دورية أكاديمية
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Pulmonologists' Perspectives on and Access to Palliative Care for Patients With Idiopathic Pulmonary Fibrosis in South Carolina.

التفاصيل البيبلوغرافية
العنوان: Pulmonologists' Perspectives on and Access to Palliative Care for Patients With Idiopathic Pulmonary Fibrosis in South Carolina.
المؤلفون: Lindell KO; College of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA.; Division of Pulmonary and Critical Care Medicine, College of Medicine, Medical University of South Carolina, Charleston, South Carolina, USA., Madisetti M; College of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA., Fasolino T; School of Nursing, College of Behavioral, Social, & Health Sciences, Clemson University, Clemson, South Carolina, USA., Pittman M; College of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA., Coyne P; College of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA.; Division of Pulmonary and Critical Care Medicine, College of Medicine, Medical University of South Carolina, Charleston, South Carolina, USA., Whelan TPM; Division of Pulmonary and Critical Care Medicine, College of Medicine, Medical University of South Carolina, Charleston, South Carolina, USA., Mueller M; College of Nursing, Medical University of South Carolina, Charleston, South Carolina, USA., Ford DW; Division of Pulmonary and Critical Care Medicine, College of Medicine, Medical University of South Carolina, Charleston, South Carolina, USA.
المصدر: Palliative medicine reports [Palliat Med Rep] 2023 Oct 30; Vol. 4 (1), pp. 292-299. Date of Electronic Publication: 2023 Oct 30 (Print Publication: 2023).
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Mary Ann Liebert, Inc Country of Publication: United States NLM ID: 101770666 Publication Model: eCollection Cited Medium: Internet ISSN: 2689-2820 (Electronic) Linking ISSN: 26892820 NLM ISO Abbreviation: Palliat Med Rep Subsets: PubMed not MEDLINE
أسماء مطبوعة: Original Publication: New Rochelle, NY : Mary Ann Liebert, Inc., [2020]-
مستخلص: Background: Idiopathic pulmonary fibrosis (IPF) is a serious illness with an unpredictable disease course and survival rates comparable with some cancers. Patients with IPF suffer considerable symptom burden, declining quality of life, and high health care resource utilization. Patients and caregivers report many unmet needs, including a desire for more education regarding diagnosis and assistance with navigating disease trajectory. Compelling evidence suggests that palliative care (PC) provides an extra layer of support for patients with serious illness.
Research Question: The purpose of this survey was to gain perspectives regarding PC for patients with IPF by board-certified pulmonologists in South Carolina (SC).
Study Design and Methods: A 24-item survey was adapted (with permission) from the Pulmonary Fibrosis Foundation PC Survey instrument. Data were analyzed and results are presented.
Results: Pulmonologists ( n  = 32, 44%) completed the survey; 97% practice in urbanized settings. The majority agreed that PC and hospice do not provide the same service. There were varying views about comfort in discussing prognosis, disease trajectory, and addressing advance directives. Options for ambulatory and inpatient PC are limited and early PC referral does not occur. None reported initiating a PC referral at time of initial IPF diagnosis.
Interpretation: Pulmonologists in SC who participated in this survey are aware of the principles of PC in providing comprehensive care to patients with IPF and have limited options for PC referral. PC educational materials provided early in the diagnosis can help facilitate and guide end-of-life planning and discussions. Minimal resources exist for patients in underserved communities.
Competing Interests: No competing financial interests exist.
(© Kathleen Oare Lindell et al., 2023; Published by Mary Ann Liebert, Inc.)
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فهرسة مساهمة: Keywords: Idiopathic Pulmonary Fibrosis; palliative care; pulmonologists; serious illness
تواريخ الأحداث: Date Created: 20231102 Latest Revision: 20231103
رمز التحديث: 20231103
مُعرف محوري في PubMed: PMC10616941
DOI: 10.1089/pmr.2023.0038
PMID: 37915951
قاعدة البيانات: MEDLINE
الوصف
تدمد:2689-2820
DOI:10.1089/pmr.2023.0038