دورية أكاديمية
أعرض في EDS

New Insights into the Education of Children with Congenital Heart Disease with and without Trisomy 21.

التفاصيل البيبلوغرافية
العنوان: New Insights into the Education of Children with Congenital Heart Disease with and without Trisomy 21.
المؤلفون: Schmitt KRL; Department of Congenital Heart Disease-Pediatric Cardiology, Deutsches Herzzentrum der Charité, Augustenburger Platz 1, 13353 Berlin, Germany.; Charité-Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117 Berlin, Germany.; Competence Network for Congenital Heart Defects, 13353 Berlin, Germany., Sievers LK; Department of Internal Medicine I, Christian-Albrechts-University and University Hospital Schleswig-Holstein, Campus Kiel, 24105 Kiel, Germany., Hütter A; Department of Congenital Heart Disease-Pediatric Cardiology, Deutsches Herzzentrum der Charité, Augustenburger Platz 1, 13353 Berlin, Germany.; Charité-Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117 Berlin, Germany., Abdul-Khaliq H; Department of Pediatric Cardiology, Saarland University Medical Center, 66421 Homburg, Germany., Poryo M; Department of Pediatric Cardiology, Saarland University Medical Center, 66421 Homburg, Germany., Berger F; Department of Congenital Heart Disease-Pediatric Cardiology, Deutsches Herzzentrum der Charité, Augustenburger Platz 1, 13353 Berlin, Germany.; Charité-Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117 Berlin, Germany.; Competence Network for Congenital Heart Defects, 13353 Berlin, Germany., Bauer UMM; Competence Network for Congenital Heart Defects, 13353 Berlin, Germany.; National Register for Congenital Heart Defects, 13353 Berlin, Germany., Helm PC; National Register for Congenital Heart Defects, 13353 Berlin, Germany., Pfitzer C; Department of Congenital Heart Disease-Pediatric Cardiology, Deutsches Herzzentrum der Charité, Augustenburger Platz 1, 13353 Berlin, Germany.; Charité-Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117 Berlin, Germany.
المصدر: Medicina (Kaunas, Lithuania) [Medicina (Kaunas)] 2023 Nov 14; Vol. 59 (11). Date of Electronic Publication: 2023 Nov 14.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: MDPI Country of Publication: Switzerland NLM ID: 9425208 Publication Model: Electronic Cited Medium: Internet ISSN: 1648-9144 (Electronic) Linking ISSN: 1010660X NLM ISO Abbreviation: Medicina (Kaunas) Subsets: MEDLINE
أسماء مطبوعة: Publication: 2018- : Basel, Switzerland : MDPI
Original Publication: Kaunas : Lietuvos gydytojų sąjunga
مواضيع طبية MeSH: Down Syndrome*/complications , Down Syndrome*/diagnosis , Heart Defects, Congenital*/complications , Heart Defects, Congenital*/diagnosis, Humans ; Child ; Female ; Adolescent ; Male ; Educational Status ; Schools ; Emotions
مستخلص: Background and Objectives : Patients with congenital heart disease (CHD), especially as a concomitant syndromal disease of trisomy 21 (T21), are at risk for impaired neurodevelopment. This can also affect these patients' education. However, there continues to be a research gap in the educational development of CHD patients and T21 CHD patients. Materials and Methods : In total, data from 2873 patients from the German National Register for Congenital Heart Defects were analyzed. The data are based on two online education surveys conducted among patients registered in the National Register for Congenital Heart Defects (2017, 2020). Results : Of 2873 patients included (mean age: 14.1 ± 4.7 years, 50.5% female), 109 (3.8%) were identified with T21 (mean age: 12.9 ± 4.4 years, 49.5% female). T21 CHD participants had a high demand for early specific interventions (overall cohort 49.1%; T21 cohort 100%). T21 CHD children more frequently attended special schools and, compared to non-trisomy 21 (nT21) CHD patients, the probability of attending a grammar school was reduced. In total, 87.1% of nT21 CHD patients but 11% of T21 CHD patients were enrolled in a regular elementary school, and 12.8% of T21 CHD patients could transfer to a secondary school in contrast to 35.5% of nT21 CHD patients. Most of the T21 CHD patients were diagnosed with psychiatric disorders, e.g., learning, emotional, or behavioral disorders (T21 CHD patients: 82.6%; nT21 CHD patients: 31.4%; p < 0.001). Conclusions : CHD patients are at risk for impaired academic development, and the presence of T21 is an aggravating factor. Routine follow-up examinations should be established to identify developmental deficits and to provide targeted interventions.
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معلومات مُعتمدة: n/a Deutsches Herzstiftung e.V.
فهرسة مساهمة: Keywords: congenital heart disease; education; neurodevelopment; school career; trisomy 21
تواريخ الأحداث: Date Created: 20231125 Date Completed: 20231127 Latest Revision: 20231127
رمز التحديث: 20240628
مُعرف محوري في PubMed: PMC10673200
DOI: 10.3390/medicina59112001
PMID: 38004050
قاعدة البيانات: MEDLINE
الوصف
تدمد:1648-9144
DOI:10.3390/medicina59112001