دورية أكاديمية
أعرض في EDS

Stakeholder perspectives and requirements to guide the development of digital technology for palliative cancer services: a multi-country, cross-sectional, qualitative study in Nigeria, Uganda and Zimbabwe.

التفاصيل البيبلوغرافية
العنوان: Stakeholder perspectives and requirements to guide the development of digital technology for palliative cancer services: a multi-country, cross-sectional, qualitative study in Nigeria, Uganda and Zimbabwe.
المؤلفون: Nkhoma KB; Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK. kennedy.nkhoma@kcl.ac.uk., Ebenso B; Nuffield Centre for International Health and Development, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK., Akeju D; Department of Sociology, University of Lagos, Lagos, Nigeria., Adejoh S; Department of Sociology, University of Lagos, Lagos, Nigeria., Bennett M; Academic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK., Chirenje M; Clinical Trials Research Centre, College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe., Dandadzi A; Clinical Trials Research Centre, College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe., Nabirye E; Department of Internal Medicine, Makerere University, Kampala, Uganda., Namukwaya E; Department of Internal Medicine, Makerere University, Kampala, Uganda., Namisango E; African Palliative Care Association, Kampala, Uganda., Okunade K; College of Medicine, University of Lagos, Lagos, Nigeria., Salako O; Department of Radiation Oncology, Lagos University Teaching Hospital, Lagos, Nigeria., Harding R; Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK., Allsop MJ; Academic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
المصدر: BMC palliative care [BMC Palliat Care] 2021 Jan 04; Vol. 20 (1), pp. 4. Date of Electronic Publication: 2021 Jan 04.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: BioMed Central Country of Publication: England NLM ID: 101088685 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-684X (Electronic) Linking ISSN: 1472684X NLM ISO Abbreviation: BMC Palliat Care Subsets: MEDLINE
أسماء مطبوعة: Original Publication: London : BioMed Central, [2002-
مواضيع طبية MeSH: Administrative Personnel* , Biomedical Technology* , Caregivers* , Digital Technology* , Health Personnel* , Palliative Care*, Neoplasms/*therapy, Adult ; Aged ; Cross-Sectional Studies ; Data Collection ; Female ; Health Services Needs and Demand ; Humans ; Male ; Middle Aged ; Nigeria ; Qualitative Research ; Quality Improvement ; Uganda ; Zimbabwe
مستخلص: Introduction: Coverage of palliative care in low and middle-income countries is very limited, and global projections suggest large increases in need. Novel approaches are needed to achieve the palliative care goals of Universal Health Coverage. This study aimed to identify stakeholders' data and information needs and the role of digital technologies to improve access to and delivery of palliative care for people with advanced cancer in Nigeria, Uganda and Zimbabwe.
Methods: We conducted a multi-country cross-sectional qualitative study in sub-Saharan Africa. In-depth qualitative stakeholder interviews were conducted with N = 195 participants across Nigeria, Uganda and Zimbabwe (advanced cancer patients n = 62, informal caregivers n = 48, health care professionals n = 59, policymakers n = 26). Verbatim transcripts were subjected to deductive and inductive framework analysis to identify stakeholders needs and their preferences for digital technology in supporting the capture, transfer and use of patient-level data to improve delivery of palliative care.
Results: Our coding framework identified four main themes: i) acceptability of digital technology; ii) current context of technology use; iii) current vision for digital technology to support health and palliative care, and; iv) digital technologies for the generation, reporting and receipt of data. Digital heath is an acceptable approach, stakeholders support the use of secure data systems, and patients welcome improved communication with providers. There are varying preferences for how and when digital technologies should be utilised as part of palliative cancer care provision, including for increasing timely patient access to trained palliative care providers and the triaging of contact from patients.
Conclusion: We identified design and practical challenges to optimise potential for success in developing digital health approaches to improve access to and enhance the delivery of palliative cancer care in Nigeria, Uganda and Zimbabwe. Synthesis of findings identified 15 requirements to guide the development of digital health approaches that can support the attainment of global health palliative care policy goals.
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معلومات مُعتمدة: MR/S014535/1 United Kingdom MRC_ Medical Research Council; QR GCRF Research England Quality-Related Global Challenges Research Fund
تواريخ الأحداث: Date Created: 20210105 Date Completed: 20210125 Latest Revision: 20211006
رمز التحديث: 20240628
مُعرف محوري في PubMed: PMC7784352
DOI: 10.1186/s12904-020-00694-y
PMID: 33397321
قاعدة البيانات: MEDLINE
الوصف
تدمد:1472-684X
DOI:10.1186/s12904-020-00694-y