دورية أكاديمية
Strategies to improve patient-reported outcome completion rates in longitudinal studies.
| العنوان: | Strategies to improve patient-reported outcome completion rates in longitudinal studies. |
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| المؤلفون: | Nielsen LK; Department of Haematology, Quality of Life Research Center, Odense University Hospital, Odense, Denmark. lene.kongsgaard.nielsen@rsyd.dk.; OPEN, Odense Patient Data Explorative Network, Odense University Hospital, Odense, Denmark. lene.kongsgaard.nielsen@rsyd.dk., King M; Department of Haematology, Quality of Life Research Center, Odense University Hospital, Odense, Denmark.; Faculty of Science, School of Psychology, University of Sydney, Sydney, Australia., Möller S; OPEN, Odense Patient Data Explorative Network, Odense University Hospital, Odense, Denmark.; Department of Clinical Research, University of Southern Denmark, Odense, Denmark., Jarden M; Department of Haematology, Copenhagen University Hospital, Copenhagen, Denmark., Andersen CL; Department of Haematology, Copenhagen University Hospital, Copenhagen, Denmark., Frederiksen H; Department of Haematology, Quality of Life Research Center, Odense University Hospital, Odense, Denmark., Gregersen H; Department of Haematology, Aalborg University Hospital, Aalborg, Denmark., Klostergaard A; Department of Haematology, Aarhus University Hospital, Aarhus, Denmark., Steffensen MS; Department of Haematology, Regional Hospital West Jutland, Holstebro, Denmark., Pedersen PT; Department of Haematology, South West Jutland Hospital, Esbjerg, Denmark., Hinge M; Department of Internal Medicine, Vejle Hospital, Vejle, Denmark., Frederiksen M; Department of Haematology, Hospital of Southern Jutland, Aabenraa, Denmark., Jensen BA; Department of Haematology, Zealand University Hospital, Roskilde, Denmark., Helleberg C; Department of Haematology, Herlev Hospital, Herlev, Denmark., Mylin AK; Department of Haematology, Copenhagen University Hospital, Copenhagen, Denmark., Abildgaard N; Department of Haematology, Quality of Life Research Center, Odense University Hospital, Odense, Denmark.; The Academy of Geriatric Cancer Research (AgeCare), Odense University Hospital, Odense, Denmark. |
| المصدر: | Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2020 Feb; Vol. 29 (2), pp. 335-346. Date of Electronic Publication: 2019 Sep 23. |
| نوع المنشور: | Journal Article; Multicenter Study |
| اللغة: | English |
| بيانات الدورية: | Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: 2005- : Netherlands : Springer Netherlands Original Publication: Oxford, UK : Rapid Communications of Oxford, Ltd, c1992- |
| مواضيع طبية MeSH: | Patient Reported Outcome Measures* , Quality of Life*, Adult ; Bias ; Female ; Humans ; Longitudinal Studies ; Male ; Middle Aged ; Surveys and Questionnaires |
| مستخلص: | Purpose: The quality of patient-reported outcome (PRO) data can be compromised by non-response (NR) to scheduled questionnaires, particularly if reasons for NR are related to health problems, which may lead to unintended bias. The aim was to investigate whether electronic reminders and real-time monitoring improve PRO completion rate. Methods: The population-based study "Quality of life in Danish multiple myeloma patients" is a longitudinal, multicentre study with consecutive inclusion of treatment-demanding newly diagnosed or relapsed patients with multiple myeloma. Education of study nurses in the avoidance of NR, electronic reminders, 7-day response windows and real-time monitoring of NR were integrated in the study. Patients complete PRO assessments at study entry and at 12 follow-up time points using electronic or paper questionnaires. The effect of the electronic reminders and real-time monitoring were investigated by comparison of proportions of completed questionnaires before and after each intervention. Results: The first 271 included patients were analysed; of those, 249 (85%) chose electronic questionnaires. Eighty-four percent of the 1441 scheduled PRO assessments were completed within the 7-day response window and 11% after real-time monitoring, achieving a final PRO completion rate of 95%. A significant higher proportion of uncompleted questionnaires were completed after the patients had received the electronic reminder and after real-time monitoring. Conclusions: Electronic reminders and real-time monitoring contributed to a very high completion rate in the study. To increase the quality of PRO data, we propose integrating these strategies in PRO studies, however highlighting that an increase in staff resources is required for implementation. |
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| معلومات مُعتمدة: | R150-A10023 Kræftens Bekæmpelse |
| فهرسة مساهمة: | Keywords: Health-related quality of life; Missing data; Multiple myeloma; Patient-reported outcomes; Patient-reported outcomes completion rate |
| تواريخ الأحداث: | Date Created: 20190925 Date Completed: 20200309 Latest Revision: 20200319 |
| رمز التحديث: | 20221213 |
| مُعرف محوري في PubMed: | PMC6994453 |
| DOI: | 10.1007/s11136-019-02304-8 |
| PMID: | 31549365 |
| قاعدة البيانات: | MEDLINE |
Find this article in full text from Springer Verlag. 
Full Text Finder | تدمد: | 1573-2649 |
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| DOI: | 10.1007/s11136-019-02304-8 |