that are most relevant to their particular HR-QOL measurement needs.
Number of References: 146
References: Ann Intern Med. 1993 Apr 15;118(8):622-9. (PMID: 8452328)
Med Care. 1992 May;30(5 Suppl):MS57-73. (PMID: 1533890)
Med Care. 1986 Nov;24(11):973-80. (PMID: 3773579)
Am J Med. 1986 Oct;81(4):565-78. (PMID: 3532786)
Soc Sci Med. 1990;31(11):1201-6. (PMID: 2291116)
Med Care. 1992 May;30(5 Suppl):MS240-52. (PMID: 1583936)
Pharmacoeconomics. 1995 Jun;7(6):503-20. (PMID: 10155336)
Med Care. 1988 Jul;26(7):724-35. (PMID: 3393032)
Qual Life Res. 1998 Jan;7(1):1-10. (PMID: 9481146)
Soc Sci Med. 1994 Dec;39(11):1537-44. (PMID: 7817218)
Spine (Phila Pa 1976). 1983 Mar;8(2):141-4. (PMID: 6222486)
J Clin Epidemiol. 1998 Nov;51(11):903-12. (PMID: 9817107)
J Rheumatol. 1993 Sep;20(9):1500-7. (PMID: 8164205)
Int J Oncol. 1994 Mar;4(3):639-48. (PMID: 21566971)
Soc Sci Med A. 1981 May;15(3 Pt 1):221-9. (PMID: 6973203)
J Fam Pract. 1994 May;38(5):489-94. (PMID: 8176348)
Br J Cancer. 1993 May;67(5):1047-52. (PMID: 8494697)
J Gerontol. 1993 Jan;48(1):M10-4. (PMID: 8418139)
Qual Life Res. 1996 Apr;5(2):223-34. (PMID: 8998491)
Med Care. 1989 Mar;27(3 Suppl):S217-32. (PMID: 2646490)
Psychiatr Serv. 1997 Feb;48(2):224-30. (PMID: 9021855)
Eff Clin Pract. 1999 Jan-Feb;2(1):1-10. (PMID: 10346547)
Med Care. 1997 May;35(5):522-37. (PMID: 9140339)
J Chronic Dis. 1984;37(2):85-95. (PMID: 6420431)
Int J Oncol. 1997 Aug;11(2):333-9. (PMID: 21528219)
J Psychosom Res. 1984;28(2):105-14. (PMID: 6737323)
J Acquir Immune Defic Syndr. 1990;3(7):683-90. (PMID: 2191113)
J Consult Clin Psychol. 1994 Jun;62(3):441-9. (PMID: 8063971)
J R Coll Gen Pract. 1985 Apr;35(273):185-8. (PMID: 3989783)
Med Care. 1992 Jun;30(6):473-83. (PMID: 1593914)
Soc Sci Med. 1988;27(12):1411-4. (PMID: 3070764)
Health Policy. 1991 Jun;18(1):37-48. (PMID: 10112300)
Fam Pract. 1987 Jun;4(2):117-22. (PMID: 3609549)
Med Care. 1994 Jun;32(6):551-67. (PMID: 8189774)
J Gerontol. 1994 Jan;49(1):M2-8. (PMID: 8282976)
Med Care. 1983 Feb;21(2):180-92. (PMID: 6827872)
Int J Health Serv. 1976;6(3):393-415. (PMID: 955750)
J Clin Oncol. 1992 Jun;10(6):923-8. (PMID: 1316952)
Health Policy. 1991 Jun;18(1):25-36. (PMID: 10112299)
Health Econ. 1993 Oct;2(3):217-27. (PMID: 8275167)
Med Care. 1992 May;30(5 Suppl):MS253-65. (PMID: 1583937)
Med Care. 1993 Mar;31(3):247-63. (PMID: 8450681)
Scand J Rheumatol. 1986;15(2):193-200. (PMID: 3489290)
Epilepsia. 1994 May-Jun;35(3):597-607. (PMID: 8026406)
Qual Life Res. 1997 May;6(4):343-52. (PMID: 9248316)
Health Policy. 1990 Dec;16(3):199-208. (PMID: 10109801)
Med Care. 1996 Dec;34(12):1165-70. (PMID: 8962582)
Soc Sci Med. 1992 Oct;35(8):1003-14. (PMID: 1411695)
Med Care. 1994 Jan;32(1):40-66. (PMID: 8277801)
J Am Geriatr Soc. 1995 Sep;43(9):1030-4. (PMID: 7657920)
Am J Public Health. 1985 Dec;75(12):1402-7. (PMID: 4061712)
J Natl Cancer Inst. 1995 Sep 20;87(18):1372-82. (PMID: 7658498)
Br J Rheumatol. 1997 May;36(5):551-9. (PMID: 9189057)
Neurology. 1997 Mar;48(3 Suppl 3):S10-5. (PMID: 9071264)
Qual Life Res. 1996 Apr;5(2):195-204. (PMID: 8998488)
Qual Life Res. 1998 Feb;7(2):155-66. (PMID: 9523497)
J Pediatr. 1994 Sep;125(3):411-7. (PMID: 8071751)
Int J Epidemiol. 1981 Mar;10(1):93-7. (PMID: 7239768)
Psychosom Med. 1995 Mar-Apr;57(2):138-47. (PMID: 7792372)
Qual Life Res. 1993 Jun;2(3):169-80. (PMID: 8401453)
Qual Life Res. 1992 Aug;1(4):247-9. (PMID: 1299455)
J Pediatr. 1994 Sep;125(3):418-25. (PMID: 8071752)
Fundam Clin Pharmacol. 1992;6(7):319-26. (PMID: 1490652)
Med Decis Making. 1996 Jul-Sep;16(3):254-61. (PMID: 8818124)
Am J Psychiatry. 1996 Feb;153(2):213-8. (PMID: 8561201)
Clin Ther. 1996 Sep-Oct;18(5):979-92. (PMID: 8930436)
J Chronic Dis. 1987;40 Suppl 1:55S-69S. (PMID: 3597698)
Qual Life Res. 1995 Jun;4(3):249-57. (PMID: 7613535)
Oper Res. 1982 Nov-Dec;30(6):1043-69. (PMID: 10259643)
Qual Life Res. 1992 Feb;1(1):73-5. (PMID: 1301117)
Med Care. 1976 Jan;14(1):57-67. (PMID: 950811)
Med Care. 1992 Mar;30(3):244-51. (PMID: 1538612)
J Aging Health. 1998 Feb;10(1):44-61. (PMID: 10182417)
Qual Life Res. 1995 Apr;4(2):115-34. (PMID: 7780379)
Med Care. 1989 Nov;27(11):1076-83. (PMID: 2586188)
Biometrics. 1977 Mar;33(1):159-74. (PMID: 843571)
Qual Life Res. 1992 Oct;1(5):349-51. (PMID: 1299467)
Br J Rheumatol. 1994 Jul;33(7):655-62. (PMID: 8019795)
Health Serv Res. 1997 Aug;32(3):367-84. (PMID: 9240286)
Health Policy. 1991 Sep;19(1):33-44. (PMID: 10117390)
Health Serv Res. 1976 Winter;11(4):478-507. (PMID: 1030700)
BMJ. 1992 Jul 18;305(6846):160-4. (PMID: 1285753)
Int J Technol Assess Health Care. 1989;5(4):559-75. (PMID: 2634630)
Med Care. 1998 Sep;36(9):1349-60. (PMID: 9749658)
J Chronic Dis. 1987;40 Suppl 1:7S-26S. (PMID: 3597699)
Chest. 1989 Feb;95(2):344-7. (PMID: 2914486)
Psychiatry Res. 1996 Jul 31;63(2-3):169-81. (PMID: 8878313)
Stroke. 1998 Jan;29(1):63-8. (PMID: 9445330)
Pharmacoeconomics. 1996 Oct;10(4):336-55. (PMID: 10163577)
Med Care. 1981 Aug;19(8):787-805. (PMID: 7278416)
Med Care. 1976 Feb;14(2):146-55. (PMID: 1256107)
Health Serv Res. 1976 Winter;11(4):516-28. (PMID: 1025055)
Am J Pediatr Hematol Oncol. 1993 Aug;15(3):284-90. (PMID: 8328641)
Med Care. 1992 May;30(5 Suppl):MS136-49. (PMID: 1583928)
Med Care. 1995 Apr;33(4 Suppl):AS264-79. (PMID: 7723455)
Qual Life Res. 1994 Oct;3(5):329-38. (PMID: 7841967)
Med Care. 1990 Dec;28(12):1111-26. (PMID: 2250496)
تواريخ الأحداث: Date Created: 20000405 Date Completed: 20000322 Latest Revision: 20220330
رمز التحديث: 20221213
DOI: 10.2165/00019053-200017010-00002
PMID: 10747763
قاعدة البيانات: MEDLINE
الوصف
تدمد:1170-7690
DOI:10.2165/00019053-200017010-00002