دورية أكاديمية
Active Treatment to Survivorship Care: A Mixed-Methods Study Exploring Resource Needs and Preferences of Young Adult Cancer Survivors in Transition.
| العنوان: | Active Treatment to Survivorship Care: A Mixed-Methods Study Exploring Resource Needs and Preferences of Young Adult Cancer Survivors in Transition. |
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| المؤلفون: | Camp L; William F. Connell School of Nursing, Boston College, Chestnut Hill, Massachusetts, USA., Coffman E; Department of Nutrition, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Chinthapatla J; Department of Nutrition, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Boey KA; William F. Connell School of Nursing, Boston College, Chestnut Hill, Massachusetts, USA., Lux L; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.; Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Smitherman A; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.; Department of Pediatrics, Division of Hematology and Oncology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Manning ML; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Vizer LM; School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Haines E; Wake Forest School of Medicine, Winston-Salem, North Carolina, USA., Valle CG; Department of Nutrition, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.; Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA. |
| المصدر: | Journal of adolescent and young adult oncology [J Adolesc Young Adult Oncol] 2023 Oct; Vol. 12 (5), pp. 735-743. Date of Electronic Publication: 2023 Jan 27. |
| نوع المنشور: | Journal Article; Research Support, N.I.H., Extramural |
| اللغة: | English |
| بيانات الدورية: | Publisher: Mary Ann Liebert, Inc Country of Publication: United States NLM ID: 101543508 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2156-535X (Electronic) Linking ISSN: 21565333 NLM ISO Abbreviation: J Adolesc Young Adult Oncol Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: New Rochelle, NY : Mary Ann Liebert, Inc. |
| مواضيع طبية MeSH: | Cancer Survivors* , Neoplasms*/therapy, Humans ; Young Adult ; Adolescent ; Adult ; Survivorship ; Survivors ; Focus Groups |
| مستخلص: | Purpose: The purpose of this study was to identify resource needs and preferences of young adult cancer survivors (YAs) during the transition from active treatment to survivorship care to inform tailored care tools to support YAs during this period. Methods: A mixed methods study following a sequential explanatory approach was conducted among YAs between the ages of 15 and 39. Online surveys were distributed to assess participant information and resource needs, and responses were further explored during virtual focus group and interview discussions. Frequencies and proportions were calculated to identify quantitative resource needs, and a descriptive qualitative approach was used to gather and analyze qualitative data. Results: Thirty-one participants completed the online surveys, and 27 participated in qualitative data collection. The top resource needs identified in the surveys and discussed in focus groups and interviews were (1) fear of recurrence, (2) sleep and fatigue, (3) anxiety, (4) nutrition, (5) physical activity, and (6) finances. Emergent themes identified during transcript analyses included the need for (1) tailored, customizable resources, (2) connection with other survivors, (3) tools to guide conversations about cancer, (4) clarity in what to expect during treatment and survivorship, and (5) consistent and equitable care in YA oncology. Conclusions: Participants identified six important information needs in addition to an overarching need for tailored support and equitable distribution of resources while transitioning into early survivorship. Thus, tailored interventions are needed to enhance the distribution of YA-centered resources, improve equity in YA cancer care, and connect YAs with peer survivors. |
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| معلومات مُعتمدة: | T32 CA057726 United States CA NCI NIH HHS; T32 CA128582 United States CA NCI NIH HHS |
| فهرسة مساهمة: | Keywords: early survivorship; survivorship care; transition; young adults |
| تواريخ الأحداث: | Date Created: 20230127 Date Completed: 20231103 Latest Revision: 20240409 |
| رمز التحديث: | 20240409 |
| مُعرف محوري في PubMed: | PMC10618808 |
| DOI: | 10.1089/jayao.2022.0095 |
| PMID: | 36706031 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 2156-535X |
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| DOI: | 10.1089/jayao.2022.0095 |