Editorial & Opinion
How to plan, do and report patient and public involvement in research.
العنوان: | How to plan, do and report patient and public involvement in research. |
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المؤلفون: | Partridge A; Corporate Cancer Team, Lancashire Teaching Hospitals NHS Foundation Trust, Preston, UK., Hitchman J; York, UK., Savic L; Department of Anaesthesia, Leeds Teaching Hospitals NHS Trust, Leeds, UK., Shelton CL; Department of Anaesthesia, Wythenshawe Hospital, Manchester University NHS Foundation Trust, Manchester, UK.; Lancaster Medical School, Faculty of Health and Medicine, Lancaster University, Lancaster, UK. |
المصدر: | Anaesthesia [Anaesthesia] 2023 Jun; Vol. 78 (6), pp. 779-783. Date of Electronic Publication: 2022 Oct 27. |
نوع المنشور: | Editorial |
اللغة: | English |
بيانات الدورية: | Publisher: Wiley-Blackwell Country of Publication: England NLM ID: 0370524 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-2044 (Electronic) Linking ISSN: 00032409 NLM ISO Abbreviation: Anaesthesia Subsets: MEDLINE |
أسماء مطبوعة: | Publication: Oxford, UK : Wiley-Blackwell Original Publication: London, Academic Press; New York, Grune & Stratton. |
مواضيع طبية MeSH: | Patient Participation* , Biomedical Research*, Humans |
References: | Charlton JI. Nothing About Us Without Us: Disability Oppression and Empowerment. Berkeley: University of California Press, 1998. INVOLVE. Briefing note two: what is public involvement in research? . https://www.invo.org.uk/posttyperesource/what-is-public-involvement-in-research/ (accessed 29/09/2022). National Institute for Health and Care Research. Briefing notes for researchers - public involvement in NHS, health and social care research. 2021. https://www.nihr.ac.uk/documents/briefing-notes-for-researchers-public-involvement-in-nhs-health-and-social-care-research/27371 (accessed 24/09/22). Petit-Zeman S, Firkins L, Scadding JW. The James Lind Alliance: tackling research mismatches. Lancet 2010; 376: 667-9. Bagley HJ, Short H, Harman NL, et al. A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress. Research Involvement and Engagement 2016; 2: 15. Ocloo J, Matthews R. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. British Medical Journal Quality and Safety 2016; 25: 626-32. Jackson T, Pinnock H, Liew SM, et al. Patient and public involvement in research: from tokenistic box ticking to valued team members. BMC Medicine 2020; 18: 79. Martin GP. Representativeness, legitimacy and power in public involvement in health-service management. Social Science and Medicine 2008; 67: 1757-65. Robbins M, Tufte J, Hsu C. Learning to “swim” with the experts: experiences of two patient co-investigators for a project funded by the patient-centered outcomes research institute. Permanente Journal 2016; 20: 85-8. Elliott J, Lodemore M, Minogue V, Wellings A. Public Co-Applicants in Research - Guidance on Roles and Responsibilities. Southampton: INVOLVE. 2019. https://www.invo.org.uk/wp-content/uploads/2019/04/Co-AppsGuidance2019.pdf (accessed 12/10/2022). Hickey G, Brearley S, Coldham T, et al. Guidance on Co-Producing a Research Project. Southampton: INVOLVE. 2018. https://www.invo.org.uk/wp-content/uploads/2019/04/Copro_Guidance_Feb19.pdf (accessed 12/10/2022). Ratcliffe AM, Zhai B, Guan Y, Jackson DG, Southwest Anaesthesia Research Matrix, Sneyd JR. Patient-centred measurement of recovery from day-case surgery using wrist worn accelerometers: a pilot and feasibility study. Anaesthesia 2020; 76: 785-97. Shelton CL, Goodwin DG. How to plan and report a qualitative study. Anaesthesia 2022. Epub 21 June. https://doi.org/10.1111/anae.15788. Griffiths F, Svantesson M, Bassford C, Dale J, Blake C, McCreedy A, Slowther A-M. Decision-making around admission to intensive care in the UK pre-COVID-19: a multicentre ethnographic study. Anaesthesia 2021; 76: 489-99. International Committee of Medical Journal Editors. Recommendations for the conduct, reporting, editing, and publication of scholarly work in medical journals. 2022. https://www.icmje.org/icmje-recommendations.pdf (accessed 27/09/2022). Hutchings A, O'Neill S, Lugo-Palacios D, et al. Effectiveness of emergency surgery for five common acute conditions: an instrumental variable analysis of a national routine database. Anaesthesia 2022; 77: 865-81. Shelton CL, Klein AA, Bailey CR, El-Boghdadly K. The Anaesthesia case report (ACRE) checklist: a tool to promote high-quality reporting of cases in peri-operative practice. Anaesthesia 2021; 76: 1077-81. Agarwal S, El-Boghdadly K. Position statement from the editors of Anaesthesia on equity, diversity and inclusion. Anaesthesia 2022; 77: 1018-22. National Institute for Health and Care Research. Payment guidance for researchers and professionals. 2022. https://www.nihr.ac.uk/documents/payment-guidance-for-researchers-and-professionals/27392 (accessed 27/09/2022). National Institute for Health and Care Research. Strengthening our commitment to equality, diversity, inclusion and patient and public involvement and engagement (PPIE). 2020. https://www.nihr.ac.uk/documents/strengthening-our-commitment-to-equality-diversity-inclusion-and-patient-and-public-involvement-and-engagement-ppie/24697 (accessed 27/09/2022). National Institute for Health and Care Research. Going the extra mile: improving the Nation's health and wellbeing through public involvement in research. 2015. https://www.nihr.ac.uk/documents/about-us/our-contribution-to-research/how-we-involve-patients-carers-and-the-public/Going-the-Extra-Mile.pdf (accessed 29/09/2022). Staniszewska S, Brett J, Simera I, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. British Medical Journal 2017; 358: 3453. |
فهرسة مساهمة: | Keywords: community participation; methods; patient participation; research design |
تواريخ الأحداث: | Date Created: 20221027 Date Completed: 20230523 Latest Revision: 20230523 |
رمز التحديث: | 20231215 |
DOI: | 10.1111/anae.15901 |
PMID: | 36301571 |
قاعدة البيانات: | MEDLINE |
تدمد: | 1365-2044 |
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DOI: | 10.1111/anae.15901 |