دورية أكاديمية
أعرض في EDS

Family quality of life and children with disability in Ethiopia: The role of support providers.

التفاصيل البيبلوغرافية
العنوان: Family quality of life and children with disability in Ethiopia: The role of support providers.
المؤلفون: Jansen-van Vuuren J; School of Rehabilitation Therapy, Faculty of Health Sciences, Queen's University, Kingston, Canada., Dawud S; Community Based Rehabilitation, University of Gondar, Gondar, Ethiopia., Lysaght R; School of Rehabilitation Therapy, Faculty of Health Sciences, Queen's University, Kingston, Canada., Batorowicz B; School of Rehabilitation Therapy, Faculty of Health Sciences, Queen's University, Kingston, Canada., Aldersey HM; School of Rehabilitation Therapy, Faculty of Health Sciences, Queen's University, Kingston, Canada.
المصدر: African journal of disability [Afr J Disabil] 2023 Feb 16; Vol. 12, pp. 1124. Date of Electronic Publication: 2023 Feb 16 (Print Publication: 2023).
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: AOSIS Publishing Country of Publication: South Africa NLM ID: 101623460 Publication Model: eCollection Cited Medium: Print ISSN: 2223-9170 (Print) Linking ISSN: 22239170 NLM ISO Abbreviation: Afr J Disabil Subsets: PubMed not MEDLINE
أسماء مطبوعة: Publication: Durbanville : AOSIS Publishing
Original Publication: Durbanville : AOSIS OpenJournals
مستخلص: Background: Family quality of life (FQOL) is an important outcome for families of children with disabilities globally and provision of support is associated with enhanced FQOL. However, FQOL research primarily focuses on conceptualisation and measurement, and originates from high-income contexts despite the fact that most children with disabilities live in low-income countries.
Objectives: The authors examined how Ethiopian disability support providers practically contribute to meeting the needs of families of children with disabilities to enhance FQOL.
Method: Building on a previous study exploring Ethiopian families' perspectives on FQOL, the authors used an exploratory descriptive qualitative approach to interview various support providers. Interviews were conducted virtually (because of the coronavirus disease 2019 [COVID-19] pandemic) in English or with interpreting assistance. Audio-recorded interviews were transcribed verbatim and analysed thematically.
Results: Support providers affirmed what families had described as important for FQOL - spirituality, relationships, self-sufficiency - and recognised their enormous support needs. They described various ways to support families - emotionally, physically, materially and informationally. They also expressed challenges and their need for support to meet families' needs.
Conclusion: Ethiopian families of children with disabilities need holistic support that incorporates spirituality, the whole family's needs and disability awareness-raising. Collaborative and committed engagement from all stakeholders is necessary to support Ethiopian families to flourish.
Contribution: This study contributes to global understandings of FQOL and describes practical approaches to support families of children with disabilities in an African context. The findings of this study highlight the influence of spirituality, relationships, self-sufficiency, poverty and stigma and the need for holistic support and disability awareness-raising to enhance FQOL.
Competing Interests: The authors declare that they have no financial or personal relationships that may have inappropriately influenced them in writing this article.
(© 2023. The Authors.)
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فهرسة مساهمة: Keywords: Ethiopia; children with disabilities; families; family quality of life; spirituality; support; support providers
تواريخ الأحداث: Date Created: 20230306 Latest Revision: 20230307
رمز التحديث: 20240628
مُعرف محوري في PubMed: PMC9982469
DOI: 10.4102/ajod.v12i0.1124
PMID: 36876025
قاعدة البيانات: MEDLINE
الوصف
تدمد:2223-9170
DOI:10.4102/ajod.v12i0.1124