دورية أكاديمية
أعرض في EDS

Psychometric properties of a brief self-reported health-related quality of life measure (HRQoL-IDD) for persons with intellectual and developmental disabilities.

التفاصيل البيبلوغرافية
العنوان: Psychometric properties of a brief self-reported health-related quality of life measure (HRQoL-IDD) for persons with intellectual and developmental disabilities.
المؤلفون: Pett MA; University of Utah College of Nursing, Salt Lake City, UT, USA., Guo JW; University of Utah College of Nursing, Salt Lake City, UT, USA., Cardell B; Department of Occupational and Recreational Therapies, College of Health, University of Utah, Salt Lake City, UT, USA., Johnson EP; Department of Obstetrics and Gynecology, School of Medicine, University of Utah, Salt Lake City, UT, USA., Guerra N; The Resource Exchange (TRE), Colorado Springs, CO, USA., Clark L; School of Nursing, University of California Los Angeles (UCLA), Los Angeles, CA, USA.
المصدر: Journal of applied research in intellectual disabilities : JARID [J Appl Res Intellect Disabil] 2021 May; Vol. 34 (3), pp. 877-890. Date of Electronic Publication: 2021 Jan 31.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Blackwell Science Country of Publication: England NLM ID: 9613616 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1468-3148 (Electronic) Linking ISSN: 13602322 NLM ISO Abbreviation: J Appl Res Intellect Disabil Subsets: MEDLINE
أسماء مطبوعة: Publication: <2000- > : Oxford, UK : Blackwell Science
Original Publication: Clevedon : BILD Publications, c1996-
مواضيع طبية MeSH: Intellectual Disability* , Quality of Life*, Adult ; Child ; Developmental Disabilities ; Humans ; Psychometrics ; Self Report
مستخلص: Background: To encourage self-determination and address health disparities among persons with intellectual and developmental disabilities, clinicians and researchers rely on self-reported measures like health-related quality of life (HRQoL). This study evaluated the psychometric properties of a theory-driven self-reported HRQoL measure for adults requiring mild to moderate support related to intellectual and developmental disabilities.
Method: 224 volunteers completed 42 quality of life items developed with extensive input from persons with intellectual and developmental disabilities, family members/caregivers, and providers. The 5-point Likert scale format with visual images of fluid-filled cups represented the range of responses.
Results: Exploratory and Unrestricted Factor Analyses yielded 16 HRQoL items with 4 subscales: Functional Well-Being, Emotional Well-Being, Social Well-Being, and Healthy Decision-making. The HRQoL-IDD explained 62.8% of variance, had satisfactory internal consistency (0.73-0.83), stability of reponses, and reading level (2nd grade, ages 7-8).
Conclusions: The HRQoL-IDD is a promising measure of self-reported HRQoL for use in community-based settings for persons requiring mild to moderate support related to intellectual and developmental disabilities.
(© 2021 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.)
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معلومات مُعتمدة: UL1 TR002538 United States TR NCATS NIH HHS
فهرسة مساهمة: Keywords: generalizability theory; health-related quality of life; intellectual and developmental disability; quality of life; scale development
تواريخ الأحداث: Date Created: 20210201 Date Completed: 20210818 Latest Revision: 20230801
رمز التحديث: 20231215
مُعرف محوري في PubMed: PMC8247975
DOI: 10.1111/jar.12831
PMID: 33522020
قاعدة البيانات: MEDLINE
الوصف
تدمد:1468-3148
DOI:10.1111/jar.12831