دورية أكاديمية
أعرض في EDS

Health-Related Quality of Life and Personal Life Goals of Adults With Sickle Cell Disease After Hematopoietic Stem Cell Transplantation.

التفاصيل البيبلوغرافية
العنوان: Health-Related Quality of Life and Personal Life Goals of Adults With Sickle Cell Disease After Hematopoietic Stem Cell Transplantation.
المؤلفون: Gallo AM; 1 University of Illinois at Chicago, IL, USA., Patil C; 1 University of Illinois at Chicago, IL, USA., Adeniyi T; 1 University of Illinois at Chicago, IL, USA., Hsu LL; 1 University of Illinois at Chicago, IL, USA., Rondelli D; 1 University of Illinois at Chicago, IL, USA., Saraf S; 1 University of Illinois at Chicago, IL, USA.
المصدر: Western journal of nursing research [West J Nurs Res] 2019 Apr; Vol. 41 (4), pp. 555-575. Date of Electronic Publication: 2018 Apr 06.
نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't
اللغة: English
بيانات الدورية: Publisher: Sage Publications Country of Publication: United States NLM ID: 7905435 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1552-8456 (Electronic) Linking ISSN: 01939459 NLM ISO Abbreviation: West J Nurs Res Subsets: MEDLINE
أسماء مطبوعة: Publication: Beverly Hills, CA : Sage Publications
Original Publication: [Anaheim, Calif.] Phillips-Allen.
مواضيع طبية MeSH: Goals*, Anemia, Sickle Cell/*therapy , Hematopoietic Stem Cell Transplantation/*standards , Quality of Life/*psychology, Adult ; Anemia, Sickle Cell/psychology ; Female ; Hematopoietic Stem Cell Transplantation/methods ; Hematopoietic Stem Cell Transplantation/psychology ; Humans ; Illinois ; Interviews as Topic/methods ; Male ; Middle Aged ; Psychometrics/instrumentation ; Psychometrics/methods ; Qualitative Research ; Surveys and Questionnaires
مستخلص: Allogeneic hematopoietic stem cell transplantation (HSCT) from a human leukocyte antigen (HLA)-matched sibling donor offers a unique therapy to reverse SCD. This mixed-methods study explores recipients' perception of HSCT success, personal life goals, and associated health-related quality of life (HRQOL) more than 1 year after HSCT. Recipients completed the Short Form-36, version 1 (SF-36v1) HRQOL survey followed by a 60- to 90-min face-to-face or telephone audio-recorded interview. Eleven of 15 eligible recipients participated in the study. Although the eight HRQOL subscale scores varied, the three recipients with a successful HSCT and the highest scores were pursuing their personal life goals. The four with avascular necrosis (AVN) had lower scores related to AVN limitations, yet they were pursuing their personal goals. The two reporting a failed HSCT had reverted back to having SCD, and their subscale scores were among the lowest. Our results show that HSCT success, ability to pursue goals, and HRQOL align in predictable ways.
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معلومات مُعتمدة: K23 HL125984 United States HL NHLBI NIH HHS
فهرسة مساهمة: Keywords: health-related quality of life; mixed methods; personal life goals; sickle cell disease; stem cell transplantation
تواريخ الأحداث: Date Created: 20180407 Date Completed: 20190715 Latest Revision: 20230928
رمز التحديث: 20240513
مُعرف محوري في PubMed: PMC6167199
DOI: 10.1177/0193945918768277
PMID: 29624126
قاعدة البيانات: MEDLINE
الوصف
تدمد:1552-8456
DOI:10.1177/0193945918768277