دورية أكاديمية
Measuring patients' health and suffering - the first stages of instrument development.
| العنوان: | Measuring patients' health and suffering - the first stages of instrument development. |
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| المؤلفون: | Andermo S; Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden., Sundberg T; Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden., Falkenberg T; Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden., Nordberg JH; Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden., Arman M; Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden. |
| المصدر: | Scandinavian journal of caring sciences [Scand J Caring Sci] 2018 Dec; Vol. 32 (4), pp. 1322-1331. Date of Electronic Publication: 2018 May 31. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Taylor & Francis Country of Publication: Sweden NLM ID: 8804206 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1471-6712 (Electronic) Linking ISSN: 02839318 NLM ISO Abbreviation: Scand J Caring Sci |
| أسماء مطبوعة: | Publication: Stockolm, Sweden : Taylor & Francis Original Publication: Stockholm, Sweden : Almquist & Wiksell Periodical Co., [1987?- |
| مواضيع طبية MeSH: | Health Status*, Integrative Medicine/*methods , Pain/*diagnosis , Pain Measurement/*methods , Psychometrics/*methods, Female ; Humans ; Male ; Middle Aged ; Surveys and Questionnaires ; Sweden |
| مستخلص: | Background: Patients have reported unanticipated and transformative health changes in existential character after integrative healthcare rehabilitation. Although there are several instruments measuring patients' experiences of health, identified instruments do not sufficiently capture patients' experiences of health and suffering after integrative health care. From a caring science perspective, health and suffering are understood as an integral part of human life. The objective of this study was to develop a first version of an instrument to measure patients' experiences of health and suffering, focusing on existential signs. Methods: This Swedish study used a methodological design with three iterative phases for instrument development. Firstly, an item pool was developed based on qualitative patient interviews (n = 64). Subsequently, the relevance of the items was explored in two rounds of cognitive patient interviews (n = 5 and n = 3). Finally, expert consultations (n = 5) were used to further refine the instrument. The construct of the instrument, its dimensions and domains emerged through the iterative development process. Results: The first phase development of the instrument resulted in two inter-related overarching dimensions: existential signs of 'Health' and 'Suffering', characterised by five domains: 'Life passion and energy', 'Personal freedom', 'Relationships', 'Presence in life' and 'Meaning'. Instrument items were formulated using contemporary language and word pairs to reflect a movement and relation between health and suffering. The cognitive interviews and expert opinions helped refine items and domains. Conclusions: The dimensions, domains and items of the instrument 'Existential signs of health and suffering' are well represented in caring science theories. Further clinical implementation and evaluation of the instrument, including psychometric properties, will allow for greater diversity in terms of context generalisability and patient characteristics. The instrument is anticipated to be of value for evaluations in research, development of healthcare practice and theory development in caring science. (© 2018 Nordic College of Caring Science.) |
| معلومات مُعتمدة: | 2014- 44 and 2015- 20 Ekhaga foundation; Signe and Ane Gyllenberg Foundation |
| فهرسة مساهمة: | Keywords: existential; health; instrument development; integrative health care; suffering |
| تواريخ الأحداث: | Date Created: 20180602 Date Completed: 20190409 Latest Revision: 20190409 |
| رمز التحديث: | 20221213 |
| DOI: | 10.1111/scs.12577 |
| PMID: | 29855064 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 1471-6712 |
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| DOI: | 10.1111/scs.12577 |