A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study.

التفاصيل البيبلوغرافية
العنوان:	A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study.
المؤلفون:	McGorm KJ; Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia., Brown JD; Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia., Thomson RL; Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia., Oakey H; Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia., Moore B; Department of Diabetes & Endocrinology, The Royal Melbourne Hospital, Melbourne, VIC, Australia., Hendry A; Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia., Colman PG; Department of Diabetes & Endocrinology, The Royal Melbourne Hospital, Melbourne, VIC, Australia., Craig ME; School of Women's and Children's Health, Faculty of Medicine, UNSW Sydney, Sydney, NSW, Australia.; Institute of Endocrinology and Diabetes, The Children's Hospital at Westmead, Sydney, NSW, Australia., Davis EA; Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth, WA, Australia., Harris M; Queensland Children's Hospital, South Brisbane, QLD, Australia., Harrison LC; Walter and Eliza Hall Institute of Medical Research, Melbourne, VIC, Australia., Haynes A; Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth, WA, Australia., Soldatos G; Diabetes and Vascular Medicine Unit, Monash Health, Melbourne, VIC, Australia., Vuillermin P; Child Health Research Unit, Barwon Health, Geelong, VIC, Australia., Wentworth JM; Department of Diabetes & Endocrinology, The Royal Melbourne Hospital, Melbourne, VIC, Australia.; Walter and Eliza Hall Institute of Medical Research, Melbourne, VIC, Australia., Couper JJ; Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.; Women's and Children's Hospital, Adelaide, SA, Australia., Penno MAS; Robinson Research Institute, Adelaide Medical School, The University of Adelaide, North Adelaide, SA, Australia.
مؤلفون مشاركون:	ENDIA Study Group
المصدر:	Journal of diabetes science and technology [J Diabetes Sci Technol] 2023 May; Vol. 17 (3), pp. 696-704. Date of Electronic Publication: 2022 Feb 22.
نوع المنشور:	Evaluation Study; Journal Article; Research Support, Non-U.S. Gov't
اللغة:	English
بيانات الدورية:	Publisher: Sage Country of Publication: United States NLM ID: 101306166 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1932-2968 (Electronic) Linking ISSN: 19322968 NLM ISO Abbreviation: J Diabetes Sci Technol Subsets: MEDLINE
أسماء مطبوعة:	Publication: 2014- : Thousand Oaks, CA : Sage Original Publication: Foster City, CA : Diabetes Technology Society
مواضيع طبية MeSH:	Diabetes Mellitus, Type 1* , Social Media*, Child ; Female ; Humans ; Pregnancy ; Australia ; Autoimmunity ; Cohort Studies
مستخلص:	Background: The Environmental Determinants of Islet Autoimmunity (ENDIA) study is an Australia-wide pregnancy-birth cohort study following children who have a first-degree relative with type 1 diabetes (ACTRN1261300794707). A dedicated ENDIA Facebook page was established in 2013 with the aim of enhancing recruitment and supporting participant retention through dissemination of study information. To measure the impact of Facebook, we evaluated the sources of referral to the study, cohort demographics, and withdrawal rates. We also investigated whether engagement with Facebook content was associated with specific post themes. Methods: Characteristics of Facebook versus conventional recruits were compared using linear, logistic, and multinomial logistic regression models. Logistic regression was used to determine the risk of study withdrawal. Data pertaining to 794 Facebook posts over 7.5 years were included in the analysis. Results: Facebook was the third largest source of referral (300/1511; 19.9%). Facebook recruits were more frequently Australian-born ( P < .001) enrolling postnatally ( P = .01) and withdrew from the study at a significantly lower rate compared with conventional recruits (4.7% vs 12.3%; P < .001) after a median of follow-up of 3.3 years. Facebook content featuring stories and images of participants received the highest engagement even though <20% of the 2337 Facebook followers were enrolled in the study. Conclusions: Facebook was a valuable recruitment tool for ENDIA. Compared with conventional recruits, Facebook recruits were three times less likely to withdraw during long-term follow-up and had different sociodemographic characteristics. Facebook content featuring participants was the most engaging. These findings inform social media strategies for future cohort and type 1 diabetes studies. Trial Registration: Australia New Zealand Clinical Trials Registry: ACTRN1261300794707.
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فهرسة مساهمة:	Keywords: Facebook; clinical research; cohort; pregnancy; recruitment; retention; social media; type 1 diabetes
تواريخ الأحداث:	Date Created: 20220223 Date Completed: 20230512 Latest Revision: 20230528
رمز التحديث:	20230529
مُعرف محوري في PubMed:	PMC10210110
DOI:	10.1177/19322968221079867
PMID:	35193430
قاعدة البيانات:	MEDLINE

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تدمد:	1932-2968
DOI:	10.1177/19322968221079867