دورية أكاديمية
Experiences from the epicenter: Professional impact of the COVID-19 pandemic on genetic counselors in New York.
| العنوان: | Experiences from the epicenter: Professional impact of the COVID-19 pandemic on genetic counselors in New York. |
|---|---|
| المؤلفون: | Bergstrom KL; Department of Pediatrics, Weill Cornell Medicine, New York City, New York, USA., Brander TE; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York City, New York, USA., Breen KE; Department of Medicine, Memorial Sloan Kettering Cancer Center, New York City, New York, USA., Naik H; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York City, New York, USA. |
| المصدر: | American journal of medical genetics. Part C, Seminars in medical genetics [Am J Med Genet C Semin Med Genet] 2021 Mar; Vol. 187 (1), pp. 28-36. Date of Electronic Publication: 2020 Nov 23. |
| نوع المنشور: | Journal Article; Research Support, Non-U.S. Gov't |
| اللغة: | English |
| بيانات الدورية: | Publisher: Wiley-Blackwell Country of Publication: United States NLM ID: 101235745 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1552-4876 (Electronic) Linking ISSN: 15524868 NLM ISO Abbreviation: Am J Med Genet C Semin Med Genet Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: Hoboken, NJ : Wiley-Blackwell Original Publication: Hoboken, NJ : Wiley-Liss, c2003- |
| مواضيع طبية MeSH: | Genetic Counseling* , SARS-CoV-2*, COVID-19/*epidemiology , COVID-19/*virology, Delivery of Health Care ; Health Personnel ; Humans ; New York/epidemiology ; Pandemics ; Perception ; Public Health Surveillance ; Referral and Consultation ; Telemedicine |
| مستخلص: | The COVID-19 pandemic disrupted the delivery of healthcare services, including genetic counseling. This study assessed the professional impact of the pandemic on genetic counselors (GCs) and evaluated how genetics service delivery models changed in New York State (NYS). One hundred sixty-five NYS GCs participated in an anonymous survey. Clinic structure, telegenetics (video and/or telephone consultations) use and acceptability, and professional practices before and during the pandemic were compared. The most frequently reported consultation type shifted from in-person only (49%) before the pandemic to telegenetics only (39%) during. Most were satisfied with video (93.1%) and telephone (81.4%) telegenetics. Additionally, 93.5% of participants expressed a desire to continue using telegenetics after the pandemic resolves. Common obstacles included difficulties coordinating sample collection (60.2%) and obtaining written consent for testing (57.6%). Billing methods for consultations during the pandemic did not change significantly. Participants were asked about NYS's lack of licensure, which restricts billing options. Most felt that genetic counseling licensure would benefit the profession (92.6%), the public (88.5%), and their institution/company (74.5%). This study provides insight into the effects of the rapid adoption of telegenetics and can guide future discussions about best practices for its use even after the health crisis resolves. (© 2021 Wiley Periodicals LLC.) |
| References: | J Genet Couns. 2020 Dec;29(6):1126-1141. (PMID: 32314856) J Genet Couns. 2015 Dec;24(6):961-70. (PMID: 25833335) Telemed J E Health. 2010 Apr;16(3):350-7. (PMID: 20406122) Eur J Hum Genet. 2016 Feb;24(2):157-63. (PMID: 25898928) Emerg Microbes Infect. 2020 Dec;9(1):1590-1599. (PMID: 32573350) Am J Med Genet A. 2016 Jan;170A(1):8-9. (PMID: 26768329) J Med Internet Res. 2016 Mar 01;18(3):e53. (PMID: 26932229) BMJ Open. 2017 Aug 3;7(8):e016242. (PMID: 28775188) Psychiatry Res. 2020 Jun;288:112936. (PMID: 32276196) Genet Med. 2005 Jan;7(1):1-2. (PMID: 15654221) Mol Genet Genomic Med. 2020 Oct;8(10):e1433. (PMID: 32743952) Lancet. 2020 Mar 14;395(10227):912-920. (PMID: 32112714) Genet Med. 2005 Jul-Aug;7(6):439-43. (PMID: 16024977) J Anxiety Disord. 2016 Apr;39:30-43. (PMID: 26945765) J Genet Couns. 2018 Feb;27(1):16-20. (PMID: 29052810) Am J Perinatol. 2020 Jun;37(8):800-808. (PMID: 32396948) J Genet Couns. 2018 Apr;27(2):329-338. (PMID: 29362948) J Neuroophthalmol. 2020 Sep;40(3):346-355. (PMID: 32639269) Genet Med. 2020 Sep;22(9):1437-1449. (PMID: 32576987) Genet Med. 2020 Sep;22(9):1467-1469. (PMID: 32499605) Int J Soc Psychiatry. 2021 Feb;67(1):35-45. (PMID: 32615833) Telemed J E Health. 2018 Feb;24(2):130-138. (PMID: 28737998) Clin J Oncol Nurs. 2020 Jun 1;24(3):244-248. (PMID: 32441683) J Telemed Telecare. 2000;6(4):245-7. (PMID: 11027129) Am J Med Genet C Semin Med Genet. 2021 Mar;187(1):28-36. (PMID: 33225573) Pediatrics. 2015 Jul;136(1):e293-308. (PMID: 26122813) Genet Med. 2012 Sep;14(9):765-76. (PMID: 22498847) J Genet Couns. 2019 Jun;28(3):673-691. (PMID: 30825358) J Med Syst. 2017 Feb;41(2):21. (PMID: 27987158) Int Psychogeriatr. 2020 Oct;32(10):1217-1220. (PMID: 32450943) |
| معلومات مُعتمدة: | P30 CA008748 United States CA NCI NIH HHS |
| فهرسة مساهمة: | Keywords: delivery of health care; genetic counseling; licensure; telemedicine |
| تواريخ الأحداث: | Date Created: 20201123 Date Completed: 20210405 Latest Revision: 20221005 |
| رمز التحديث: | 20240628 |
| مُعرف محوري في PubMed: | PMC7753596 |
| DOI: | 10.1002/ajmg.c.31855 |
| PMID: | 33225573 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 1552-4876 |
|---|---|
| DOI: | 10.1002/ajmg.c.31855 |