دورية أكاديمية
أعرض في EDS

Adaptation of Serious Illness Care Program to be delivered via telehealth for older patients with hematologic malignancy.

التفاصيل البيبلوغرافية
العنوان: Adaptation of Serious Illness Care Program to be delivered via telehealth for older patients with hematologic malignancy.
المؤلفون: LoCastro M; School of Medicine and Dentistry, University of Rochester, Rochester, NY., Sanapala C; Burrell College of Osteopathic Medicine, New Mexico State University, Las Cruces, NM., Mendler JH; Division of Hematology/Oncology, Department of Medicine, James P. Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, NY., Norton S; School of Nursing, University of Rochester, Rochester, NY., Bernacki R; Department of Palliative Care, Harvard Medical School, Boston, MA., Carroll T; Division of Palliative Care, Department of Medicine, University of Rochester Medical Center, Rochester, NY., Klepin HD; Department of Hematology/Oncology, Wake Forest School of Medicine, Winston-Salem, NC., Watson E; Department of Psychology, Princeton University, Princeton, NJ., Liesveld J; Division of Hematology/Oncology, Department of Medicine, James P. Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, NY., Huselton E; Division of Hematology/Oncology, Department of Medicine, James P. Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, NY., O'Dwyer K; Division of Hematology/Oncology, Department of Medicine, James P. Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, NY., Baran A; Division of Hematology/Oncology, Department of Medicine, James P. Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, NY., Flannery M; School of Nursing, University of Rochester, Rochester, NY., Kluger B; Division of Palliative Care, Department of Medicine, University of Rochester Medical Center, Rochester, NY.; Department of Neurology, University of Rochester Medical Center, Rochester, NY., Loh KP; Division of Hematology/Oncology, Department of Medicine, James P. Wilmot Cancer Institute, University of Rochester Medical Center, Rochester, NY.
المصدر: Blood advances [Blood Adv] 2023 May 09; Vol. 7 (9), pp. 1871-1884.
نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
اللغة: English
بيانات الدورية: Publisher: American Society of Hematology Country of Publication: United States NLM ID: 101698425 Publication Model: Print Cited Medium: Internet ISSN: 2473-9537 (Electronic) Linking ISSN: 24739529 NLM ISO Abbreviation: Blood Adv Subsets: MEDLINE
أسماء مطبوعة: Original Publication: Washington, DC : American Society of Hematology, [2016]-
مواضيع طبية MeSH: Myelodysplastic Syndromes*/pathology , Leukemia, Myeloid, Acute*/therapy , Leukemia, Myeloid, Acute*/diagnosis , Hematologic Neoplasms*/therapy , Telemedicine*, Humans ; Critical Care ; Pilot Projects ; Critical Illness
مستخلص: Older patients with acute myeloid leukemia (AML) and myelodysplastic syndromes (MDS) experience intense inpatient health care at the end-of-life stage. Early advance care planning may improve care at the end of life for patients with AML or MDS. The Serious Illness Care Program (SICP) is a multicomponent, communication intervention developed to improve conversations about values for patients with serious illnesses. The SICP has been shown to improve the quality and frequency of advance care planning discussions. We adapted the SICP for delivery via telehealth to older patients with AML or MDS. We conducted a single-center qualitative study of 45 participants (25 clinicians, 15 older patients with AML or MDS, and 5 caregivers). Participants, whether clinicians, patients, or caregivers, agreed that the SICP would help older patients with AML or MDS to share their personal values with their care team. Four qualitative themes emerged from our data: (1) serious illness conversations can be conducted via telehealth, (2) older patients have limited experience using technology but are willing and able to learn, (3) patients feel that serious illness conversations will help them understand their AML or MDS diagnosis and prognosis better, and (4) serious illness conversations should be common and routine, not extraordinary. The adapted SICP may provide older patients with AML or MDS an opportunity to share what matters most to them with their care team and may assist oncologists in aligning patient care with patient values. The adapted SICP is the subject of an ongoing single-arm pilot study at the Wilmot Cancer Institute (clinicaltrials.gov identifier: NCT04745676).
(© 2023 by The American Society of Hematology. Licensed under Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0), permitting only noncommercial, nonderivative use with attribution. All other rights reserved.)
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معلومات مُعتمدة: R00 CA237744 United States CA NCI NIH HHS; R25 CA183723 United States CA NCI NIH HHS; R03 AG073985 United States AG NIA NIH HHS; R21 AG059206 United States AG NIA NIH HHS; K02 AG062745 United States AG NIA NIH HHS; R33 AG059206 United States AG NIA NIH HHS
سلسلة جزيئية: ClinicalTrials.gov NCT04745676
تواريخ الأحداث: Date Created: 20221215 Date Completed: 20230501 Latest Revision: 20230513
رمز التحديث: 20231215
مُعرف محوري في PubMed: PMC10173172
DOI: 10.1182/bloodadvances.2022008996
PMID: 36521100
قاعدة البيانات: MEDLINE
الوصف
تدمد:2473-9537
DOI:10.1182/bloodadvances.2022008996