دورية أكاديمية
Hemophilia and sexual health: results from the HERO and B-HERO-S studies.
| العنوان: | Hemophilia and sexual health: results from the HERO and B-HERO-S studies. |
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| المؤلفون: | Blamey G; Physiotherapy Department, Health Sciences Centre, Winnipeg, Manitoba, Canada., Buranahirun C; Children's Center for Cancer and Blood Diseases, Keck School of Medicine, University of Southern California/Children's Hospital Los Angeles , Los Angeles, CA, USA., Buzzi A; Fondazione Paracelso , Milan, Italy., Cooper DL; Novo Nordisk Inc ., Plainsboro, NJ, USA., Cutter S; Penn Comprehensive Hemophilia and Thrombosis Program, Hospital of the University of Pennsylvania , Philadelphia, PA, USA., Geraghty S; University of Colorado Hemophilia and Thrombosis Center-Retired , Denver, CO, USA., Saad H; Novo Nordisk Inc ., Plainsboro, NJ, USA., Yang R; Tianjin Hemophilia Center , Tianjin, People's Republic of China. |
| المصدر: | Patient related outcome measures [Patient Relat Outcome Meas] 2019 Aug 14; Vol. 10, pp. 243-255. Date of Electronic Publication: 2019 Aug 14 (Print Publication: 2019). |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Dove Medical Press Ltd Country of Publication: New Zealand NLM ID: 101551170 Publication Model: eCollection Cited Medium: Print ISSN: 1179-271X (Print) Linking ISSN: 1179271X NLM ISO Abbreviation: Patient Relat Outcome Meas Subsets: PubMed not MEDLINE |
| أسماء مطبوعة: | Original Publication: Auckland, NZ : Dove Medical Press Ltd. |
| مستخلص: | Background: Sexual health plays a primary role in quality of life (QoL) for many people, including those with hemophilia; however, there is little information available about sexual relationships and satisfaction in patients with hemophilia. Methods: To address this issue, the Hemophilia Experiences, Results and Opportunities (HERO) and the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) studies included questions from the Male Sexual Health Questionnaire (MSHQ). Results: Although these data were not statistically analyzed for comparisons between the 3 populations (HERO, HERO US only, and B-HERO-S), in general, participants in the HERO survey appeared to be more satisfied with their sexual relationship than participants in the B-HERO-S survey. In addition, many patients, especially those outside the United States, reported that they had not discussed sexual health with their doctor or other members of the hemophilia treatment center team. While the topic of sexual health has been infrequently explored in men with hemophilia, this is the first time it has been investigated in women with hemophilia. Conclusion: The results of these studies demonstrate that the impact of hemophilia extends to intimacy and suggest the need for large-scale studies in additional countries to explore further the factors associated with sexual health issues in people with hemophilia. Competing Interests: CB has received honoraria from Novo Nordisk Inc., although all have been unrelated to the subject matter discussed in this manuscript. DLC and HS are employees of Novo Nordisk Inc. AB reports grants from Bayer, CSL Behring, Kedrion, Novo Nordisk, Pfizer, Roche, Shire and Sobi, outside the submitted work. SC reports honoraria from Pfizer and from Novo Nordisk Inc., outside the submitted work. The authors report no other conflicts of interest in this work. (© 2019 Blamey et al.) |
| References: | Rheumatol Int. 2018 Jun;38(6):1103-1114. (PMID: 29644435) PLoS One. 2017 Apr 12;12(4):e0174981. (PMID: 28403193) J Rehabil Med. 2012 Jul;44(8):658-63. (PMID: 22729793) Haemophilia. 2013 Jan;19(1):e1-47. (PMID: 22776238) Wien Klin Wochenschr. 2010 Feb;122(3-4):103-9. (PMID: 20213377) Nurs Clin North Am. 2007 Dec;42(4):507-14; v. (PMID: 17996752) Med J Aust. 2003 Sep 1;179(5):263-6. (PMID: 12924976) Haemophilia. 2016 Jan;22(1):e11-7. (PMID: 26517156) Rev Port Pneumol (2006). 2017 Jul - Aug;23(4):179-192. (PMID: 28438512) J Diabetes Complications. 2017 Nov;31(11):1614-1619. (PMID: 28911977) Haemophilia. 2014 Mar;20(2):219-25. (PMID: 24252098) J Sex Med. 2007 Jan;4(1):29-37. (PMID: 17233774) Eur J Haematol. 2017 Apr;98 Suppl 86:5-17. (PMID: 28319338) Urology. 2004 Oct;64(4):777-82. (PMID: 15491719) Haemophilia. 2014 Jan;20(1):44-51. (PMID: 23902228) Haemophilia. 2018 Nov;24 Suppl 7:5-26. (PMID: 30457692) Eur J Cancer Care (Engl). 2016 Mar;25(2):280-93. (PMID: 25040442) |
| فهرسة مساهمة: | Keywords: Male Sexual Health Questionnaire; quality of life; sexual relationships |
| تواريخ الأحداث: | Date Created: 20191017 Latest Revision: 20220410 |
| رمز التحديث: | 20221213 |
| مُعرف محوري في PubMed: | PMC6698588 |
| DOI: | 10.2147/PROM.S211339 |
| PMID: | 31616195 |
| قاعدة البيانات: | MEDLINE |
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Full Text Finder | تدمد: | 1179-271X |
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| DOI: | 10.2147/PROM.S211339 |