دورية أكاديمية
أعرض في EDS

Validation of the parent global assessment as a health-related quality of life measure in juvenile idiopathic arthritis: results from ReACCh-Out.

التفاصيل البيبلوغرافية
العنوان: Validation of the parent global assessment as a health-related quality of life measure in juvenile idiopathic arthritis: results from ReACCh-Out.
المؤلفون: Oen K; Department of Pediatrics and Child Health, University of Manitoba, Winnipeg., Toupin-April K; School of Rehabilitation Sciences and Department of Pediatrics, University of Ottawa, Children's Hospital of Eastern Ontario Research Institute and Institut du Savoir Montfort, Ottawa., Feldman BM; Division of Rheumatology, The Hospital for Sick Children, and Departments of Pediatrics and Medicine, and Institute of Health Policy, Management, and Evaluation, University of Toronto, Toronto., Berard RA; Pediatric Rheumatology, Children's Hospital, London Health Sciences Centre, London., Duffy CM; Children's Hospital of Eastern Ontario and Department of Pediatrics, University of Ottawa, Ottawa., Tucker LB; Division of Pediatric Rheumatology, British Columbia Children's Hospital, and Department of Pediatrics, University of British Columbia, Vancouver., Tian J; Department of Statistics and Actuarial Science, Simon Fraser University, Burnaby., Rumsey DG; Paediatric Rheumatology, Stollery Children's Hospital and Department of Pediatrics, University of Alberta, Edmonton, Canada., Guzman J; Division of Pediatric Rheumatology, British Columbia Children's Hospital, and Department of Pediatrics, University of British Columbia, Vancouver.
مؤلفون مشاركون: ReACCh-Out investigators
المصدر: Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2023 Feb 23; Vol. 62 (SI2), pp. SI152-SI162.
نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't
اللغة: English
بيانات الدورية: Publisher: Oxford University Press Country of Publication: England NLM ID: 100883501 Publication Model: Print Cited Medium: Internet ISSN: 1462-0332 (Electronic) Linking ISSN: 14620324 NLM ISO Abbreviation: Rheumatology (Oxford) Subsets: MEDLINE
أسماء مطبوعة: Original Publication: Oxford, UK : Avenel, N.J. : Oxford University Press ; Distributed by Mercury International, c1999-
مواضيع طبية MeSH: Quality of Life*/psychology , Arthritis, Juvenile*/diagnosis , Arthritis, Juvenile*/psychology, Humans ; Health Status ; Reproducibility of Results ; Canada ; Parents ; Disability Evaluation ; Psychometrics
مستخلص: Objectives: To (i) validate the JIA parent global assessment (parent global) as a health-related quality of life (HRQoL) instrument; (ii) evaluate measurement properties of accepted HRQoL measures relative to those of the parent global; and (iii) assess causal pathways determining parent global scores.
Methods: Data from the Research in Arthritis in Canadian Children emphasizing outcomes (ReACCh-Out) cohort were used. Measurement properties were assessed in 344 patients at enrolment and 6 months later. Causal pathways were tested by structural equation modelling to understand root causes and mediators leading to parent global scores.
Results: Construct validity was supported by Spearman correlations of 0.53-0.70 for the parent global with the Juvenile Arthritis Quality of Life Questionnaire, Quality of My Life health scale (HRQoML), Pediatric Quality of Life Inventory (PedsQL)-Parent, and Child Health Questionnaire (CHQ)-Physical. Exceptions were PedsQL-Child (0.44) and CHQ-Psychosocial (0.31). Correlations were lower (0.14-0.49) with disease activity measures (physician global assessment of disease activity, active joint count, ESR). Responsiveness of the parent global to improvement according to parent ratings (0.51) was acceptable and within the range (0.32-0.71) of that of other measures. Reliability estimates and measurement errors for all measures were unsatisfactory, likely due to the prolonged time between assessments. Causal pathways for the parent global matched those previously reported for HRQoML.
Conclusions: Our results offer support for the parent global as a valid measure of HRQoL for JIA. If confirmed, existing studies using the parent global may be re-interpreted, enhancing our knowledge of HRQoL in children with JIA.
(© The Author(s) 2022. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For permissions, please email: journals.permissions@oup.com.)
التعليقات: Comment in: Rheumatology (Oxford). 2023 Jun 1;62(6):2023-2024. (PMID: 36264131)
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معلومات مُعتمدة: QNT 69301 Canada CIHR
فهرسة مساهمة: Investigator: R Bolaria; D Cabral; K Gross; K Houghton; K Morishita; R Petty; SE Turvey; J Ellsworth; S Benseler; N Johnson; P Miettunen; H Schmeling; M Larche; B Cameron; RM Laxer; L Spiegel; R Schneider; E Silverman; RSM Yeung; DM Levy; S Tse; M Gibbon; J Roth; KW Duffy; AL Chetaille; J Dorval; G Boire; A Bruns; S Campillo; G Chedeville; C LeBlanc; R Scuccimarri; E Haddad; CS Cyr; D Feldman; B Lang; SE Ramsey; E Stringer; AM Huber; P Dancey
Keywords: JIA; Parent global assessment; health-related quality of life
تواريخ الأحداث: Date Created: 20220617 Date Completed: 20230227 Latest Revision: 20230618
رمز التحديث: 20240628
مُعرف محوري في PubMed: PMC9949712
DOI: 10.1093/rheumatology/keac350
PMID: 35713497
قاعدة البيانات: MEDLINE
الوصف
تدمد:1462-0332
DOI:10.1093/rheumatology/keac350