دورية أكاديمية
Acceptability of Newborn Screening for Sickle Cell Disease among Post-Partum Mothers in Abakaliki, South East Nigeria.
| العنوان: | Acceptability of Newborn Screening for Sickle Cell Disease among Post-Partum Mothers in Abakaliki, South East Nigeria. |
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| المؤلفون: | Nnachi OC; Department of Haematology, Alex Ekwueme Federal University Teaching Hospital Abakaliki / Ebonyi State University, Ebonyi State, Nigeria. Email: obotican@gmail.com., Umeokonkwo AA; Department of Paediatrics, Alex Ekwueme Federal University Teaching Hospital, Abakaliki, Ebonyi State, Nigeria., Okoye HC; Department of Haematology, University of Nigeria Teaching Hospital Ituku Ozalla, Enugu State, Nigeria., Ekwe AN; Department of Haematology, Alex Ekwueme Federal University Teaching Hospital Abakaliki, Ebonyi State, Nigeria., Akpa CO; Department of Haematology, Alex Ekwueme Federal University Teaching Hospital Abakaliki, Ebonyi State, Nigeria., Okoye AE; Department of Haematology, Alex Ekwueme Federal University Teaching Hospital Abakaliki, Ebonyi State, Nigeria. |
| المصدر: | West African journal of medicine [West Afr J Med] 2023 Mar 31; Vol. 40 (3), pp. 298-304. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: West African College Of Physicians And West African College Of Surgeons Country of Publication: Nigeria NLM ID: 8301891 Publication Model: Print Cited Medium: Print ISSN: 0189-160X (Print) Linking ISSN: 0189160X NLM ISO Abbreviation: West Afr J Med Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: Lagos : West African College Of Physicians And West African College Of Surgeons Original Publication: [Yaba, Lagos, Nigeria] : West African College of Physicians and West African College of Surgeons, [1981- |
| مواضيع طبية MeSH: | Neonatal Screening* , Anemia, Sickle Cell*, Child, Preschool ; Female ; Humans ; Infant, Newborn ; Nigeria ; Cross-Sectional Studies ; Mothers |
| مستخلص: | Background: Newborn screening (NBS) for sickle cell disease (SCD) has been shown to reduce early childhood morbidity and mortality associated with sickle cell disease (SCD) but the programme is yet to gain universal coverage in Nigeria. The study assessed the awareness and acceptability of NBS for sickle cell disease for newly delivered mothers. Materials and Methods: This was a cross-sectional study conducted to assess 780 mothers admitted into the postnatal ward 0-48 hours after delivery at Alex Ekwueme Federal University Teaching Hospital, Abakaliki, Nigeria. Pre-validated questionnaires were employed for data collection and statistical analysis was performed using the United States' Center for Disease Prevention and Control (CDC) Epi Info 7.1.4 software. Results: Only 172 (22%) and 96 (12.2%) of the mothers were aware of NBS and comprehensive care for babies with SCD respectively. The acceptance of NBS was high, 718 (92%) among the mothers. The reasons for acceptance of NBS were to know how to take care of the baby 416 (57.9%), know the genotype status 180 (25.1%) while the motivating factors for NBS were knowledge of benefits 455 (58%) and the cost is free 205 (26.1%). The majority of the mothers 561(71.6%) agree that SCD can be ameliorated by NBS while 80 (24.6%) do not know if it can. Conclusion: There was low awareness of NBS and comprehensive care for babies with SCD among mothers with newborns, however acceptability for NBS was high. There is a considerable need to bridge the communication gap between health workers and parents to increase their awareness. Competing Interests: The Authors declare that no competing interest exists. (Copyright © 2023 by West African Journal of Medicine.) |
| فهرسة مساهمة: | Keywords: Acceptability; Awareness; Mother; Newborn screening; Sickle cell disease Local Abstract: [Publisher, French] Il a été démontré que le dépistage néonatal de la drépanocytose réduisait la morbidité et la mortalité infantiles associées à cette maladie, mais le programme n’a pas encore atteint une couverture universelle au Nigéria. L’étude a évalué la connaissance et l’acceptabilité du NBS pour la drépanocytose chez les mères qui viennent d’accoucher. [Publisher, French] Il s’agit d’une étude transversale menée auprès de 780 mères admises dans le service postnatal 0-48 heures après l’accouchement à l’hôpital universitaire fédéral Alex Ekwueme, à Abakaliki, au Nigeria. Des questionnaires pré-validés ont été utilisés pour la collecte des données et l’analyse statistique a été réalisée à l’aide du logiciel Epi Info 7.1.4 des Centres américains de prévention et de contrôle des maladies (CDC). [Publisher, French] Seules 172 (22%) et 96 (12,2%) des mères connaissaient le NBS et les soins complets pour les bébés atteints de SCD, respectivement. Le taux d’acceptation du NBS était élevé, 718 (92%) parmi les mères. La raison de l’acceptation du NBS était de savoir comment s’occuper du bébé 416 (57,9%) et de connaître le statut du génotype 180 (25,1%) tandis que le facteur de motivation pour le NBS était la connaissance des avantages 455 (58%) et le coût est gratuit 205 (26,1%). La plupart des mères 561 (71,6%) sont d’accord pour dire que le NBS peut améliorer le SCD, tandis que 80 (24,6%) ne savent pas si c’est le cas. [Publisher, French] Les mères de nouveau-nés sont peu sensibilisées au NBS et aux soins complets pour les bébés atteints de DICS, mais l’acceptabilité du NBS est élevée. Il est nécessaire de rétablir la communication entre les professionnels de la santé et les parents afin de les sensibiliser davantage. [Publisher, French] Dépistage Néonatal, Drépanocytose, Acceptabilité, Sensibilisation, Mère. |
| تواريخ الأحداث: | Date Created: 20230405 Date Completed: 20230407 Latest Revision: 20230407 |
| رمز التحديث: | 20240628 |
| PMID: | 37017939 |
| قاعدة البيانات: | MEDLINE |
| تدمد: | 0189-160X |
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