دورية أكاديمية
Development of core sets for deafblindness: an international expert survey on functioning and disability of individuals living with deafblindness using the International Classification of Functioning, Disability, and Health.
| العنوان: | Development of core sets for deafblindness: an international expert survey on functioning and disability of individuals living with deafblindness using the International Classification of Functioning, Disability, and Health. |
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| المؤلفون: | Wittich W; School of Optometry, University of Montréal, Montreal, QC, Canada - walter.wittich@umontreal.ca.; Institut Nazareth et Louis-Braille du Centre Intégré de Santé et de Services Sociaux de la Montérégie-Centre, Longueuil, QC, Canada - walter.wittich@umontreal.ca.; Centre de Réadaptation Lethbridge-Layton-Mackay du Centre Intégré Universitaire de Santé et de Services Sociaux du Centre-Ouest-de-l'Île-de-Montréal, Montreal, QC, Canada - walter.wittich@umontreal.ca., Dumassais S; School of Optometry, University of Montréal, Montreal, QC, Canada., Jaiswal A; School of Optometry, University of Montréal, Montreal, QC, Canada.; Institut Nazareth et Louis-Braille du Centre Intégré de Santé et de Services Sociaux de la Montérégie-Centre, Longueuil, QC, Canada.; Bruyère Research Institute, Ottawa, ON, Canada., Paramasivam A; Johns Hopkins Bloomberg School of Public Health, Department of International Health, Baltimore, MD, USA., Budhiraja S; Bruyère Research Institute, Ottawa, ON, Canada., Lopez R; European Deafblind Network, Barcelona, Spain., Granberg S; School of Health Sciences, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.; Audiological Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden. |
| المصدر: | European journal of physical and rehabilitation medicine [Eur J Phys Rehabil Med] 2024 Apr; Vol. 60 (2), pp. 382-390. Date of Electronic Publication: 2024 Mar 19. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Edizioni Minerva Medica Country of Publication: Italy NLM ID: 101465662 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1973-9095 (Electronic) Linking ISSN: 19739087 NLM ISO Abbreviation: Eur J Phys Rehabil Med Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: Torino : Edizioni Minerva Medica |
| مواضيع طبية MeSH: | Deaf-Blind Disorders* , Disabled Persons*/rehabilitation, Humans ; International Classification of Functioning, Disability and Health ; Cross-Sectional Studies ; Surveys and Questionnaires ; Disability Evaluation ; Activities of Daily Living |
| مستخلص: | Background: The development of International Classification of Functioning, Disability, and Health (ICF) Core Sets greatly enhances the global recognition of health conditions, thereby advancing research, education, and care provision. Aside from the work of researchers, and the viewpoint of persons with lived experience, the development of Core Sets for deafblindness needs to include the viewpoints of professionals with expertise unique to this condition. Aim: To represent the perspective of health and social service expert professionals in the development of ICF Core Sets for deafblindness. Design: Cross-sectional cohort study. Setting: Global online survey representing all six regions of the World Health Organization. Population: One hundred and five professionals providing and health or social service to individuals living with deafblindness with a minimum of 2 years of work experience with this population. Methods: An online survey was distributed through professional networks and social media for individuals working with persons living with deafblindness. Demographic items were summarized using descriptive statistics. Six open-ended questions explored the perceptions of body functions and structures that influence activities and participation, as well as environmental and personal factors that facilitate functioning. Data were linked to the ICF codes using established linking rules and procedures. Results: The 2934 survey response units were linked using IFC categories. Of the 421 unique categories, 133 were used by 5% or more of respondents. Most categories within the Activities and Participation component were equally emphasized. The most frequent Environmental factors were support and relationships, services, systems, and policies, as well as and the physical environment (e.g., hearing aids or noise). Mental functions, including higher level cognitive functions, temperament and personality were frequently emphasized. Conclusions: Almost three quarters (73.3%) of the entire ICF classification categories were included in the expert survey results. This proportion emphasizes the importance of a multidimensional tool, such as the ICF, for assessing functioning and health for persons with deafblindness. Clinical Rehabilitation Impact: The representation of this professional perspective in Core Set development will improve standardized assessment and documentation, intervention planning, and facilitate interprofessional communication with the goal of improving person-centered care for persons living with deafblindness. |
| References: | Int J Qual Stud Health Well-being. 2022 Dec;17(1):2064049. (PMID: 35437116) Eur J Phys Rehabil Med. 2023 Oct;59(5):615-627. (PMID: 37458491) Eur J Phys Rehabil Med. 2019 Jun;55(3):384-394. (PMID: 30990004) Int J Audiol. 2014 Feb;53(2):65-76. (PMID: 24313738) PLoS One. 2021 Dec 14;16(12):e0261413. (PMID: 34905579) J Med Internet Res. 2004 Sep 29;6(3):e34. (PMID: 15471760) Disabil Rehabil. 2019 Mar;41(5):574-583. (PMID: 26984720) Disabil Rehabil. 2022 Jul;44(14):3736-3748. (PMID: 33535017) Int J Audiol. 2014 Feb;53(2):77-87. (PMID: 24329490) Disabil Rehabil Assist Technol. 2011;6(2):87-96. (PMID: 20698763) Eur J Phys Rehabil Med. 2015 Feb;51(1):105-17. (PMID: 24686893) Int J Audiol. 2014 Aug;53(8):497-506. (PMID: 24754459) Int J Audiol. 2014 Nov;53(11):777-86. (PMID: 25311099) |
| تواريخ الأحداث: | Date Created: 20240319 Date Completed: 20240415 Latest Revision: 20240530 |
| رمز التحديث: | 20240530 |
| مُعرف محوري في PubMed: | PMC11131589 |
| DOI: | 10.23736/S1973-9087.24.08188-7 |
| PMID: | 38502555 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 1973-9095 |
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| DOI: | 10.23736/S1973-9087.24.08188-7 |