دورية أكاديمية
Realizing Our Potential in Biobanking: Disease Advocacy Organizations Enliven Translational Research.
| العنوان: | Realizing Our Potential in Biobanking: Disease Advocacy Organizations Enliven Translational Research. |
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| المؤلفون: | Edwards KA; 1 Department of Bioethics and Humanities, University of Washington School of Medicine , Seattle, Washington., Terry SF; 2 Genetic Alliance, Inc. , Washington, District of Columbia.; 3 PXE International, Washington, District of Columbia., Gold D; 4 University of Washington , Seattle, Washington., Horn EJ; 5 LHC BioSolutions, Portland, Oregon., Schwartz M; 6 Pachyonychia Congenita Project, Salt Lake City, Utah., Stuart M; 7 Strategic Change Consultant, Davis, California., Vernon SD; 8 CFIDS Association of America, Charlotte, North Carolina. |
| المصدر: | Biopreservation and biobanking [Biopreserv Biobank] 2016 Aug; Vol. 14 (4), pp. 314-8. Date of Electronic Publication: 2016 Apr 08. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Mary Ann Liebert Country of Publication: United States NLM ID: 101507284 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1947-5543 (Electronic) Linking ISSN: 19475543 NLM ISO Abbreviation: Biopreserv Biobank Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: New Rochelle, NY : Mary Ann Liebert |
| مواضيع طبية MeSH: | Biological Specimen Banks/*statistics & numerical data , Translational Research, Biomedical/*organization & administration, Biological Specimen Banks/trends ; Humans ; Specimen Handling |
| مستخلص: | Biobanks are increasingly powerful tools used in translational research, and disease advocacy organizations (DAOs) are making their presence known as research drivers and partners. We examined DAO approaches to biobanking to inform how the enterprise of biobanking can grow and become even more impactful in human health. In this commentary, we outline overarching approaches from successful DAO biobanks. These lessons learned suggest principles that can create a more participant-centric approach and illustrate the key roles DAOs can play as partners in research initiatives. DAO approaches to biobanking for translational research include the following: be outcome driven; forge alliances that are unexpected-build bridges to enhance translation; come ready for success; be nimble, flexible, and adaptable; and remember that people matter. Each of these principles led to particular practices that have increased the translational impact of biobank collections. The research practices discussed can inform partnerships in all sectors going forward. |
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| تواريخ الأحداث: | Date Created: 20160409 Date Completed: 20170113 Latest Revision: 20211203 |
| رمز التحديث: | 20231215 |
| مُعرف محوري في PubMed: | PMC4991568 |
| DOI: | 10.1089/bio.2015.0053 |
| PMID: | 27058463 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 1947-5543 |
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| DOI: | 10.1089/bio.2015.0053 |