دورية أكاديمية
Community participation in youth with craniofacial microsomia.
| العنوان: | Community participation in youth with craniofacial microsomia. |
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| المؤلفون: | Kaelin VC; Rehabilitation Sciences, College of Applied Health Sciences, University of Illinois at Chicago, Chicago, IL, USA., Wallace ER; Center for Child Health, Behavior, and Development, Seattle Children's Research Institute, Seattle, WA, USA., Werler MM; Department of Epidemiology, Boston University School of Public Health, Boston, MA, USA., Collett BR; Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, WA, USA., Khetani MA; Rehabilitation Sciences, College of Applied Health Sciences, University of Illinois at Chicago, Chicago, IL, USA.; Occupational Therapy, College of Applied Health Sciences, University of Illinois at Chicago, Chicago, IL, USA.; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Canada. |
| المصدر: | Disability and rehabilitation [Disabil Rehabil] 2022 Jan; Vol. 44 (2), pp. 253-260. Date of Electronic Publication: 2020 Jun 01. |
| نوع المنشور: | Journal Article; Research Support, N.I.H., Extramural |
| اللغة: | English |
| بيانات الدورية: | Publisher: Taylor & Francis Country of Publication: England NLM ID: 9207179 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1464-5165 (Electronic) Linking ISSN: 09638288 NLM ISO Abbreviation: Disabil Rehabil Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: 2015- : Abingdon, Oxford : Taylor & Francis Original Publication: London ; Washington, DC : Taylor & Francis, c1992- |
| مواضيع طبية MeSH: | Goldenhar Syndrome*/complications, Adolescent ; Adult ; Cohort Studies ; Community Participation ; Humans ; Longitudinal Studies |
| مستخلص: | Purpose: To examine differences in community participation and environmental support for youth with and without craniofacial microsomia. Methods: This study involved secondary analyses of a subset of data ( n = 396) from a longitudinal cohort study. Multiple linear and Poisson regression analyses and Wilcoxon Mann-Whitney tests were used to estimate differences in community participation and environmental support between youth with craniofacial microsomia and youth without craniofacial microsomia, stratified based on their history of education and health-related service use. Chi-square analyses were used to explore item-level group differences in change desired across community activities. Results: Statistically significant differences were found in community participation frequency ( ES = -0.52; p < 0.001), level of involvement ( r = -0.16; p = 0.010), and desire for change in participation when comparing youth with craniofacial microsomia and non-affected peers not receiving services ( p < 0.001). There were no statistically significant differences between youth with craniofacial microsomia and non-affected peers receiving services. Conclusions: Results suggest lower community participation in youth with craniofacial microsomia as compared to non-affected peers not receiving services. This may suggest opportunities for designing and testing interventions to promote community participation among youth with craniofacial microsomia, so as to support their transition to adulthood.Implications for rehabilitationYouth with craniofacial microsomia may have unmet rehabilitation needs related to their community participation.Rehabilitation professionals should pay attention to participation of youth with craniofacial microsomia in activities that place a higher demand on involvement with others.Rehabilitation professionals should appraise participation frequency and involvement of youths with craniofacial microsomia to gain accurate insight into their current community participation. |
| References: | Cleft Palate Craniofac J. 2018 May;55(5):664-675. (PMID: 29356621) Cleft Palate Craniofac J. 2005 Jan;42(1):25-32. (PMID: 15643924) Dev Med Child Neurol. 2018 Nov;60(11):1101-1116. (PMID: 30022476) J Occup Ther Sch Early Interv. 2019;12(1):129-143. (PMID: 31289605) Oral Surg Oral Med Oral Pathol. 1973 Mar;35(3):302-28. (PMID: 4631568) Arch Pediatr Adolesc Med. 2011 Feb;165(2):134-40. (PMID: 21300653) J Pediatr Psychol. 2011 Aug;36(7):794-805. (PMID: 21345938) Dev Med Child Neurol. 2017 Jan;59(1):16-25. (PMID: 27640996) Am J Med Genet A. 2017 May;173(5):1208-1218. (PMID: 28319315) Cleft Palate Craniofac J. 2004 Sep;41(5):494-50. (PMID: 15352870) Child Care Health Dev. 2013 Jul;39(4):535-43. (PMID: 23763254) Dev Med Child Neurol. 2011 Nov;53(11):1030-7. (PMID: 22014322) Int J Oral Maxillofac Surg. 2015 May;44(5):592-8. (PMID: 25769220) J Dev Behav Pediatr. 2013 Nov-Dec;34(9):661-8. (PMID: 24213374) Int J Oral Maxillofac Surg. 2015 Jun;44(6):732-7. (PMID: 25771070) Dev Med Child Neurol. 2006 May;48(5):337-42. (PMID: 16608540) Plast Reconstr Surg. 1986 Jan;77(1):1-6. (PMID: 3941831) Arch Phys Med Rehabil. 2014 May;95(5):908-17. (PMID: 24468018) Dev Med Child Neurol. 2018 Aug;60(8):793-800. (PMID: 29574916) Can J Occup Ther. 2000 Jun;67(3):162-72. (PMID: 10914479) Intellect Dev Disabil. 2014 Aug;52(4):258-72. (PMID: 25061770) Am J Occup Ther. 2021 Mar-Apr;75(2):7502205100p1-7502205100p10. (PMID: 33657352) Cleft Palate Craniofac J. 2017 Jan;54(1):2-12. (PMID: 26751907) J Craniofac Surg. 2018 Nov;29(8):2198-2205. (PMID: 30334912) Child Care Health Dev. 2011 Nov;37(6):757-63. (PMID: 22007974) Pilot Feasibility Stud. 2018 Mar 21;4:65. (PMID: 29588860) Int J Pediatr Otorhinolaryngol. 2018 Apr;107:164-175. (PMID: 29501301) Dev Med Child Neurol. 2017 Apr;59(4):388-394. (PMID: 27988938) Dev Med Child Neurol. 2010 Mar;52(3):270-5. (PMID: 19694780) Int J Environ Res Public Health. 2017 Sep 02;14(9):. (PMID: 28869491) Plast Reconstr Surg. 2017 Sep;140(3):571-580. (PMID: 28841618) Arch Phys Med Rehabil. 2013 Feb;94(2):315-23. (PMID: 23044364) Am J Med Genet A. 2007 Jun 15;143A(12):1317-25. (PMID: 17506093) Cleft Palate Craniofac J. 2018 Nov;55(10):1430-1439. (PMID: 29634364) |
| معلومات مُعتمدة: | R01 DE011939 United States DE NIDCR NIH HHS |
| فهرسة مساهمة: | Keywords: Leisure activities*; caregivers*; patient reported outcome measures* |
| تواريخ الأحداث: | Date Created: 20200602 Date Completed: 20220310 Latest Revision: 20230102 |
| رمز التحديث: | 20240829 |
| مُعرف محوري في PubMed: | PMC7704849 |
| DOI: | 10.1080/09638288.2020.1765031 |
| PMID: | 32478589 |
| قاعدة البيانات: | MEDLINE |
PDF full text from Publisher | تدمد: | 1464-5165 |
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| DOI: | 10.1080/09638288.2020.1765031 |