Operational Challenges in the Use of Structured Secondary Data for Health Research.

التفاصيل البيبلوغرافية
العنوان:	Operational Challenges in the Use of Structured Secondary Data for Health Research.
المؤلفون:	Areco KN; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Konstantyner T; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Bandiera-Paiva P; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Balda RCX; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Costa-Nobre DT; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Sanudo A; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Kiffer CRV; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Kawakami MD; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Miyoshi MH; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Marinonio ASS; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Freitas RMV; Fundação Sistema Estadual de Análise de Dados, São Paulo, Brazil., Morais LCC; Fundação Sistema Estadual de Análise de Dados, São Paulo, Brazil., Teixeira MLP; Fundação Sistema Estadual de Análise de Dados, São Paulo, Brazil., Waldvogel B; Fundação Sistema Estadual de Análise de Dados, São Paulo, Brazil., Almeida MFB; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Guinsburg R; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil.
المصدر:	Frontiers in public health [Front Public Health] 2021 Jun 15; Vol. 9, pp. 642163. Date of Electronic Publication: 2021 Jun 15 (Print Publication: 2021).
نوع المنشور:	Journal Article; Research Support, Non-U.S. Gov't
اللغة:	English
بيانات الدورية:	Publisher: Frontiers Editorial Office Country of Publication: Switzerland NLM ID: 101616579 Publication Model: eCollection Cited Medium: Internet ISSN: 2296-2565 (Electronic) Linking ISSN: 22962565 NLM ISO Abbreviation: Front Public Health Subsets: MEDLINE
أسماء مطبوعة:	Original Publication: Lausanne : Frontiers Editorial Office
مواضيع طبية MeSH:	Infant Mortality* , Research Design*, Brazil ; Child ; Cohort Studies ; Databases, Factual ; Humans ; Infant
مستخلص:	Background: In Brazil, secondary data for epidemiology are largely available. However, they are insufficiently prepared for use in research, even when it comes to structured data since they were often designed for other purposes. To date, few publications focus on the process of preparing secondary data. The present findings can help in orienting future research projects that are based on secondary data. Objective: Describe the steps in the process of ensuring the adequacy of a secondary data set for a specific use and to identify the challenges of this process. Methods: The present study is qualitative and reports methodological issues about secondary data use. The study material was comprised of 6,059,454 live births and 73,735 infant death records from 2004 to 2013 of children whose mothers resided in the State of São Paulo - Brazil. The challenges and description of the procedures to ensure data adequacy were undertaken in 6 steps: (1) problem understanding, (2) resource planning, (3) data understanding, (4) data preparation, (5) data validation and (6) data distribution. For each step, procedures, and challenges encountered, and the actions to cope with them and partial results were described. To identify the most labor-intensive tasks in this process, the steps were assessed by adding the number of procedures, challenges, and coping actions. The highest values were assumed to indicate the most critical steps. Results: In total, 22 procedures and 23 actions were needed to deal with the 27 challenges encountered along the process of ensuring the adequacy of the study material for the intended use. The final product was an organized database for a historical cohort study suitable for the intended use. Data understanding and data preparation were identified as the most critical steps, accounting for about 70% of the challenges observed for data using. Conclusion: Significant challenges were encountered in the process of ensuring the adequacy of secondary health data for research use, mainly in the data understanding and data preparation steps. The use of the described steps to approach structured secondary data and the knowledge of the potential challenges along the process may contribute to planning health research. Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. (Copyright © 2021 Areco, Konstantyner, Bandiera-Paiva, Balda, Costa-Nobre, Sanudo, Kiffer, Kawakami, Miyoshi, Marinonio, Freitas, Morais, Teixeira, Waldvogel, Almeida and Guinsburg.)
References:	Cad Saude Publica. 2014 Jul;30(7):1363-5. (PMID: 25166933) Int J Popul Data Sci. 2018 Nov 14;3(1):446. (PMID: 34095519) Rev Paul Pediatr. 2016 Sep;34(3):263-70. (PMID: 27105575) Epidemiol Serv Saude. 2016 Apr-Jun;25(2):427-436. (PMID: 27869961) Int J Epidemiol. 1996 Apr;25(2):435-42. (PMID: 9119571) Cad Saude Publica. 2018 Jul 23;34(7):e00039417. (PMID: 30043843) Sao Paulo Med J. 2001 Jan 4;119(1):33-42. (PMID: 11175624) Cad Saude Publica. 2007 Jul;23(7):1511-28. (PMID: 17572800) Front Pharmacol. 2019 Sep 23;10:984. (PMID: 31607900)
فهرسة مساهمة:	Keywords: Birth Certificates; Death Certificates; datasets as topic; population studies in public health; public health; secondary health data
تواريخ الأحداث:	Date Created: 20210702 Date Completed: 20210705 Latest Revision: 20210705
رمز التحديث:	20231215
مُعرف محوري في PubMed:	PMC8239175
DOI:	10.3389/fpubh.2021.642163
PMID:	34211950
قاعدة البيانات:	MEDLINE

Full Text Finder

الوصف
تدمد:	2296-2565
DOI:	10.3389/fpubh.2021.642163