دورية أكاديمية
أعرض في EDS

Social Determinants of Health Data Availability for Patients with Eye Conditions.

التفاصيل البيبلوغرافية
العنوان: Social Determinants of Health Data Availability for Patients with Eye Conditions.
المؤلفون: Lee TC; Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, California.; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California., Saseendrakumar BR; Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, California.; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California., Nayak M; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California., Chan AX; Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, California.; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California., McDermott JJ 4th; Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, California.; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California., Shahrvini B; Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, California.; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California., Ye GY; Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, California.; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California., Sitapati AM; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California.; Department of Medicine, University of California, San Diego, La Jolla, California., Nebeker C; Herbert Wertheim School of Public Health and Human Longevity Science, University of California, San Diego, La Jolla, California., Baxter SL; Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, California.; UCSD Health Department of Biomedical Informatics, University of California, San Diego, La Jolla, California.
المصدر: Ophthalmology science [Ophthalmol Sci] 2022 Jun; Vol. 2 (2). Date of Electronic Publication: 2022 Apr 05.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Elsevier, B.V Country of Publication: Netherlands NLM ID: 9918230896206676 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2666-9145 (Electronic) Linking ISSN: 26669145 NLM ISO Abbreviation: Ophthalmol Sci Subsets: PubMed not MEDLINE
أسماء مطبوعة: Original Publication: [Amsterdam] : Elsevier, B.V., [2021]-
مستخلص: Purpose: To quantify and characterize social determinants of health (SDoH) data coverage using single-center electronic health records (EHRs) and the National Institutes of Health All of Us research program.
Design: Retrospective cohort study from June 2014 through June 2021.
Participants: Adults 18 years of age or older with a diagnosis of diabetic retinopathy, glaucoma, cataracts, or age-related macular degeneration.
Methods: For All of Us, research participants completed online survey forms as part of a nationwide prospective cohort study. In local EHRs, patients were selected based on diagnosis codes.
Main Outcome Measures: Social determinants of health data coverage, characterized by the proportion of each disease cohort with available data regarding demographics and socioeconomic factors.
Results: In All of Us, we identified 23 806 unique adult patients, of whom 2246 had a diagnosis of diabetic retinopathy, 13 448 had a diagnosis of glaucoma, 6634 had a diagnosis of cataracts, and 1478 had a diagnosis of age-related macular degeneration. Survey completion rates were high (99.5%-100%) across all cohorts for demographic information, overall health, income, education, and lifestyle. However, health care access (12.7%-29.4%), housing (0.7%-1.1%), social isolation (0.2%-0.3%), and food security (0-0.1%) showed significantly lower response rates. In local EHRs, we identified 80 548 adult patients, of whom 6616 had a diagnosis of diabetic retinopathy, 26 793 had a diagnosis of glaucoma, 40 427 had a diagnosis of cataracts, and 6712 had a diagnosis of age-related macular degeneration. High data coverage was found across all cohorts for variables related to tobacco use (82.84%-89.07%), alcohol use (77.45%-83.66%), and intravenous drug use (84.76%-93.14%). However, low data coverage (< 50% completion) was found for all other variables, including education, finances, social isolation, stress, physical activity, food insecurity, and transportation. We used chi-square testing to assess whether the data coverage varied across different disease cohorts and found that all fields varied significantly (P < 0.001).
Conclusions: The limited and highly variable data coverage in both local EHRs and All of Us highlights the need for researchers and providers to develop SDoH data collection strategies and to assemble complete datasets.
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معلومات مُعتمدة: OT2 OD026556 United States OD NIH HHS; OT2 OD026548 United States OD NIH HHS; DP5 OD029610 United States OD NIH HHS; P30 EY022589 United States EY NEI NIH HHS; OT2 OD026551 United States OD NIH HHS; OT2 OD026552 United States OD NIH HHS; OT2 OD026549 United States OD NIH HHS; OT2 OD026555 United States OD NIH HHS; OT2 OD026550 United States OD NIH HHS; OT2 OD026553 United States OD NIH HHS; OT2 OD026557 United States OD NIH HHS; OT2 OD026554 United States OD NIH HHS
فهرسة مساهمة: Keywords: Biomedical informatics; Clinical informatics; Data availability; Electronic health record; Social determinants of health
تواريخ الأحداث: Date Created: 20220606 Latest Revision: 20240211
رمز التحديث: 20240211
مُعرف محوري في PubMed: PMC9162036
DOI: 10.1016/j.xops.2022.100151
PMID: 35662804
قاعدة البيانات: MEDLINE
الوصف
تدمد:2666-9145
DOI:10.1016/j.xops.2022.100151