دورية أكاديمية

Maternal mental health research in Malawi: Community and healthcare provider perspectives on acceptability and ethicality.

التفاصيل البيبلوغرافية
العنوان: Maternal mental health research in Malawi: Community and healthcare provider perspectives on acceptability and ethicality.
المؤلفون: Ndambo MK; Malawi Epidemiology Intervention Research Unit, Malawi., Pickersgill M; Centre for Biomedicine, Self and Society, Usher Institute, University of Edinburgh, Scotland, United Kingdom., Bunn C; Malawi Epidemiology Intervention Research Unit, Malawi.; School of Social and Political Sciences, Institute of Health and Wellbeing, University of Glasgow, Scotland, United Kingdom., Stewart RC; Malawi Epidemiology Intervention Research Unit, Malawi.; Division of Psychiatry, Centre for Clinical Brain Sciences, University of Edinburgh, Scotland, United Kingdom., Umar E; School of Global and Public Health, Kamuzu University of Health Sciences, Malawi., Nyasulu M; Malawi Epidemiology Intervention Research Unit, Malawi., McIntosh AM; Division of Psychiatry, Centre for Clinical Brain Sciences, University of Edinburgh, Scotland, United Kingdom., Manda-Taylor L; School of Global and Public Health, Kamuzu University of Health Sciences, Malawi.
المصدر: SSM. Mental health [SSM Ment Health] 2023 Dec; Vol. 3, pp. 100213.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Elsevier Ltd Country of Publication: England NLM ID: 9918248909306676 Publication Model: Print Cited Medium: Internet ISSN: 2666-5603 (Electronic) Linking ISSN: 26665603 NLM ISO Abbreviation: SSM Ment Health Subsets: PubMed not MEDLINE
أسماء مطبوعة: Original Publication: [London] : Elsevier Ltd., [2021]-
مستخلص: Maternal mental health (MMH) is recognised as globally significant. The prevalence of depression and factors associated with its onset among perinatal women in Malawi has been previously reported, and the need for further research in this domain is underscored. Yet, there is little published scholarship regarding the acceptability and ethicality of MMH research to women and community representatives. The study reported here sought to address this in Malawi by engaging with communities and healthcare providers in the districts where MMH research was being planned. Qualitative data was collected in Lilongwe and Karonga districts through 20 focus group discussions and 40 in-depth interviews with community representatives and healthcare providers from January through April 2021. All focus groups and interviews were audio recorded, transcribed verbatim (in local languages Chichewa and Tumbuka), translated into English, and examined through thematic content analysis. Participants' accounts suggest that biopsychosocial MMH research could be broadly acceptable within the communities sampled, with acceptability framed in part through prior encounters with biomedical and public health research and care in these regions, alongside broader understandings of the import of MMH. Willingness and consent to participate do not depend on specifically biomedical understandings of MMH, but rather on familiarity with individuals regarded as living with mental ill-health. However, the data further suggest some 'therapeutic misconceptions' about MMH research, with implications for how investigations in this area are presented by researchers when recruiting and working with participants. Further studies are needed to explore whether accounts of the acceptability and ethicality of MMH research shift and change during and following research encounters. Such studies will enhance the production of granular recommendations for further augmenting the ethicality of biomedical and public health research and researchers' responsibilities to participants and communities.
Competing Interests: The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
(© 2023 The Authors.)
References: J Empir Res Hum Res Ethics. 2015 Feb;10(1):59-64. (PMID: 25742667)
Soc Sci Med. 2015 Jun;135:15-22. (PMID: 25939072)
Arch Womens Ment Health. 2014 Apr;17(2):145-54. (PMID: 24240635)
Br Dent J. 2008 Apr 26;204(8):429-32. (PMID: 18438371)
Bull World Health Organ. 2012 Feb 1;90(2):139G-149G. (PMID: 22423165)
BMC Med Ethics. 2020 Sep 21;21(1):90. (PMID: 32957967)
Br J Psychiatry. 1987 Jun;150:782-6. (PMID: 3651732)
Wellcome Open Res. 2018 Sep 18;3:115. (PMID: 30542663)
Clin Psychopharmacol Neurosci. 2016 Feb 29;14(1):17-25. (PMID: 26792036)
J Empir Res Hum Res Ethics. 2009 Sep;4(3):89-97. (PMID: 19754238)
Med Care. 2018 Oct;56 Suppl 10 Suppl 1:S6-S8. (PMID: 30015725)
Soc Sci Med. 2005 Oct;61(7):1463-73. (PMID: 16005781)
J Transcult Nurs. 2013 Jul;24(3):263-70. (PMID: 23610161)
BMC Med Ethics. 2014 Sep 20;15:68. (PMID: 25240404)
Br J Psychiatry. 2017 May;210(5):315-323. (PMID: 28302701)
Community Genet. 2006;9(3):204-10. (PMID: 16741351)
Int J Law Psychiatry. 1982;5(3-4):319-29. (PMID: 6135666)
BMC Public Health. 2022 May 19;22(1):1014. (PMID: 35590302)
Am J Health Promot. 2015 May-Jun;29(5):332-8. (PMID: 24670073)
Front Public Health. 2022 Aug 31;10:1012678. (PMID: 36117591)
J Empir Res Hum Res Ethics. 2013 Oct;8(4):1-18. (PMID: 24169417)
J Health Soc Policy. 2000;12(2):23-43. (PMID: 11184441)
Womens Health (Lond). 2021 Jan-Dec;17:17455065211042180. (PMID: 34494913)
BMC Public Health. 2020 Jun 3;20(1):852. (PMID: 32493280)
Glob Bioeth. 2018 Sep 03;29(1):65-80. (PMID: 30202397)
Bull World Health Organ. 2001;79(4):373-4. (PMID: 11357217)
Ethics Hum Res. 2021 Jul;43(4):11-19. (PMID: 34196502)
BMC Psychiatry. 2018 Feb 7;18(1):39. (PMID: 29415710)
IRB. 2003 Jan-Feb;25(1):11-6. (PMID: 12833900)
Soc Sci Med. 2016 Oct;167:71-8. (PMID: 27608050)
PLoS One. 2019 Jun 18;14(6):e0217102. (PMID: 31211776)
BMC Med Ethics. 2019 Jul 4;20(1):45. (PMID: 31272489)
BMC Health Serv Res. 2017 Jan 26;17(1):88. (PMID: 28126032)
Am J Bioeth. 2020 Jun;20(5):43-56. (PMID: 32364467)
IRB. 2006 May-Jun;28(3):1-6. (PMID: 17036437)
Malawi Med J. 2008 Jun;20(2):57-63. (PMID: 19537434)
Soc Sci Med. 2009 May;68(9):1711-9. (PMID: 19282080)
BMC Med Ethics. 2015 Jul 01;16:44. (PMID: 26126899)
Soc Psychiatry Psychiatr Epidemiol. 2010 May;45(5):551-9. (PMID: 19609476)
Int J Qual Health Care. 2007 Dec;19(6):349-57. (PMID: 17872937)
Psychol Med. 2017 Sep;47(12):2041-2053. (PMID: 28414017)
Res Nurs Health. 2009 Aug;32(4):419-31. (PMID: 19434647)
Neuroimage. 2021 Aug 1;236:118086. (PMID: 33901647)
BMC Public Health. 2021 May 1;21(1):842. (PMID: 33933060)
Am J Bioeth. 2013;13(12):44-6. (PMID: 24256538)
Trials. 2019 Oct 30;20(1):618. (PMID: 31666093)
BMC Psychiatry. 2010 Dec 02;10:103. (PMID: 21126334)
Dev World Bioeth. 2013 Apr;13(1):1-9. (PMID: 23433316)
BMC Health Serv Res. 2016 Jul 22;16:295. (PMID: 27443346)
Int J Epidemiol. 2012 Jun;41(3):676-85. (PMID: 22729235)
Afr J Prim Health Care Fam Med. 2020 May 28;12(1):e1-e9. (PMID: 32501029)
JAMA. 2012 Jun 13;307(22):2377-8. (PMID: 22692168)
Health Policy Plan. 2018 Oct 1;33(8):879-887. (PMID: 30084938)
Health Expect. 2010 Sep;13(3):312-22. (PMID: 20579119)
معلومات مُعتمدة: MR/S035818/1 United Kingdom MRC_ Medical Research Council
فهرسة مساهمة: Keywords: Acceptability; Community engagement; Ethics; Maternal mental health; Therapeutic misconception
تواريخ الأحداث: Date Created: 20231204 Latest Revision: 20240214
رمز التحديث: 20240214
مُعرف محوري في PubMed: PMC10311285
DOI: 10.1016/j.ssmmh.2023.100213
PMID: 38045108
قاعدة البيانات: MEDLINE
الوصف
تدمد:2666-5603
DOI:10.1016/j.ssmmh.2023.100213