دورية أكاديمية
Invalidation in Patients with Rheumatic Diseases: Clinical and Psychological Framework.
| العنوان: | Invalidation in Patients with Rheumatic Diseases: Clinical and Psychological Framework. |
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| المؤلفون: | Santiago MG; From the Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal; Psychology Department, Utrecht University, Utrecht, the Netherlands.; M.G. Santiago, MD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; A. Marques, RN, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; M. Kool, PhD, Psychology Department, Utrecht University; R. Geenen, PhD, Psychology Department, Utrecht University; J.A. da Silva, MD, PhD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra., Marques A; From the Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal; Psychology Department, Utrecht University, Utrecht, the Netherlands.; M.G. Santiago, MD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; A. Marques, RN, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; M. Kool, PhD, Psychology Department, Utrecht University; R. Geenen, PhD, Psychology Department, Utrecht University; J.A. da Silva, MD, PhD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra., Kool M; From the Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal; Psychology Department, Utrecht University, Utrecht, the Netherlands.; M.G. Santiago, MD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; A. Marques, RN, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; M. Kool, PhD, Psychology Department, Utrecht University; R. Geenen, PhD, Psychology Department, Utrecht University; J.A. da Silva, MD, PhD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra., Geenen R; From the Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal; Psychology Department, Utrecht University, Utrecht, the Netherlands.; M.G. Santiago, MD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; A. Marques, RN, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; M. Kool, PhD, Psychology Department, Utrecht University; R. Geenen, PhD, Psychology Department, Utrecht University; J.A. da Silva, MD, PhD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra., da Silva JAP; From the Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal; Psychology Department, Utrecht University, Utrecht, the Netherlands. jdasilva@ci.uc.pt.; M.G. Santiago, MD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; A. Marques, RN, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra; M. Kool, PhD, Psychology Department, Utrecht University; R. Geenen, PhD, Psychology Department, Utrecht University; J.A. da Silva, MD, PhD, Rheumatology Department, Centro Hospitalar e Universitário de Coimbra. jdasilva@ci.uc.pt. |
| المصدر: | The Journal of rheumatology [J Rheumatol] 2017 Apr; Vol. 44 (4), pp. 512-518. Date of Electronic Publication: 2017 Feb 15. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Journal Of Rheumatology Publishing Co Country of Publication: Canada NLM ID: 7501984 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 0315-162X (Print) Linking ISSN: 0315162X NLM ISO Abbreviation: J Rheumatol Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: Toronto : Journal Of Rheumatology Publishing Co Original Publication: Toronto. |
| مواضيع طبية MeSH: | Social Environment* , Social Support*, Arthritis, Rheumatoid/*psychology , Fibromyalgia/*psychology , Lupus Erythematosus, Systemic/*psychology , Spondylarthritis/*psychology, Adult ; Cross-Sectional Studies ; Female ; Humans ; Male ; Middle Aged ; Surveys and Questionnaires |
| مستخلص: | Objective: The term "invalidation" refers to the patients' perception that their medical condition is not recognized by the social environment. Invalidation can be a major issue in patients' lives, adding a significant burden to symptoms and limitations while increasing the risk of physical and psychological disability. In this study in patients with rheumatic diseases, we investigated the relationship between invalidation and sociodemographic, clinical, psychological, and personality characteristics. Methods: This international cross-sectional study included 562 adults with rheumatoid arthritis (n = 124), spondyloarthritis (n = 85), systemic lupus erythematosus (n = 112), or fibromyalgia (FM; n = 241). Assessed were the family and health professionals subscales of the Illness Invalidation Inventory (3*I), happiness (Subjective Happiness Scale), personality (Ten-Item Personality Inventory), pain, and loneliness (numerical rating scales). Univariate and multivariate analyses were used to test different models. Results: Invalidation occurred in all rheumatic diseases, but patients with FM reported the most invalidation. Including all correlated variables in the multivariate model, pain remained as a determinant of invalidation by health professionals, but not by family. Regarding psychological variables, loneliness remained as a determinant of invalidation by family, but not by health professionals. FM and low levels of happiness, agreeableness, and conscientiousness were associated with invalidation while taking account of other variables. Conclusion: Invalidation occurs in all rheumatic diseases and patients with FM experience the most invalidation. Psychological factors (happiness, agreeableness, and conscientiousness), loneliness, and pain intensity are associated with invalidation, irrespective of the rheumatic disease and may deserve dedicated interventions. |
| فهرسة مساهمة: | Keywords: FIBROMYALGIA; PAIN SYNDROMES; PATIENT PERSPECTIVE; PSYCHOLOGY; RHEUMATOID ARTHRITIS |
| تواريخ الأحداث: | Date Created: 20170217 Date Completed: 20180329 Latest Revision: 20180608 |
| رمز التحديث: | 20240628 |
| DOI: | 10.3899/jrheum.160559 |
| PMID: | 28202742 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 0315-162X |
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| DOI: | 10.3899/jrheum.160559 |