دورية أكاديمية
Do Hospitals Satisfy Our Healthcare Information Needs for Rare Diseases?: Comparison of Healthcare Information Provided by Hospitals with Information Needs of Family Caregivers.
| العنوان: | Do Hospitals Satisfy Our Healthcare Information Needs for Rare Diseases?: Comparison of Healthcare Information Provided by Hospitals with Information Needs of Family Caregivers. |
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| المؤلفون: | Wang T; School of Library and Information Management, Emporia State University., Lund B; College of Information, University of North Texas., Dow M; School of Library and Information Management, Emporia State University. |
| المصدر: | Health communication [Health Commun] 2024 Jul; Vol. 39 (8), pp. 1628-1637. Date of Electronic Publication: 2023 Jun 20. |
| نوع المنشور: | Journal Article; Comparative Study |
| اللغة: | English |
| بيانات الدورية: | Publisher: Routledge, Taylor & Francis Group Country of Publication: England NLM ID: 8908762 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-7027 (Electronic) Linking ISSN: 10410236 NLM ISO Abbreviation: Health Commun Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: [London] : Routledge, Taylor & Francis Group Original Publication: Hillsdale, N.J. : Lawrence Erlbaum Associates, c1989- |
| مواضيع طبية MeSH: | Caregivers*/psychology , Rare Diseases*, Humans ; Male ; Female ; Cross-Sectional Studies ; Adult ; Surveys and Questionnaires ; Hospitals ; Middle Aged ; Information Seeking Behavior ; Needs Assessment ; Consumer Health Information |
| مستخلص: | This study uses a cross-sectional online survey approach to investigate the gap between healthcare information provided by hospitals and family caregivers' information needs and the relationship between demographic factors and information satisfaction. The results indicate that family caregivers have diverse healthcare information needs for daily care, but the information provided by hospitals could not satisfy these information needs most of the time. Family caregivers' information satisfaction was unrelated to various demographic factors, such as age, race, education level, and annual household income. Family caregivers who were male and spent less time searching for rare disease related information and whose children received a rare disease clinical diagnosis and spent more days in hospitals after birth expressed higher information satisfaction. Based on the findings, this study recommends strengthening continuing education of physicians about rare diseases to increase diagnosis and conducting information literacy assessments of family caregivers to better meet their information needs about daily care. |
| تواريخ الأحداث: | Date Created: 20230621 Date Completed: 20240613 Latest Revision: 20240909 |
| رمز التحديث: | 20240910 |
| DOI: | 10.1080/10410236.2023.2228010 |
| PMID: | 37340548 |
| قاعدة البيانات: | MEDLINE |
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Full Text Finder | تدمد: | 1532-7027 |
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| DOI: | 10.1080/10410236.2023.2228010 |