دورية أكاديمية
Fertility Discussions: Perspectives of Adolescents and Young Adults With Differences of Sex Development.
| العنوان: | Fertility Discussions: Perspectives of Adolescents and Young Adults With Differences of Sex Development. |
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| المؤلفون: | Papadakis JL; Northwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois., Poquiz JL; Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois., Buchanan CL; Children's Hospital Colorado, Aurora, Colorado, and University of Colorado Anschutz Medical Campus., Chan YM; Boston Children's Hospital, Boston, Massachusetts, and Harvard Medical School., Crerand CE; The Ohio State University and Nationwide Children's Hospital, Columbus, Ohio., Hansen-Moore J; The Ohio State University and Nationwide Children's Hospital, Columbus, Ohio., Kapa HM; Nationwide Children's Hospital, Columbus, Ohio., Nahata L; The Ohio State University and Nationwide Children's Hospital, Columbus, Ohio., Pratt KJ; The Ohio State University., Tishelman AC; Boston Children's Hospital, Boston, Massachusetts, and Harvard Medical School., Chen D; Northwestern University Feinberg School of Medicine and Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois. |
| المصدر: | Clinical practice in pediatric psychology [Clin Pract Pediatr Psychol] 2021 Dec; Vol. 9 (4), pp. 372-383. Date of Electronic Publication: 2020 Dec 03. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Educational Pub. Foundation of the American Psychological Association Country of Publication: United States NLM ID: 101607240 Publication Model: Print-Electronic Cited Medium: Print ISSN: 2169-4826 (Print) Linking ISSN: 21694826 NLM ISO Abbreviation: Clin Pract Pediatr Psychol Subsets: PubMed not MEDLINE |
| أسماء مطبوعة: | Original Publication: Washington, DC : Educational Pub. Foundation of the American Psychological Association |
| مستخلص: | Objective: Fertility-related health care and decision-making needs for youth with differences of sex development (DSD) are complex and vary by condition and the values and preferences of each individual and their partner and/or family. Discussing fertility implications can be a challenging aspect of clinician and family communication about a DSD diagnosis. This qualitative study assesses fertility-related communication experiences of adolescents and young adults (AYA) with DSD. Method: Participants included 97 AYA with DSD ages 12-26 years ( M = 18.5, SD = 3.9) who completed questionnaires on demographic and medical information and patient-clinician communication. A subsample of 33 AYA also completed semistructured interviews about experiences with fertility discussions. Results: Two major themes, each with subthemes, were identified: (1) understanding of fertility related to (1a) one's own fertility status, (1b) reproductive and parenting options, and (1c) emotional reactions to one's own fertility status and (2) conversations about fertility related to (2a) reflections on conversations, (2b) barriers, and (2c) advice. Conclusions: AYA perspectives in this study provide important information about how youth with DSD learn about their fertility status, the impact their fertility status has on them, and the fertility-related conversations they have with their providers and families. Specific recommendations for providers and parents or caregivers include the following: inform youth of their fertility status as early as possible; be direct but patient in delivering information; begin by giving basic information and provide more detail as the conversation unfolds; revisit the conversation over time to allow for further discussion or information-seeking; offer additional information or resources, including behavioral health resources. |
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| معلومات مُعتمدة: | R21 HD089526 United States HD NICHD NIH HHS |
| فهرسة مساهمة: | Keywords: AYA; DSD; fertility counseling; intersex conditions; qualitative |
| تواريخ الأحداث: | Date Created: 20220321 Latest Revision: 20220329 |
| رمز التحديث: | 20231215 |
| مُعرف محوري في PubMed: | PMC8932642 |
| DOI: | 10.1037/cpp0000373 |
| PMID: | 35310824 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 2169-4826 |
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| DOI: | 10.1037/cpp0000373 |