دورية أكاديمية
Care Needs of Adolescents and Young Adults with Cancer Undergoing Active Treatment in South Korea: A Mixed Methods Study.
| العنوان: | Care Needs of Adolescents and Young Adults with Cancer Undergoing Active Treatment in South Korea: A Mixed Methods Study. |
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| المؤلفون: | Park M; Department of Pediatric Hematology-Oncology, Yonsei Cancer Center, Yonsei University Health System, Seoul, South Korea.; Department of Nursing, Yonsei University Graduate School, Seoul, South Korea., Kwon SY; Department of Pediatric Hematology-Oncology, Yonsei Cancer Center, Yonsei University Health System, Seoul, South Korea.; Palliative Care Center, Yonsei Cancer Center, Yonsei University Health System, Seoul, South Korea., Yun H; College of Nursing and Brain Korea 21 FOUR Project, Yonsei University, Seoul, South Korea., Lyu CJ; Department of Pediatric Hematology-Oncology, Yonsei Cancer Center, Yonsei University Health System, Seoul, South Korea.; Department of Pediatrics, Yonsei University College of Medicine, Seoul, South Korea., Han JW; Department of Pediatric Hematology-Oncology, Yonsei Cancer Center, Yonsei University Health System, Seoul, South Korea.; Department of Pediatrics, Yonsei University College of Medicine, Seoul, South Korea., Hahn SM; Department of Pediatric Hematology-Oncology, Yonsei Cancer Center, Yonsei University Health System, Seoul, South Korea.; Department of Pediatrics, Yonsei University College of Medicine, Seoul, South Korea., Jung M; Department of Nursing, Yonsei University Graduate School, Seoul, South Korea.; Division of Medical Oncology, Department of Internal Medicine, Yonsei Cancer Center, Yonsei University College of Medicine, Seoul, South Korea., Rha SY; Division of Medical Oncology, Department of Internal Medicine, Yonsei Cancer Center, Yonsei University College of Medicine, Seoul, South Korea.; Department of Internal Medicine, Graduate School of Medical Science, Brain Korea 21 Project, Yonsei University College of Medicine, Seoul, South Korea., Beom SH; Division of Medical Oncology, Department of Internal Medicine, Yonsei Cancer Center, Yonsei University College of Medicine, Seoul, South Korea., Lee CK; Division of Medical Oncology, Department of Internal Medicine, Yonsei Cancer Center, Yonsei University College of Medicine, Seoul, South Korea., Jang H; Provider Partners Health Plan, Linthicum Heights, Maryland, USA. |
| المصدر: | Journal of adolescent and young adult oncology [J Adolesc Young Adult Oncol] 2023 Jun; Vol. 12 (3), pp. 398-407. Date of Electronic Publication: 2022 Jul 29. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Mary Ann Liebert, Inc Country of Publication: United States NLM ID: 101543508 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2156-535X (Electronic) Linking ISSN: 21565333 NLM ISO Abbreviation: J Adolesc Young Adult Oncol Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: New Rochelle, NY : Mary Ann Liebert, Inc. |
| مواضيع طبية MeSH: | Communication* , Neoplasms*/therapy, Child ; Humans ; Adolescent ; Young Adult ; Aged ; Cross-Sectional Studies ; Focus Groups ; Republic of Korea |
| مستخلص: | Purpose: Adolescents and young adults (AYAs) with cancer have special care needs that are different from those of children and older adults with cancer. This study assessed the perspective and experience of AYAs with cancer in South Korea to identify their care needs. Methods: This study used a convergent mixed-methods design. From July 2020 to November 2021, AYAs with cancer ( N = 77; 15-39 years of age) participated in a quantitative cross-sectional study, using a tool developed by our study team. In May 2021, a qualitative focus group was conducted with 10 AYAs with cancer. Integrated analyses were conducted concurrently by reporting the quantitative and qualitative findings together. Results: Quantitative findings revealed that the highest care need domains were communication and information, whereas the highest care priority item was the management of pain and symptoms occurring during the treatment. Qualitative findings revealed 12 themes across 5 domains. Comparing and merging of the quantitative and qualitative data resulted in eight confirmed themes and four expanded findings, including knowing people who overcame similar illnesses, fear of death, dedicated space, and a program for AYAs with cancer. Conclusion: When developing and implementing programs and health care services, especially in countries with no established program or cancer specialty unit for AYAs with cancer, it is important to consider the special care needs and priorities of AYAs with cancer. This mixed methods study provided empirical evidence to help understand and prioritize the needs of AYAs with cancer undergoing active treatment in South Korea. |
| فهرسة مساهمة: | Keywords: AYAs; cancer; care needs; mixed methods; needs assessment |
| تواريخ الأحداث: | Date Created: 20220729 Date Completed: 20230619 Latest Revision: 20230619 |
| رمز التحديث: | 20230620 |
| DOI: | 10.1089/jayao.2022.0030 |
| PMID: | 35904961 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 2156-535X |
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| DOI: | 10.1089/jayao.2022.0030 |