دورية أكاديمية
Comprehension and Decision-Making Capacity Questionnaire About Palliative Care and Advance Care Planning: A Delphi Study.
| العنوان: | Comprehension and Decision-Making Capacity Questionnaire About Palliative Care and Advance Care Planning: A Delphi Study. |
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| المؤلفون: | Trevizan FB; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil., Paiva CE; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil., Julião M; Community Support Team in Palliative Care - Sintra, Portugal., de Oliveira Valentino TC; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil., Miwa MU; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil., Mingardi M; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil., D'Almeida Preto D; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil., Ciorlia JB; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil., de Angelis Nascimento MS; Physician and researcher - 67766Barretos Cancer Hospital, Brazil., Kovács MJ; Department of Psychology of Learning, Development and Personality Psychology in 28133University of São Paulo (USP) - São Paulo, Brazil., Dadalto L; 241167Newton Paiva University Center - Belo Horizonte, Brazil., de Oliveira LC; National Cancer Institute José Alencar Gomes da Silva (INCA) - Palliative Care Unit. Rio de Janeiro, Brazil., da Costa Rosa KS; National Cancer Institute José Alencar Gomes da Silva (INCA) - Palliative Care Unit. Rio de Janeiro, Brazil., Ribeiro Paiva BS; GPQual - Research Group on Palliative Care and Quality of Life - 67766Barretos Cancer Hospital, Brazil. |
| المصدر: | Journal of palliative care [J Palliat Care] 2023 Jan; Vol. 38 (1), pp. 41-51. Date of Electronic Publication: 2022 Sep 27. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: SAGE Country of Publication: United States NLM ID: 8610345 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2369-5293 (Electronic) Linking ISSN: 08258597 NLM ISO Abbreviation: J Palliat Care Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: 2017- : Thousand Oaks, CA : SAGE Original Publication: Toronto, Ont. : [University of Toronto Press, c1985- |
| مواضيع طبية MeSH: | Advance Care Planning* , Breast Neoplasms*/therapy, Humans ; Female ; Palliative Care ; Delphi Technique ; Comprehension ; Surveys and Questionnaires |
| مستخلص: | Objective(s): To develop a questionnaire that assesses the level of comprehension and decision-making capacity of patients with breast cancer about palliative care and advance care planning. Methods: Questionnaire items were based on the scientific literature. Delphi Consensus, a three-round survey with experts (n = 14), evaluated the relevance, clarity, and redundancies of the items. A pretest with breast cancer patients (n = 15) evaluated whether they comprehended each item and identified doubts or discomforts. Results: The initial questionnaire was composed of 38 items. After the Delphi, 18 items were restructured, six were added, and 16 were removed. In the pretest phase, all items with the survey header, guidelines, and Likert model were evaluated. All items accomplished ≥80% cut-off score and were kept as in the original version. The final version of the questionnaire have 28 itens and five domains: determination, responsibility, independence, self-knowledge, and knowledge of reality. Conclusions: This study represents the first step in the development of a questionnaire that may be used in oncology clinical practice. The main findings revealed that Delphi and pretesting increased the quality of the questionnaire, making it compelling to assess breast cancer patients' comprehension and decision-making capacity about PC and ACP. |
| فهرسة مساهمة: | Keywords: Delphi study; advance care planning; comprehension; decision; palliative care; questionnaire |
| تواريخ الأحداث: | Date Created: 20220928 Date Completed: 20221115 Latest Revision: 20221115 |
| رمز التحديث: | 20221213 |
| DOI: | 10.1177/08258597221128676 |
| PMID: | 36168276 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 2369-5293 |
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| DOI: | 10.1177/08258597221128676 |