دورية أكاديمية
أعرض في EDS

Health care staff's strategies to preserve dignity of migrant patients in the palliative phase and their families. A qualitative study.

التفاصيل البيبلوغرافية
العنوان: Health care staff's strategies to preserve dignity of migrant patients in the palliative phase and their families. A qualitative study.
المؤلفون: de Voogd X; Amsterdam UMC, Department of Public & Occupational Health, Amsterdam Public Health Research Institute, University of Amsterdam, Amsterdam, Netherlands., Willems DL; Amsterdam UMC, Department of Ethics, Law and Humanities, Amsterdam UMC Expertise Center for Palliative Care and Amsterdam Public Health Research Institute, Amsterdam, Netherlands., Onwuteaka-Philipsen B; Amsterdam UMC, Department of Public & Occupational Health, Amsterdam UMC Expertise Center for Palliative Care and Amsterdam Public Health Research Institute, Amsterdam, Netherlands., Torensma M; Amsterdam UMC, Department of Public & Occupational Health, Amsterdam Public Health Research Institute, University of Amsterdam, Amsterdam, Netherlands., Suurmond JL; Amsterdam UMC, Department of Public & Occupational Health, Amsterdam Public Health Research Institute, University of Amsterdam, Amsterdam, Netherlands.
المصدر: Journal of advanced nursing [J Adv Nurs] 2021 Jun; Vol. 77 (6), pp. 2819-2830. Date of Electronic Publication: 2021 Mar 23.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Blackwell Scientific Publications Country of Publication: England NLM ID: 7609811 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-2648 (Electronic) Linking ISSN: 03092402 NLM ISO Abbreviation: J Adv Nurs Subsets: MEDLINE
أسماء مطبوعة: Publication: Oxford : Blackwell Scientific Publications
Original Publication: Oxford, Blackwell.
مواضيع طبية MeSH: Respect* , Transients and Migrants*, Attitude of Health Personnel ; Humans ; Netherlands ; Palliative Care ; Qualitative Research ; Quality of Life
مستخلص: Aims: To determine registered nurses' and care assistants' difficulties and strategies for preserving dignity of migrant patients in the last phase of life and their families.
Background: Preserving dignity of patients in a palliative phase entails paying attention to the uniqueness of patients. Migrant patients often have particular needs and wishes that care staff find difficult to address, or meet, and hence the patient's dignity might be at stake.
Methods: We performed five focus group discussions with care staff and one with key figures with diverse ethnic backgrounds in the Netherlands (2018-2020). Thematic analysis was used.
Results: Care staff creatively safeguarded the patient's dignity in daily care by attending to personal needs concerning intimate body care and providing non-verbal attention. Care staff had difficulties to preserve dignity, when the patient's family engaged themselves in the patient's choices or requests. According to care staff, the interference of family impeded the patient's quality of life or threatened the patient's dignity in the last days, or family member's choices (seemingly) prevailed over the patient's wishes. Care staff safeguarded dignity by catering to cultural or religious practices at the end of life and employing cultural knowledge during decision making. Key figures emphasized to make decisions with patient and family together and to listen more carefully to what patients mean. Bypassing family was experienced as harmful, and repetitively informing family, about, for example, the patient's disease or procedures in the nursing home, was experienced as ineffective.
Conclusion: To preserve the patient's dignity, attention is needed for relational aspects of dignity and needs of family, next to patients' individual needs.
Impact: Care staff should be supported to employ strategies to engage family of migrant patients, by, for example, acknowledging families' values, such as giving good care to the patient and the importance of religious practices for dignity.
(© 2021 John Wiley & Sons Ltd.)
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معلومات مُعتمدة: 80-84400-98-332 Netherlands ZONMW_ ZonMw
فهرسة مساهمة: Keywords: cultural diversity; dignity; end-of-life care; family; focus groups; migrants; nurses; palliative care
تواريخ الأحداث: Date Created: 20210323 Date Completed: 20210618 Latest Revision: 20210618
رمز التحديث: 20221213
DOI: 10.1111/jan.14829
PMID: 33755223
قاعدة البيانات: MEDLINE
الوصف
تدمد:1365-2648
DOI:10.1111/jan.14829