دورية أكاديمية
A Risk Assessment and Planning Tool to Prevent Sudden Unexpected Death in Infancy: Development and Evaluation of The Baby Sleep Planner.
| العنوان: | A Risk Assessment and Planning Tool to Prevent Sudden Unexpected Death in Infancy: Development and Evaluation of The Baby Sleep Planner. |
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| المؤلفون: | Pease A; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom., Ingram J; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom., Lambert B; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom., Patrick K; Royal United Hospitals Bath NHS Foundation Trust, Bath, United Kingdom., Pitts K; Research IT, University of Bristol, Bristol, United Kingdom., Fleming PJ; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom., Blair PS; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom. |
| مؤلفون مشاركون: | Baby Sleep Project Family Advisory Group; Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom. |
| المصدر: | JMIR pediatrics and parenting [JMIR Pediatr Parent] 2024 Feb 22; Vol. 7, pp. e49952. Date of Electronic Publication: 2024 Feb 22. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: JMIR Publications Inc Country of Publication: Canada NLM ID: 101727244 Publication Model: Electronic Cited Medium: Internet ISSN: 2561-6722 (Electronic) Linking ISSN: 25616722 NLM ISO Abbreviation: JMIR Pediatr Parent Subsets: PubMed not MEDLINE |
| أسماء مطبوعة: | Original Publication: [Toronto, ON] : JMIR Publications Inc., [2018]- |
| مستخلص: | Background: Successful national safer sleep campaigns in the United Kingdom have lowered the death rates from sudden unexpected death in infancy (SUDI) over the past 3 decades, but deaths persist in socioeconomically deprived families. The circumstances of current deaths suggest that improvements in support for some families to follow safer sleep advice more consistently could save lives. Objective: This study aimed to develop and evaluate a risk assessment and planning tool designed to improve the uptake of safer sleep advice in families with infants at increased risk of SUDI. Methods: A co-design approach was used to develop the prototype interface of a web-based tool with 2 parts: an individual SUDI risk assessment at birth and a downloadable plan for safety during times of disruption. The advice contained within the tool is concordant with national guidance from the Lullaby Trust, the United Nations International Children's Emergency Fund (UNICEF), and the National Institute for Health and Care Excellence. User testing of the prototype tool was conducted by inviting health visitors, midwives, and family nurses to use it with families eligible for additional support. Qualitative interviews with health professionals and families allowed for iterative changes to the tool and for insights into its function and influence on parental behavior. Results: A total of 22 health professionals were enrolled in the study, of whom 20 (91%) were interviewed. They reported appreciating the functionality of the tool, which allowed them to identify at-risk families for further support. They felt that the tool improved how they communicated about risks with families. They suggested expanding its use to include relevance in the antenatal period and having versions available in languages other than English. They reported using the tool with 58 families; 20 parents gave consent to be interviewed by the research team about their experiences with the tool. Families were positive about the tool, appreciated the trustworthy information, and felt that it was useful and appropriate and that the plans for specific infant sleeps would be of benefit to them and other family members. Conclusions: Our tool combines risk assessment and safety planning, both of which have the potential to improve the uptake of lifesaving advice. Refinements to the tool based on these findings have ensured that the tool is ready for further evaluation in a larger study before being rolled out to families with infants at increased risk. (©Anna Pease, Jenny Ingram, Becky Lambert, Karen Patrick, Kieren Pitts, Peter J Fleming, Peter S Blair, The Baby Sleep Project Family Advisory Group. Originally published in JMIR Pediatrics and Parenting (https://pediatrics.jmir.org), 22.02.2024.) |
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| فهرسة مساهمة: | Investigator: A Barr; B King; C Tomasi; F Bridge; H Gomer; K Hawley; M Baggaley; N Pedley; N Yalland; N Diment; R Sexton; S Dawes; S Price; T Banbury Keywords: SIDS; SUDI; antenatal; approach; assessment; attitude; attitudes; babies; baby; co-design; death; develop; development; experience; experiences; infant; infant mortality; infants; interface; mortality; opinion; parent; parent education; parenting; parents; pattern; perception; perceptions; perspective; perspectives; postnatal; process evaluation; prototype; risk; risk assessment; risks; safer sleep; sleep; sleeping; sudden infant death syndrome; sudden unexpected death in infancy; tool; user experience; user testing; web-based |
| تواريخ الأحداث: | Date Created: 20240222 Latest Revision: 20240312 |
| رمز التحديث: | 20240313 |
| مُعرف محوري في PubMed: | PMC10921318 |
| DOI: | 10.2196/49952 |
| PMID: | 38386377 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 2561-6722 |
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| DOI: | 10.2196/49952 |