دورية أكاديمية
A home-based exercise program during COVID-19 pandemic: Perceptions and acceptability of juvenile systemic lupus erythematosus and juvenile idiopathic arthritis adolescents.
| العنوان: | A home-based exercise program during COVID-19 pandemic: Perceptions and acceptability of juvenile systemic lupus erythematosus and juvenile idiopathic arthritis adolescents. |
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| المؤلفون: | Sieczkowska SM; Applied Physiology and Nutrition Research Group, School of Physical Education and Sport, 2028133Universidade de Sao Paulo, Sao Paulo, Brazil.; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Astley C; Applied Physiology and Nutrition Research Group, School of Physical Education and Sport, 2028133Universidade de Sao Paulo, Sao Paulo, Brazil.; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Marques IG; Applied Physiology and Nutrition Research Group, School of Physical Education and Sport, 2028133Universidade de Sao Paulo, Sao Paulo, Brazil.; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Iraha AY; Applied Physiology and Nutrition Research Group, School of Physical Education and Sport, 2028133Universidade de Sao Paulo, Sao Paulo, Brazil.; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Franco TC; Applied Physiology and Nutrition Research Group, School of Physical Education and Sport, 2028133Universidade de Sao Paulo, Sao Paulo, Brazil.; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Ihara BP; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Martins Lavorato SS; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Lindoso L; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Demitrol Setoue DN; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Tanigava NY; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Campos LMA; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Pereira RMR; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Aikawa NE; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil.; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Roschel H; Applied Physiology and Nutrition Research Group, School of Physical Education and Sport, 2028133Universidade de Sao Paulo, Sao Paulo, Brazil.; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Queiroz LB; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Polanczyk GV; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Silva CA; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil.; Instituto da Criança e do Adolescente (ICr), Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil., Gualano B; Applied Physiology and Nutrition Research Group, School of Physical Education and Sport, 2028133Universidade de Sao Paulo, Sao Paulo, Brazil.; Rheumatology Division, Clinical Hospital, Hospital das Clinicas HCFMUSP, 2037884Faculdade de Medicina, Universidade de Sao Paulo, Sao Paulo, Brazil.; Food Research Center, 2028133University of Sao Paulo, Sao Paulo, Brazil. |
| المصدر: | Lupus [Lupus] 2022 Apr; Vol. 31 (4), pp. 443-456. Date of Electronic Publication: 2022 Mar 09. |
| نوع المنشور: | Journal Article; Randomized Controlled Trial |
| اللغة: | English |
| بيانات الدورية: | Publisher: SAGE Publications Country of Publication: England NLM ID: 9204265 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1477-0962 (Electronic) Linking ISSN: 09612033 NLM ISO Abbreviation: Lupus Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: London : SAGE Publications Original Publication: Houndmills, Basingstoke, Hampshire, UK : Scientific & Medical Division, Macmillan Press Ltd., c1991- |
| مواضيع طبية MeSH: | COVID-19* , Patient Acceptance of Health Care*, Arthritis, Juvenile/*therapy , Exercise Therapy/*methods , Lupus Erythematosus, Systemic/*therapy, Adolescent ; Brazil ; Exercise Therapy/psychology ; Female ; Humans ; Male ; Pandemics ; Quality of Life |
| مستخلص: | Objectives: To investigate the perceptions and acceptability of a home-based exercise intervention in systemic lupus erythematosus (JSLE) and juvenile idiopathic arthritis (JIA) adolescent patients during the COVID-19 pandemic, and to explore the effects of the intervention on health-related quality of life (HRQoL), sleep quality, and mental health conditions parameters. Methods: This was a randomized controlled trial of a 12-week, home-based exercise training program conducted between October and December 2020. During this period, social distancing measures were in place in Brazil to contain the spread of COVID-19. Adolescent patients diagnosed with JSLE and JIA participated in the study. Health-related qualitative and quantitative data were collected before and after the follow-up. Results: 21 JSLE patients and 30 JIA patients were analyzed. Six themes emerged from patients' feedback: 1) Suitability of the home-based format; 2) Appropriate trainer supervision, 3) Motivators and facilitators for the program; 4) Barriers to the program; 5) Health benefits; 6) Patients' suggestions to improve the program. Overall, data indicated that the intervention showed good acceptability and elicited improvements in the perceived HRQoL and fatigue in JIA and JSLE patients during the pandemic. However, further quantitative analyses with validated HRQoL, sleep quality, and mental health conditions instruments did not capture these benefits (p>0.05). Conclusion: Our main findings based on in-depth qualitative assessments suggest that a home-based exercise training program was suitable and well-accepted by adolescents with JSLE and JIA during the COVID-19 pandemic. Nonetheless, adherence was not high, particularly among JIA patients, suggesting that facilitators and barriers identified in the current study should be explored to improve the quality of new home-based exercise programs implementation, particularly in a future emerging crisis. |
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| فهرسة مساهمة: | Keywords: pediatric rheumatic diseases; physical activity; physical training; quality of life |
| تواريخ الأحداث: | Date Created: 20220310 Date Completed: 20220328 Latest Revision: 20240825 |
| رمز التحديث: | 20240826 |
| مُعرف محوري في PubMed: | PMC8914298 |
| DOI: | 10.1177/09612033221083273 |
| PMID: | 35264025 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 1477-0962 |
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| DOI: | 10.1177/09612033221083273 |