التفاصيل البيبلوغرافية
| العنوان: |
Ring the Bell for Sickle Cell: Encouraging Advocacy in an Underserved Community. |
| المؤلفون: |
Bloom EM; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Hampton KC; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Blackwell K; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Gibson GA; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Roberson C; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Meier ER; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA. |
| المصدر: |
Health promotion practice [Health Promot Pract] 2022 Jul; Vol. 23 (4), pp. 560-562. Date of Electronic Publication: 2021 Jul 07. |
| نوع المنشور: |
Journal Article |
| اللغة: |
English |
| بيانات الدورية: |
Publisher: Sage Publications Country of Publication: United States NLM ID: 100890609 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1524-8399 (Print) Linking ISSN: 15248399 NLM ISO Abbreviation: Health Promot Pract Subsets: MEDLINE |
| أسماء مطبوعة: |
Original Publication: Thousand Oaks, CA : Sage Publications, c2000- |
| مواضيع طبية MeSH: |
Anemia, Sickle Cell*/therapy, Adult ; Humans ; Indiana ; Needs Assessment |
| مستخلص: |
Sickle cell disease (SCD) was once a disease of childhood because of a limited life expectancy. Due to medical advances, it is now common for people with SCD to live into adulthood. Funding and resources for adults with SCD, however, remain limited. Adult patients would benefit from increased access to medical care, mental health care services, and workforce development. The Indiana Sickle Cell Consortium, a group of medical providers and community-based organizations, worked closely with people living with SCD and their family members to create a campaign advocating for state funding for programs for adults with SCD. This campaign culminated with the passage of a bill that provides $250,000 in funding for program development for adults with SCD. The bill also directs the Indiana Department of Health to carry out a needs assessment for people with SCD in Indiana. However, continued efforts are needed to reduce health disparities for people with SCD. The Indiana Sickle Cell Consortium will continue advocacy efforts in future legislative cycles and bring attention to the health inequities that affect people with SCD. |
| فهرسة مساهمة: |
Keywords: access to health care; chronic disease; health disparities; partnerships/coalitions; public health laws/policies |
| تواريخ الأحداث: |
Date Created: 20210707 Date Completed: 20220822 Latest Revision: 20220902 |
| رمز التحديث: |
20231215 |
| DOI: |
10.1177/15248399211024169 |
| PMID: |
34229474 |
| قاعدة البيانات: |
MEDLINE |
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