دورية أكاديمية
Neuromuscular disorders and transition from pediatric to adult care in a multidisciplinary perspective: a narrative review of the scientific evidence and current debate.
| العنوان: | Neuromuscular disorders and transition from pediatric to adult care in a multidisciplinary perspective: a narrative review of the scientific evidence and current debate. |
|---|---|
| المؤلفون: | Accogli G; Scientific Institute IRCCS 'E. Medea', Unit for Severe disabilities in developmental age and young adults (Developmental Neurology and Neurorehabilitation), Brindisi, Italy., Ferrante C; Scientific Institute IRCCS 'E. Medea', Unit for Severe disabilities in developmental age and young adults (Developmental Neurology and Neurorehabilitation), Brindisi, Italy., Fanizza I; Scientific Institute IRCCS 'E. Medea', Unit for Severe disabilities in developmental age and young adults (Developmental Neurology and Neurorehabilitation), Brindisi, Italy., Oliva MC; Scientific Institute IRCCS 'E. Medea', Unit for Severe disabilities in developmental age and young adults (Developmental Neurology and Neurorehabilitation), Brindisi, Italy., Gallo I; Scientific Institute IRCCS 'E. Medea', Unit for Severe disabilities in developmental age and young adults (Developmental Neurology and Neurorehabilitation), Brindisi, Italy., De Rinaldis M; Scientific Institute IRCCS 'E. Medea', Unit for Severe disabilities in developmental age and young adults (Developmental Neurology and Neurorehabilitation), Brindisi, Italy., Trabacca A; Scientific Institute IRCCS 'E. Medea', Unit for Severe disabilities in developmental age and young adults (Developmental Neurology and Neurorehabilitation), Brindisi, Italy. |
| المصدر: | Acta myologica : myopathies and cardiomyopathies : official journal of the Mediterranean Society of Myology [Acta Myol] 2022 Dec 31; Vol. 41 (4), pp. 188-200. Date of Electronic Publication: 2022 Dec 31 (Print Publication: 2022). |
| نوع المنشور: | Review; Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Gaetano Conte Academy Country of Publication: Italy NLM ID: 9811169 Publication Model: eCollection Cited Medium: Internet ISSN: 2532-1900 (Electronic) Linking ISSN: 11282460 NLM ISO Abbreviation: Acta Myol Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: Napoli : Gaetano Conte Academy |
| مواضيع طبية MeSH: | Transition to Adult Care* , Neuromuscular Diseases*/therapy, Humans ; Child ; Adult |
| مستخلص: | Objective: Standards of care and new genetic and molecular therapies have contributed to increasing life expectancy of patients with neuromuscular diseases (NMDs). This review presents the clinical evidence for an adequate transition from pediatric to adult care in patients with NMDs considering both physical and psychosocial aspects and attempts at identifying a general pattern of transition in the literature that can be used for all patients with NMDs. Method: A search was performed on PubMed, Embase and Scopus using generic terms that could be referred to the transition construct specifically related to NMDs. A narrative approach was used to summarise the available literature. Results: Our review shows that few or no studies explored the transition process from pediatric to adult care in neuromuscular diseases and tried to identify a general pattern of transition applicable to all NMDs. Conclusions: A transition process taking into consideration physical, psychological, social needs of patient and caregiver could produce positive outcomes. However, there is still no unanimous agreement in the literature on what it consists of and how to achieve an optimal and effective transition. (©2022 Gaetano Conte Academy - Mediterranean Society of Myology, Naples, Italy.) |
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| فهرسة مساهمة: | Keywords: healthcare; neuromuscular disorders; psychological care; social care; transition |
| تواريخ الأحداث: | Date Created: 20230216 Date Completed: 20230217 Latest Revision: 20230217 |
| رمز التحديث: | 20230217 |
| مُعرف محوري في PubMed: | PMC9896595 |
| DOI: | 10.36185/2532-1900-083 |
| PMID: | 36793653 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 2532-1900 |
|---|---|
| DOI: | 10.36185/2532-1900-083 |