دورية أكاديمية
Experiences of family caregivers of persons living with dementia with and without a smart- clothes assisted home nursing program during the heightened COVID-19 alert.
| العنوان: | Experiences of family caregivers of persons living with dementia with and without a smart- clothes assisted home nursing program during the heightened COVID-19 alert. |
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| المؤلفون: | Sung YL; School of Nursing, Change Gung University, Guishan District, 259 Wenhua 1st Road, Taoyuan, 33302, Taiwan, ROC., Huang HL; Department of Gerontology and Health Care Management, College of Nursing, Chang Gung University of Science and Technology, Taoyuan, Taiwan, ROC.; Geriatric and Long-Term Care Research Center, Chang Gung University of Science and Technology, Taoyuan, Taiwan, ROC.; Dementia Center, Department of Neurology, Taoyuan Chang Gung Memorial Hospital, Taoyuan, Taiwan, ROC., Lin CC; Department of Computer Science and Information Engineering, Chang Gung University, Taoyuan, Taiwan, ROC., Kröger T; Department of Social Sciences and Philosophy, University of Jyväskylä, Jyväskylä, Finland.; Centre for Care Research West, Western Norway University of Applied Sciences, Bergen, Norway., Hsu WC; Dementia Center, Department of Neurology, Taoyuan Chang Gung Memorial Hospital, Taoyuan, Taiwan, ROC., Hsu JL; Department of Neurology, New Taipei Municipal Tu Cheng Hospital, Chang Gung Memorial Hospital and Chang Gung University, New Taipei City, Taiwan, ROC.; Graduate Institute of Humanities in Medicine and Research Center for Brain and Consciousness, Taipei Medical University Shuang Ho Hospital, Taipei, Taiwan, ROC., Lin YE; Department of Nursing, Linkou Chang Gung Memorial Hospital, Taoyuan, Taiwan, ROC., Shyu YL; School of Nursing, Change Gung University, Guishan District, 259 Wenhua 1st Road, Taoyuan, 33302, Taiwan, ROC. yeaing@mail.cgu.edu.tw.; Department of Gerontology and Health Care Management, College of Nursing, Chang Gung University of Science and Technology, Taoyuan, Taiwan, ROC. yeaing@mail.cgu.edu.tw.; Dementia Center, Department of Neurology, Taoyuan Chang Gung Memorial Hospital, Taoyuan, Taiwan, ROC. yeaing@mail.cgu.edu.tw.; Healthy Aging Research Center, Chang Gung University, Taoyuan, Taiwan, ROC. yeaing@mail.cgu.edu.tw.; Department of Nursing, Kaohsiung Chang Gung Memorial Hospital, Kaohsiung, Taiwan, ROC. yeaing@mail.cgu.edu.tw. |
| المصدر: | BMC geriatrics [BMC Geriatr] 2022 Aug 23; Vol. 22 (1), pp. 697. Date of Electronic Publication: 2022 Aug 23. |
| نوع المنشور: | Journal Article; Research Support, Non-U.S. Gov't |
| اللغة: | English |
| بيانات الدورية: | Publisher: BioMed Central Country of Publication: England NLM ID: 100968548 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2318 (Electronic) Linking ISSN: 14712318 NLM ISO Abbreviation: BMC Geriatr Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: London : BioMed Central, [2001]- |
| مواضيع طبية MeSH: | COVID-19* , Dementia*/epidemiology , Dementia*/therapy, Caregivers/psychology ; Clothing ; Home Nursing ; Humans ; Pandemics |
| مستخلص: | Background: The COVID-19 pandemic has required restrictions of daily activities, which has been found to impact the lives of persons living with dementia (PLWDs) and their family caregivers, who have multiple care demands. The lack of relevant studies in Taiwan emphasized the need to explore the experiences of family caregivers of older PLWDs faced with the intensified restrictions to control the spread of COVID-19, and the impact of the availability of a smart-clothes home nursing program. Methods: This qualitative study used semi-structured interviews with family caregivers of older PLWDs. Participants were recruited from dementia clinics of a medical center in northern Taiwan from a subset of a sample from a larger study on smart-clothes assisted home nursing care. A total of 12 family caregivers who participated in the original study were interviewed during the follow-up period; seven family caregivers of a PLWD wearing a smart-vest, which transmitted information to a home care nurse; five caregivers of a PLWD not wearing a smart-vest. Interviews were conducted by telephone because the conditions of the pandemic prevented face-to-face interviews. Recorded interviews were transcribed and analyzed using content analysis. Results: Interview data showed family caregivers' felt the care recipient's health was compromised and functional conditions intensified as Covid-19-related pandemic restrictions increased. Specific concerns included a lack social interactions, decreased daily activity levels, loss of interest and lack of motivation for activities, increased mood and behavioral problems, a decline in physical function and an increase in health problems. Family caregivers were also impacted by these restrictions, with significant increases in severity of caregiver role strain, including feeling trapped, a lack of in-home support, profound powerlessness, and worries about the PLWD contracting the coronavirus. The smart-clothes assisted home nursing care program offered supplementary support to family caregivers by providing on-time interactions, helping them manage health problems, enhancing predictability of the care recipient's behaviors, and providing caregivers with emotional support. Conclusions: The findings of this study support alternative care such as implementation of technology-assisted home health services to meet caregiver needs to facilitate family caregiving of PLWDs during the necessary restrictions in activities implemented during the COVID-19 pandemic. Trial Registration: ClinicalTrials.gov Protocol Record NCT05063045. (© 2022. The Author(s).) |
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| فهرسة مساهمة: | Keywords: COVID-19 pandemic; Dementia; Family caregivers; Homecare nursing; Smart-clothes |
| سلسلة جزيئية: | ClinicalTrials.gov NCT05063045 |
| تواريخ الأحداث: | Date Created: 20220822 Date Completed: 20220824 Latest Revision: 20220831 |
| رمز التحديث: | 20240628 |
| مُعرف محوري في PubMed: | PMC9395831 |
| DOI: | 10.1186/s12877-022-03379-8 |
| PMID: | 35996089 |
| قاعدة البيانات: | MEDLINE |
Find this article in full text from Springer Verlag. 
Full Text Finder | تدمد: | 1471-2318 |
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| DOI: | 10.1186/s12877-022-03379-8 |