دورية أكاديمية
أعرض في EDS

Economic hardship among principal family caregivers of cancer patients at Khartoum oncology hospital 2020: a cross-sectional study.

التفاصيل البيبلوغرافية
العنوان: Economic hardship among principal family caregivers of cancer patients at Khartoum oncology hospital 2020: a cross-sectional study.
المؤلفون: Elgadi A; Faculty of Medicine, University of Khartoum, Khartoum, Sudan., Hisham A; Faculty of Medicine, University of Khartoum, Khartoum, Sudan., Ahmed HA; Faculty of Medicine, University of Khartoum, Khartoum, Sudan. Hayatabdoallah1997@gmail.com., Elzaki HA; Assistant professor community medicine department National University, Khartoum, Sudan., Shaaban KMA; Associate professor community medicine department University of Khartoum, Khartoum, Sudan., Dafaalla O; Faculty of Medicine, University of Khartoum, Khartoum, Sudan., Elkhidir OA; Assistant professor community medicine department National University, Khartoum, Sudan., Alrawa SS; Faculty of Medicine, University of Khartoum, Khartoum, Sudan., Mahmoud TA; Assistant Professor National University, Khartoum, Sudan., Wadidi W; Faculty of Medicine, University of Khartoum, Khartoum, Sudan.
المصدر: BMC health services research [BMC Health Serv Res] 2022 Dec 08; Vol. 22 (1), pp. 1497. Date of Electronic Publication: 2022 Dec 08.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE
أسماء مطبوعة: Original Publication: London : BioMed Central, [2001-
مواضيع طبية MeSH: Caregivers* , Neoplasms*/therapy, Humans ; Male ; Cross-Sectional Studies ; Poverty ; Hospitals
مستخلص: Background: The impact of cancer extends beyond patients and consumes their families. Family members are widely recognized as informal caregivers. The economic burden on family caregivers is increased with new treatments, prolonged survival, and reduced stay in the acute care setting. This is especially true in African countries where family bonds are sacred and health system is fragile that they need to pay out of pocket for care. The aim of this study is to estimate the perceived caregivers' economic burden in the subsequent aspects: financial strain, inability to make ends meet, not enough money for necessities, and economic adjustments/cutbacks.
Method: This study was a quantitative, descriptive cross-sectional study conducted at Khartoum oncology hospital. Included 143 caregivers of cancer patients. Data were collected through face-to-face interviews using the socio-demographic Questionnaire and Economic Hardship Questionnaire (EHQ).
Results: One hundred forty-three cancer patients and their caregivers were included. 56.6% of patients were females, and about 32.2% were aged 51-65 years. The most common cancer types were breast cancer and leukemia. Roughly 33% of patients had stage IV cancer on presentation, and about 53.9% received chemotherapy. Unlike cancer patients, (47.6%) of family caregivers were aged 18-34 years, yet they were mainly females (54.4%). Most of them (34.3%) were unemployed, with a mean monthly gross income of 53.3 dollars, while the mean household monthly gross income was 113.0 dollars. The mean score of the economic hardship scale was 35.8 out of 64. Most of the caregivers experience no difficulties affording necessities. However, they experience difficulties with medical and leisure activities. There was no significant association between caregiver economic hardship and cancer patient characteristics (patients' age, cancer stage, and treatment type). However, there was a significant association between caregivers' economic hardships and their gender, marital status, educational level, occupation, caregiver monthly gross income, and household monthly gross income.
Conclusion: The study findings suggest a moderate financial burden among cancer caregivers. The predicting factors include being single, a student, male, of higher educational level, and lower income. Financial difficulties are associated with maladaptive behavior and should come to light.
(© 2022. The Author(s).)
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فهرسة مساهمة: Keywords: Cancer; Caregivers; Economics; Oncology; Sudan
تواريخ الأحداث: Date Created: 20221209 Date Completed: 20221215 Latest Revision: 20221215
رمز التحديث: 20240628
مُعرف محوري في PubMed: PMC9733138
DOI: 10.1186/s12913-022-08918-y
PMID: 36482362
قاعدة البيانات: MEDLINE
الوصف
تدمد:1472-6963
DOI:10.1186/s12913-022-08918-y