Editorial & Opinion
أعرض في EDS

The Psychiatric Care of Children and Young Adults With Neurodegenerative Diseases.

التفاصيل البيبلوغرافية
العنوان: The Psychiatric Care of Children and Young Adults With Neurodegenerative Diseases.
المؤلفون: Hauptman AJ; Kennedy Krieger Institute, Baltimore, Maryland; Johns Hopkins University School of Medicine, Baltimore, Maryland. Electronic address: hauptman@kennedykrieger.org., Augustine EF; Kennedy Krieger Institute, Baltimore, Maryland; Johns Hopkins University School of Medicine, Baltimore, Maryland., Brown HB; Kennedy Krieger Institute, Baltimore, Maryland; Johns Hopkins University School of Medicine, Baltimore, Maryland.
المصدر: Journal of the American Academy of Child and Adolescent Psychiatry [J Am Acad Child Adolesc Psychiatry] 2024 Feb 08. Date of Electronic Publication: 2024 Feb 08.
Publication Model: Ahead of Print
نوع المنشور: Editorial
اللغة: English
بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 8704565 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1527-5418 (Electronic) Linking ISSN: 08908567 NLM ISO Abbreviation: J Am Acad Child Adolesc Psychiatry Subsets: MEDLINE
أسماء مطبوعة: Publication: Jan. 2010- : New York : Elsevier
Original Publication: [Baltimore, Md.] : The Academy, [1987-
مستخلص: Pediatric neurodegenerative disorders (PNDs), such as juvenile neuronal ceroid lipofuscinosis (CLN3 disease, also called Batten disease) and juvenile Huntington disease, are devastating conditions that result in progressive neurological dysfunction and profound medical comorbidities leading to early mortality in children and young adults. 1 There are more than 70 PNDs, with a combined estimated prevalence of ∼0.1 in 1,000 live births. 2,3 Individuals with PNDs commonly experience complex neuropsychiatric manifestations such as neurocognitive symptoms (dementia), irritability, aggression and self-injury, mood disorders, sensory alterations, and psychosis. Symptoms are dynamic, changing with illness progression, and evolve over time. Effects on patients and families can be devastating, and caregiver burden is enormous. 4 We are a group of colleagues with backgrounds in pediatric neuropsychiatry, pediatric neuropalliative care, and pediatric neurology who care for patients together in specialized clinics.
(Copyright © 2024 American Academy of Child and Adolescent Psychiatry. Published by Elsevier Inc. All rights reserved.)
تواريخ الأحداث: Date Created: 20240210 Latest Revision: 20240228
رمز التحديث: 20240228
DOI: 10.1016/j.jaac.2024.02.001
PMID: 38340894
قاعدة البيانات: MEDLINE
الوصف
تدمد:1527-5418
DOI:10.1016/j.jaac.2024.02.001