دورية أكاديمية
Gender-specific differences in parental health-related quality of life in childhood cancer.
| العنوان: | Gender-specific differences in parental health-related quality of life in childhood cancer. |
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| المؤلفون: | Rensen N; Department of Pediatric Oncology, Amsterdam UMC, Emma Children's Hospital, Cancer Center Amsterdam, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Steur LM; Department of Pediatric Oncology, Amsterdam UMC, Emma Children's Hospital, Cancer Center Amsterdam, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands., Schepers SA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Psychosocial Department, Amsterdam UMC, Emma Children's Hospital, University of Amsterdam, Amsterdam, The Netherlands., Merks JH; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Department of Pediatric Oncology, Amsterdam UMC, Emma Children's Hospital, University of Amsterdam, Amsterdam, The Netherlands., Moll AC; Department of Ophthalmology, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands., Kaspers GJ; Department of Pediatric Oncology, Amsterdam UMC, Emma Children's Hospital, Cancer Center Amsterdam, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Grootenhuis MA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Psychosocial Department, Amsterdam UMC, Emma Children's Hospital, University of Amsterdam, Amsterdam, The Netherlands., van Litsenburg RR; Department of Pediatric Oncology, Amsterdam UMC, Emma Children's Hospital, Cancer Center Amsterdam, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands. |
| المصدر: | Pediatric blood & cancer [Pediatr Blood Cancer] 2019 Jul; Vol. 66 (7), pp. e27728. Date of Electronic Publication: 2019 Mar 27. |
| نوع المنشور: | Clinical Trial; Journal Article; Multicenter Study |
| اللغة: | English |
| بيانات الدورية: | Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: Hoboken, N.J. : John Wiley, c 2004- |
| مواضيع طبية MeSH: | Fathers* , Mothers* , Neoplasms*/diagnosis , Neoplasms*/psychology , Neoplasms*/therapy , Quality of Life* , Sex Characteristics* , Surveys and Questionnaires*, Adult ; Child ; Cross-Sectional Studies ; Female ; Humans ; Male ; Middle Aged ; Netherlands ; Registries |
| مستخلص: | Background: Parents of children with cancer are at risk for impaired health-related quality of life (HRQoL). Most prior research has focused on the HRQoL of mothers. The aim of this study is to describe HRQoL in mothers and fathers, and determine the influence of sociodemographic, medical, and psychosocial factors. Procedure: In a cross-sectional study, both parents completed questionnaires on sociodemographics, distress, and HRQoL. Parental HRQoL was compared to healthy population values. Differences between mothers and fathers were evaluated with multilevel analysis. Gender-specific HRQoL determinants were assessed via multiple linear regression analysis. Results: Parents (202 mothers, 150 fathers; comprising 121 couples) of 231 children with different cancer diagnoses (mean time since diagnosis 3.3 ± 1.4 years, 90% posttreatment) participated. Compared to healthy women and men, mothers and fathers reported significantly impaired HRQoL on the following domains: cognitive functioning, sleep, daily activities, and vitality (Cohen's d = 0.3-0.9). Additionally, maternal HRQoL was reduced on the domains gross motor functioning, pain, social functioning, sexuality, and depressive emotions. Mothers scored worse than fathers on six of 12 domains. Risk factors for adverse outcomes in both parents were higher distress, emotional and parenting problems, little social support, medication use, and active treatment of the child. Other determinants in mothers were non-Dutch background and unemployment, while lower HRQoL in fathers was predicted by their child's diagnosis type, shorter time since diagnosis, and treatment intensity. Conclusion: These outcomes illustrate the need for family-centered care. Future interventions aimed at improving parental functioning should take into account gender-specific differences in HRQoL to reach optimal efficacy. (© 2019 The Authors. Pediatric Blood & Cancer Published by Wiley Periodicals, Inc.) |
| فهرسة مساهمة: | Keywords: cancer; child; oncology; parents; psychological stress; quality of life |
| تواريخ الأحداث: | Date Created: 20190328 Date Completed: 20191217 Latest Revision: 20191217 |
| رمز التحديث: | 20231215 |
| DOI: | 10.1002/pbc.27728 |
| PMID: | 30916456 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 1545-5017 |
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| DOI: | 10.1002/pbc.27728 |