دورية أكاديمية
أعرض في EDS

Sensitive Child, Disturbed Kid: Stigma, Medicalization, and the Interpretive Work of Israeli Mothers of Children with ADHD.

التفاصيل البيبلوغرافية
العنوان: Sensitive Child, Disturbed Kid: Stigma, Medicalization, and the Interpretive Work of Israeli Mothers of Children with ADHD.
المؤلفون: Plotkin-Amrami G; School of Education, Ben-Gurion University of the Negev, Be'er Sheva, Israel. plotking@bgu.ac.il., Fried T; School of Education, Ben-Gurion University of the Negev, Be'er Sheva, Israel.
المصدر: Culture, medicine and psychiatry [Cult Med Psychiatry] 2024 Mar; Vol. 48 (1), pp. 198-218. Date of Electronic Publication: 2023 Aug 27.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Kluwer Academic Country of Publication: Netherlands NLM ID: 7707467 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-076X (Electronic) Linking ISSN: 0165005X NLM ISO Abbreviation: Cult Med Psychiatry Subsets: MEDLINE
أسماء مطبوعة: Publication: Dordrecht : Kluwer Academic
Original Publication: Dordrecht, Boston, Reidel.
مواضيع طبية MeSH: Attention Deficit Disorder with Hyperactivity*/ethnology , Attention Deficit Disorder with Hyperactivity*/psychology , Mothers*/psychology , Social Stigma* , Medicalization*, Humans ; Israel/ethnology ; Female ; Adult ; Child ; Male ; Qualitative Research ; Middle Aged
مستخلص: Attention-deficit/hyperactivity disorder (ADHD) is a rapidly globalizing medical category, and there is a need to attend to the on the-ground processes through which laypeople deploy the ADHD label in different local contexts. Based on in-depth interviews with Israeli mothers of children with ADHD, this article explores how mothers, as lay actors in the social field of diagnosis, interpreted the origins and meanings of their child's 'troubles'. The temporal perspective on mothers' meaning-making processes revealed a progression of four common phases through which mothers revisited their understanding of ADHD, and recast their own responsibilities and moral roles. We found that mothers' self-understanding was crucially impacted by the invisibility of the disability and the fact that diagnosis did not fully relieve them from blame for their children's stigmatizing behavior. While not all mothers accepted the validity of the diagnosis, participating in the medicalization of their child's condition allowed them to reach similar pragmatic and narrative goals. We discuss the cultural and institutional features of the Israeli ADHD landscape that shape mothers' narratives of their children, and their relations with expertise. We point to a culturally unique framing of children with ADHD in Israel as those characterized by emotional vulnerability and risk of social exclusion.
(© 2023. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)
References: Aneshensel, C.S. (2013). Mental illness as a career: Sociological perspectives. In Handbook of the sociology of mental health. 2nd Edition. C.S. Aneshensel, J.C. Phelan, and A. Bierman, eds., Springer. (PMID: 10.1007/978-94-007-4276-5_29)
Au, L., & Eyal, G. (2022). Whose advice is credible? Claiming lay expertise in a Covid-19 online community. Qualitative Sociology, 45, 31–61. (PMID: 10.1007/s11133-021-09492-1)
Barker, K. K. (2008). Electronic support groups, patient-consumers, and medicalization: The case of contested illness. Journal of Health and Social Behavior, 49(1), 20–36. (PMID: 10.1177/002214650804900103)
Barkley, R. A. (2014). History of ADHD. In R. A. Barkley (Ed.), Attention-deficit hyperactivity disorder: A handbook for diagnosis and treatment (4th ed., pp. 3–50). Guilford Press.
Bennet, J. (2007). (Dis)ordering motherhood: Mothering a child with attention-deficit/ hyperactivity disorder. Body & Society, 13(4), 97–110. (PMID: 10.1177/1357034X07085539)
Bergey, M. R., & Conrad, P. (2018). The rise and transformation of ADHD in the United States. In M. Bergey, A. M. Filipe, P. Conrad, & I. Singh (Eds.), Global perspectives on ADHD: Social dimensions of diagnosis and treatment in sixteen countries (pp. 9–33). Johns Hopkins University Press.
Berkovitch, N. (1997). Motherhood as a national mission: The construction of womanhood in the legal discourse in Israel. Women’s Studies International Forum, 20(5–6), 605–619. (PMID: 10.1016/S0277-5395(97)00055-1)
Blum, L. M. (2015). Raising generation Rx: Mothering children with invisible disabilities in an age of inequality. New York University Press. (PMID: 10.18574/nyu/9781479819508.001.0001)
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. (PMID: 10.1191/1478088706qp063oa)
Carpenter-Song, E. (2009a). Caught in the psychiatric net: Meanings and experiences of ADHD, pediatric bipolar disorder and mental health treatment among a diverse group of families in the United States. Culture Medicine and Psychiatry, 33, 61–85. (PMID: 10.1007/s11013-008-9120-4)
Carpenter-Song, E. (2009b). Children’s sense of self in relation to clinical processes: Portraits of pharmaceutical transformation. Ethos, 37(3), 257–281. (PMID: 10.1111/j.1548-1352.2009.01053.x)
Charmaz, K. (2014). Constructing grounded theory (2nd ed.). Sage.
Conrad, P. (1975). The discovery of hyperkinesis: Notes on the medicalization of deviant behavior. Social Problems, 23(1), 12–21. (PMID: 10.2307/799624)
Conrad, P. 2007 Medicalization: Context, characteristics, and changes. In The medicalization of society: On the transformation of human conditions into treatable disorders Johns Hopkins University Press. (PMID: 10.56021/9780801885846)
Conrad, P., & Bergey, M. R. (2014). The impending globalization of ADHD: Notes on the expansion and growth of a medicalized disorder. Social Science & Medicine, 122, 31–43. (PMID: 10.1016/j.socscimed.2014.10.019)
Conrad, Peter, & Potter, Deborah. (2000). From hyperactive children to ADHD adults: Observations on the expansion of medical categories. Social Problems, 47(4), 559–582. (PMID: 10.2307/3097135)
Conrad, P., & Singh, I. (2018). Reflections on ADHD in a global context. In M. R. Bergey, A. M. Filipe, P. Conrad, & I. Singh (Eds.), Global perspectives on ADHD: Social dimensions of diagnosis and treatment in sixteen countries (pp. 376–390). Johns Hopkins University Press.
Corbin, J., & Strauss, A. (2015). Basics of qualitative research: Techniques and procedures for developing grounded theory (4th ed.). Sage.
Csordas, T. J., Dole, C., Tran, A., Strickland, M., & Storck, M. G. (2010). Ways of asking, ways of telling: A methodological comparison of ethnographic and research diagnostic interviews. Culture Medicine and Psychiatry, 34, 29–55. (PMID: 10.1007/s11013-009-9160-4)
Davidovitch, M., Gideon, K., Naama, F., Maayan, S., & Avi, P. (2017). Challenges in defining the rates of ADHD diagnosis and treatment: Trends over the last decade. BMC Pediatrics, 17, 218. (PMID: 10.1186/s12887-017-0971-0)
Davison, C., Frankel, S., & Smith, G. D. (1989). Inheriting heart trouble: The relevance of common-sense ideas to preventive measures. Health Education Research, 4(3), 329–340. (PMID: 10.1093/her/4.3.329)
Edwards, C., & Howlett, E. (2013). Putting knowledge to trial: ‘ADHD parents’ and the evaluation of alternative therapeutic regimes. Social Science & Medicine, 81, 34–41. (PMID: 10.1016/j.socscimed.2013.01.015)
Edwards, C., Howlett, E., Akrich, M., & Rabeharisoa, V. (2014). Attention deficit hyperactivity disorder in France and Ireland: Parents’ groups’ scientific and political framing of an unsettled condition. BioSocieties, 9(2), 153–172. (PMID: 10.1057/biosoc.2014.3)
Eyal, G. (2013). For a sociology of expertise: The social origins of the autism epidemic. American Journal of Sociology, 118(4), 863–907. (PMID: 10.1086/668448)
Eyal, G., B. Hart, E. Onculer, N. Oren, and N. Rossi, eds. 2010 The autism matrix: The social origins of the autism epidemic. Polity.
Filipe, A. M. (2016). Making ADHD evident: Data, practices, and diagnostic protocols in Portugal. Medical Anthropology, 35(5), 390–403. (PMID: 10.1080/01459740.2015.1101102)
Filipe, A.M. 2022 The other face of medical globalization? Pharmaceutical data, prescribing trends, and the social localization of psychostimulants. BioSocieties. https://doi.org/10.1057/s41292-022-00271-x. (PMID: 10.1057/s41292-022-00271-x)
Fleischmann, A. (2005). The hero’s story and autism: Grounded theory study of websites for parents of children with autism. Autism, 9(3), 299–316. (PMID: 10.1177/1362361305054410)
Francis, A. 2012 Stigma in an Era of Medicalisation and Anxious Parenting: How Proximity and Culpability Shape Middle-class Parents’ Experiences of Disgrace. Sociology of Health and Illness 34(6): 927–942. (PMID: 10.1111/j.1467-9566.2011.01445.x)
Frigerio, A., & Montali, L. (2018). ADHD in the Italian context: Children in the midst of social and political debates. In M. Bergey, A. M. Filipe, P. Conrad, & I. Singh (Eds.), Global perspectives on ADHD: Social dimensions of diagnosis and treatment in sixteen countries (pp. 208–232). Johns Hopkins University Press.
Frigerio, A., L. Montali, and M. Fine 2013 Attention deficit/hyperactivity disorder blame game: A study on the positioning of professionals, teachers and parents. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 17(6): 584–604. (PMID: 10.1177/1363459312472083)
Garro, L. C., & Yarris, K. E. (2009). “A massive long way”: Interconnecting histories, a “special child”, ADHD, and everyday family life. Culture Medicine and Psychiatry, 33, 559–607. (PMID: 10.1007/s11013-009-9155-1)
Goffman, E. (1959). The presentation of self in everyday life. Anchor Books.
Golden, D. (2005). Childhood as protected space? Vulnerable bodies in an Israeli Kindergarten. Ethnos, 70(1), 79–100. (PMID: 10.1080/00141840500048557)
Golden, D., L. Erdreich, and S. Roberman 2018 Mothering, Education and Culture: Russian, Palestinian and Jewish Middle-Class Mothers in Israeli Society Palgrave Macmillan. (PMID: 10.1057/978-1-137-53631-0)
Hinshaw, S. P. (2018). Attention deficit hyperactivity disorder(ADHD): Controversy, developmental mechanisms, and multiple levels of analysis. Annual Review of Clinical Psychology, 14, 1.1-1.26. (PMID: 10.1146/annurev-clinpsy-050817-084917)
Israel Ministry of Education (2019) Melekuyot Le-Lemida [‘From Disorders to Learning’]. Available at https://meyda.education.gov.il/files/shefi/liikoheylemida/Melakuiot_lelemida/Kenes2019/Mazeget_Kenes_2019.pdf . Accessed Aug 2023).
Josselson, R. (2013). Interviewing for qualitative inquiry: A relational approach. Guilford Press.
Katchergin, O. (2012). Between negative stigma (cultural deprivation) and positive stigma (Learning Disability): The historical development of two special education tracks. Culture, Medicine, and Psychiatry, 36, 679–711. (PMID: 10.1007/s11013-012-9281-z)
Katriel, T. (1991). Communal webs: Communication and culture in contemporary Israel. State University of New York Press. (PMID: 10.1353/book10439)
Kleinman, A. (1988). The illness narratives: Suffering, healing, and the human condition. Basic Books.
Lakoff, A. (2000). Adaptive will: The evolution of attention deficit disorder. Journal of the History of the Behavioral Sciences, 36(2), 149–169. (PMID: 10.1002/(SICI)1520-6696(200021)36:2<149::AID-JHBS3>3.0.CO;2-9)
Lavee, Y., & Katz, R. (2003). The family in Israel. Marriage & Family Review, 35(1–2), 193–217. (PMID: 10.1300/J002v35n01_11)
Malacrida, C. (2003). Cold comfort: Mothers, professionals, and attention deficit disorder. University of Toronto Press. (PMID: 10.3138/9781442673038)
Malacrida, C., & Semach, T. (2018). In the elephant’s shadow: The Canadian ADHD context. In M. Bergey, A. M. Filipe, P. Conrad, & I. Singh (Eds.), Global perspectives on ADHD: Social dimensions of diagnosis and treatment in sixteen countries (pp. 34–53). Johns Hopkins University Press.
Mayes, R., & Rafalovich, A. (2007). Suffer the restless children: The evolution of ADHD and paediatric stimulant Use, 1900–80. History of Psychiatry, 18, 435–457. (PMID: 10.1177/0957154X06075782)
Nigg, J. T., Sibley, M. H., Thapar, A., & Karalunas, S. L. (2020). Development of ADHD: Etiology, heterogeneity, and early life course. Annual Review of Developmental Psychology, 2, 559–583. (PMID: 10.1146/annurev-devpsych-060320-093413)
Ornoy, A., Rivkin, D., & Barlev, L. (2018). Children with attention deficit hyperactivity disorder (ADHD): Accessibility and availability of services in Israel [Hebrew]. Harefuah, 157(4), 219–224.
Ortega, F. (2009). The cerebral subject and the challenge of neurodiversity. BioSocieties, 4, 425–445. (PMID: 10.1017/S1745855209990287)
Pliszka, S. R. P. (2014). Comorbid psychiatric disorders in children with ADHD. In R. A. Barkley (Ed.), Attention-deficit hyperactivity disorder: A handbook for diagnosis and treatment (4th ed., pp. 140–168). Guilford Press.
Rabeharisoa, V., Moreira, T., & Akrich, M. (2014). Evidence-based activism: Patients’, users’ and activists’ groups in knowledge society. BioSocieties, 9, 111–128. (PMID: 10.1057/biosoc.2014.2)
Rafalovich, A. (2004). Framing ADHD children: A critical examination of the history, discourse, and everyday experience of attention deficit/hyperactivity disorder. Lexington Books.
Rafalovich, A. (2005). Relational troubles and semiofficial suspicion: Educators and the medicalization of “Unruly” children. Symbolic Interaction, 28(1), 25–46. (PMID: 10.1525/si.2005.28.1.25)
Rojas Navarro, S., & Vrecko, S. (2017). Pharmaceutical entanglements: An analysis of the multiple determinants of ADHD medication effects in a Chilean school. International Journal of Qualitative Studies on Health and Well-Being. https://doi.org/10.1080/17482631.2017.1298268. (PMID: 10.1080/17482631.2017.1298268)
Russell, G., & Kelly, S. (2011). Looking beyond risk: A study of lay epidemiology of childhood disorders. Health, Risk & Society, 13(2), 129–145. (PMID: 10.1080/13698575.2010.515738)
Singh, I. (2004). Doing their jobs: Mothering with ritalin in a culture of mother-blame. Social Science & Medicine, 59, 1193–1205. (PMID: 10.1016/j.socscimed.2004.01.011)
Singh, I. (2011). A disorder of anger and aggression: Children’s perspectives on attention deficit/hyperactivity disorder in the UK. Social Science & Medicine, 73(6), 889–896. (PMID: 10.1016/j.socscimed.2011.03.049)
Slagboom, M.N., C. Bröer, and J. Berg 2021 Negotiating ADHD: Pragmatic medicalization and creolization in Urban India. Social Science & Medicine 289: 114400. (PMID: 10.1016/j.socscimed.2021.114400)
Versteeg, W., & te Molder, H. (2018). ‘You must know what you mean when you say that’: The morality of knowledge claims about ADHD in radio phone-ins. Sociology of Health & Illness, 40(4), 718–734. (PMID: 10.1111/1467-9566.12720)
Wilcutt, E.G. 2014 Theories of ADHD. In Attention-deficit hyperactivity disorder: A handbook for diagnosis and treatment. 4th Edition. R.A. Barkley, ed., Guilford Press.
معلومات مُعتمدة: 1434/20. Israel Science Foundation
فهرسة مساهمة: Keywords: Attention-deficit/hyperactivity disorder (ADHD); Children; Israel; Medicalization; Mothers; Stigma
تواريخ الأحداث: Date Created: 20230827 Date Completed: 20240423 Latest Revision: 20240423
رمز التحديث: 20240424
DOI: 10.1007/s11013-023-09831-7
PMID: 37634233
قاعدة البيانات: MEDLINE
الوصف
تدمد:1573-076X
DOI:10.1007/s11013-023-09831-7