التفاصيل البيبلوغرافية
| العنوان: |
Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure. |
| المؤلفون: |
Solomonides A; Center for Biomedical Research Informatics, NorthShore University HealthSystem., Goel S; Feinberg School of Medicine, Northwestern University., Hynes D; University of Illinois, Chicago., Silverstein JC; Center for Biomedical Research Informatics, NorthShore University HealthSystem., Hota B; Rush University Medical Center-Department of Medicine., Trick W; Cook County Health and Hospital Systems., Angulo F; Cook County Health and Hospital Systems., Price R; Loyola University Health System., Sadhu E; University of Illinois, Chicago., Zelisko S; Loyola University Health System., Fischer J; University of Illinois, Chicago., Furner B; University of Chicago-Center for Research Informatics., Hamilton A; Alliance of Chicago Community Health Services., Phua J; Medical Research Analytics and Informatics Alliance., Brown W; VA Jesse Brown Hospital., Hohmann SF; Universities Healthsystem Consortium., Meltzer D; University of Chicago-Medicine., Tarlov E; University of Illinois, Chicago., Weaver FM; Loyola University Health System., Zhang H; Cook County Health and Hospital Systems., Concannon T; RAND Corporation., Kho A; Feinberg School of Medicine, Northwestern University. |
| المصدر: |
Studies in health technology and informatics [Stud Health Technol Inform] 2015; Vol. 216, pp. 584-8. |
| نوع المنشور: |
Journal Article |
| اللغة: |
English |
| بيانات الدورية: |
Publisher: IOS Press Country of Publication: Netherlands NLM ID: 9214582 Publication Model: Print Cited Medium: Internet ISSN: 1879-8365 (Electronic) Linking ISSN: 09269630 NLM ISO Abbreviation: Stud Health Technol Inform |
| أسماء مطبوعة: |
Original Publication: Amsterdam ; Washington, DC : IOS Press, 1991- |
| مواضيع طبية MeSH: |
Confidentiality*, Electronic Health Records/*organization & administration , Health Services Research/*organization & administration , Outcome Assessment, Health Care/*organization & administration , Patient-Centered Care/*organization & administration, Academic Medical Centers ; Chicago ; Computer Security ; Information Storage and Retrieval/methods ; Interinstitutional Relations ; Medical Record Linkage/methods |
| مستخلص: |
CAPriCORN, the Chicago Area Patient Centered Outcomes Research Network, is one of the eleven PCORI-funded Clinical Data Research Networks. A collaboration of six academic medical centers, a Chicago public hospital, two VA hospitals and a network of federally qualified health centers, CAPriCORN addresses the needs of a diverse community and overlapping populations. To capture complete medical records without compromising patient privacy and confidentiality, the network created policies and mechanisms for patient consultation, central IRB approval, de-identification, de-duplication, and integration of patient data by study cohort, randomization and sampling, re-identification for consent by providers and patients, and communication with patients to elicit patient-reported outcomes through validated instruments. The paper describes these policies and mechanisms and discusses two case studies to prove the feasibility and effectiveness of the network. |
| تواريخ الأحداث: |
Date Created: 20150812 Date Completed: 20161213 Latest Revision: 20191210 |
| رمز التحديث: |
20240628 |
| PMID: |
26262118 |
| قاعدة البيانات: |
MEDLINE |
