دورية أكاديمية
Can you hear us now? The impact of health-care utilization by rare disease patients in the United States.
العنوان: | Can you hear us now? The impact of health-care utilization by rare disease patients in the United States. |
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المؤلفون: | Navarrete-Opazo AA; Advocate Aurora Health, Advocate Aurora Research Institute, Milwaukee, WI, USA., Singh M; Advocate Aurora Health, Advocate Aurora Research Institute, Milwaukee, WI, USA.; School of Dentistry, Marquette University, Milwaukee, WI, USA., Tisdale A; National Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, MD, USA., Cutillo CM; National Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, MD, USA., Garrison SR; Advocate Aurora Health, Advocate Aurora Research Institute, Milwaukee, WI, USA. sheldon.garrison@aah.org. |
المصدر: | Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2021 Nov; Vol. 23 (11), pp. 2194-2201. Date of Electronic Publication: 2021 Jun 28. |
نوع المنشور: | Journal Article |
اللغة: | English |
بيانات الدورية: | Publisher: Elsevier Country of Publication: United States NLM ID: 9815831 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0366 (Electronic) Linking ISSN: 10983600 NLM ISO Abbreviation: Genet Med Subsets: MEDLINE |
أسماء مطبوعة: | Publication: 2022- : [New York] : Elsevier Original Publication: Baltimore, MD : Lippincott, Williams & Wilkins, c1998- |
مواضيع طبية MeSH: | Hospitalization* , Rare Diseases*/diagnosis , Rare Diseases*/epidemiology , Rare Diseases*/genetics, Adult ; Child ; Health Care Costs ; Humans ; Length of Stay ; Patient Acceptance of Health Care ; United States |
مستخلص: | Purpose: The vast majority of rare diseases (RDs) are complex, disabling, and life-threatening conditions with a genetic origin. RD patients face significant health challenges and limited treatments, yet the extent of their impact within health care is not well known. One direct method to gauge the disease burden of RDs is their overall cost and utilization within health-care systems. Methods: The 2016 Healthcare Cost and Utilization Project (HCUP) databases were used to extract health-care utilization data using International Classification of Diseases, Tenth Revision (ICD-10) codes. Results: Of 35.6 million national hospital weighted discharges in the HCUP Nationwide Inpatient Sample, 32% corresponded to RD-associated ICD-10 codes. Total charges were nearly equal between RDs ($768 billion) compared to common conditions (CCs) ($880 billion) (p < 0.0001). These charges were a result of higher charges per discharge and longer length of stay (LOS) for RD patients compared to those with CCs (p < 0.0001). Health-care cost and utilization was similarly higher for RDs with pediatric inpatient stays, readmissions, and emergency visits. Conclusion: Pediatric and adult discharges with RDs show substantially higher health-care utilization compared to discharges with CCs diagnoses, accounting for nearly half of the US national bill. (© 2021. The Author(s).) |
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تواريخ الأحداث: | Date Created: 20210629 Date Completed: 20211111 Latest Revision: 20220210 |
رمز التحديث: | 20221213 |
مُعرف محوري في PubMed: | PMC8553605 |
DOI: | 10.1038/s41436-021-01241-7 |
PMID: | 34183788 |
قاعدة البيانات: | MEDLINE |
تدمد: | 1530-0366 |
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DOI: | 10.1038/s41436-021-01241-7 |